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Hospice care for at-home ALS patients by using action-research method

Research Project

Project/Area Number 23593425
Research Category

Grant-in-Aid for Scientific Research (C)

Allocation TypeMulti-year Fund
Section一般
Research Field Community health/Gerontological nurisng
Research InstitutionGunma University

Principal Investigator

USHIKUBO Mitsuko  群馬大学, 保健学研究科, 教授 (90213412)

Co-Investigator(Kenkyū-buntansha) IIDA Mitsue  群馬県立県民健康科学大学, 看護学部, 准教授 (80272269)
Project Period (FY) 2011-04-28 – 2015-03-31
Project Status Completed (Fiscal Year 2014)
Budget Amount *help
¥5,330,000 (Direct Cost: ¥4,100,000、Indirect Cost: ¥1,230,000)
Fiscal Year 2014: ¥650,000 (Direct Cost: ¥500,000、Indirect Cost: ¥150,000)
Fiscal Year 2013: ¥1,040,000 (Direct Cost: ¥800,000、Indirect Cost: ¥240,000)
Fiscal Year 2012: ¥1,040,000 (Direct Cost: ¥800,000、Indirect Cost: ¥240,000)
Fiscal Year 2011: ¥2,600,000 (Direct Cost: ¥2,000,000、Indirect Cost: ¥600,000)
Keywords筋萎縮性側索硬化症 / ALS / 在宅ケア / 終末期ケア / 死亡 / ホスピスケア / 看取り / 呼吸不全 / 緩和ケア / 在宅療養支援 / 事前意思確認書 / 在宅死 / 病院死 / 終末期 / 在宅 / 訪問看護
Outline of Final Research Achievements

The purpose of this study was to develop hospice care for in-home ALS patients who do not want to initiate tracheostomy positive pressure ventilation. Many unpredicted situations approaching death were emerged: abrupt death, or use of life-sustaining therapy on their respiratory failure. Health care providers need to support for the decision-making about medical treatment and place of death, provide high-quality palliative care, and prepare advanced directives from early stage, and share the goal of terminal care among team members, based on multi-disciplinary collaboration in order to accomplish the patient’s desire about place of death. We recommend the further study to develop palliative care by various medical treatments for respiratory insufficiency.

Report

(5 results)
  • 2014 Annual Research Report   Final Research Report ( PDF )
  • 2013 Research-status Report
  • 2012 Research-status Report
  • 2011 Research-status Report
  • Research Products

    (30 results)

All 2015 2014 2013 2012 2011

All Journal Article (10 results) (of which Peer Reviewed: 7 results,  Acknowledgement Compliant: 1 results) Presentation (20 results)

  • [Journal Article] 在宅筋萎縮性側索硬化症療養者の急変時対応に関する認識と実態2015

    • Author(s)
      大谷忠広、牛久保美津子、川尻洋美、中川裕、飯田苗恵、岡本幸市
    • Journal Title

      The KITAKANTO Medical Journal

      Volume: 65(1) Pages: 77-82

    • NAID

      130005060949

    • Related Report
      2014 Annual Research Report
    • Peer Reviewed
  • [Journal Article] Comparison Between Home and Hospital as the Place of Death for Individuals with Amyotrophic Lateral Sclerosis in the Last Stages of Illness2014

    • Author(s)
      Ushikubo M
    • Journal Title

      American Journal of Hospice and Palliative Medicine

      Volume: Mar Issue: 4 Pages: 1-8

    • DOI

      10.1177/1049909114525259

    • Related Report
      2014 Annual Research Report 2013 Research-status Report
    • Peer Reviewed / Acknowledgement Compliant
  • [Journal Article] 訪問看護師と病院看護師の連携による新たんの吸引法の導入に成功したALS療養者への支援2014

    • Author(s)
      鈴木美雪、牛久保美津子、飯田苗恵、桧垣まゆみ
    • Journal Title

      日本難病看護学会誌

      Volume: 18(3) Pages: 199-205

    • Related Report
      2014 Annual Research Report
    • Peer Reviewed
  • [Journal Article] Illness Course and Circumstances of Death among Individuals with Rapidly Progressive Amyotrophic Lateral Sclerosis2013

    • Author(s)
      Ushikubo M, Tomita C, Inokuma A, Ikeda M, Okamoto K
    • Journal Title

      IMJ

      Volume: 20(4) Pages: 446-449

    • Related Report
      2013 Research-status Report
    • Peer Reviewed
  • [Journal Article] 人工呼吸器非装着の筋萎縮性側索硬化症の在宅終末期ケアに関するケース検討のまとめ2013

    • Author(s)
      中嶋馨子、小倉朗子、牛久保美津子
    • Journal Title

      日本難病看護学会誌

      Volume: 18(2) Pages: 133-134

    • Related Report
      2013 Research-status Report
  • [Journal Article] Illness Course and Circumstances of Death among Individuals with Rapidly Progressive Amyotrophic Lateral Sclerosis2013

    • Author(s)
      Ushiukbo M, Tomita C, Inokuma A, Ikeda M, Okamoto K
    • Journal Title

      International Medical Journal

      Volume: 20(4)

    • Related Report
      2012 Research-status Report
  • [Journal Article] Circumstances surrounding death and nursing difficulties with end-of-life care for individuals with ALS in Central Japan2012

    • Author(s)
      Ushikubo M, Okamoto K
    • Journal Title

      International Journal of Palliative Nursing

      Volume: 18 Pages: 554-560

    • Related Report
      2012 Research-status Report
    • Peer Reviewed
  • [Journal Article] 病院と地域支援者間で実施した筋萎縮性側索硬化症のデスカンファレンス2012

    • Author(s)
      大谷忠広、牛久保美津子、冨田千恵子、猪熊綾子、市川幸恵、池田将樹、岡本幸市
    • Journal Title

      日本プライマリ・ケア連合学会誌

      Volume: 9 Pages: 216-221

    • NAID

      10031143343

    • Related Report
      2012 Research-status Report
    • Peer Reviewed
  • [Journal Article] A県における神経難病療養者を地域で支える保健所保健師の活動の現況と課題2011

    • Author(s)
      牛久保美津子、川尻洋美
    • Journal Title

      日本プライマリ・ケア連合学会誌

      Volume: 34(2) Pages: 124-132

    • Related Report
      2011 Research-status Report
    • Peer Reviewed
  • [Journal Article] ALS療養者の在宅生活を補完する施設ケアの現状と課題2011

    • Author(s)
      牛久保美津子
    • Journal Title

      難病と在宅ケア

      Volume: 17(3) Pages: 49-52

    • Related Report
      2011 Research-status Report
  • [Presentation] 在宅筋萎縮性側索硬化症療養者の急変時対応の認識と実態2014

    • Author(s)
      牛久保美津子、川尻洋美、中川裕、大谷忠広、飯田苗恵、岡本幸市
    • Organizer
      第2回日本難病医療ネットワーク学会
    • Place of Presentation
      鹿児島
    • Year and Date
      2014-11-15 – 2014-11-16
    • Related Report
      2014 Annual Research Report
  • [Presentation] 緊急入院した筋萎縮性側索硬化症者が転院するまでの過程の分析2014

    • Author(s)
      市川幸恵、牛久保美津子、中川裕、猪熊綾子、冨田千恵子
    • Organizer
      第61回北関東医学会総会
    • Place of Presentation
      前橋市
    • Year and Date
      2014-09-25 – 2014-09-26
    • Related Report
      2014 Annual Research Report
  • [Presentation] レスパイト入院に関する在宅筋萎縮性側索硬化症療養者と家族の反応と訪問看護による支援2014

    • Author(s)
      鈴木詩織、阿部百合恵、牛久保美津子
    • Organizer
      題19回日本難病看護学会
    • Place of Presentation
      広島
    • Year and Date
      2014-08-29 – 2014-08-30
    • Related Report
      2014 Annual Research Report
  • [Presentation] 筋萎縮性側索硬化症療養者における新たんの吸引法の効果と課題2014

    • Author(s)
      鈴木美雪、飯田苗恵、牛久保美津子
    • Organizer
      第29回日本難病看護学会
    • Place of Presentation
      広島
    • Year and Date
      2014-08-29 – 2014-08-30
    • Related Report
      2014 Annual Research Report
  • [Presentation] 筋萎縮性側索硬化症療養者が胃瘻造設を受け入れるまでのプロセス2014

    • Author(s)
      冨田千恵子、牛久保美津子、猪熊綾子、市川幸恵
    • Organizer
      第19回日本難病看護学会
    • Place of Presentation
      広島
    • Year and Date
      2014-08-29 – 2014-08-30
    • Related Report
      2014 Annual Research Report
  • [Presentation] 全国の難病相談・支援センターにおける取り組みに関する実態調査2014

    • Author(s)
      川尻洋美、牛久保美津子
    • Organizer
      第19回日本難病看護学会
    • Place of Presentation
      広島
    • Year and Date
      2014-08-29 – 2014-08-30
    • Related Report
      2014 Annual Research Report
  • [Presentation] End-of-life situations of Patitnts with Amyotrophic Lateral Sclerosis Living with Home Mechanical Ventilation2014

    • Author(s)
      Mitsuko Ushikubo, Mitsue Iida
    • Organizer
      Singapore Palliative Care Conference
    • Place of Presentation
      Singapore
    • Year and Date
      2014-06-28 – 2014-06-29
    • Related Report
      2014 Annual Research Report
  • [Presentation] 在宅筋萎縮性側索硬化症療養者の訪問看護開始から死亡までの療養生活支援において訪問看護師が経験した困難2013

    • Author(s)
      牛久保美津子
    • Organizer
      第18回日本難病看護学会学術集会
    • Place of Presentation
      東京
    • Related Report
      2013 Research-status Report
  • [Presentation] 筋萎縮性側索硬化症の在宅終末期ケアのケース検討2013

    • Author(s)
      牛久保美津子、小倉朗子、中嶋馨子
    • Organizer
      第18回日本難病看護学会学術集会
    • Place of Presentation
      東京
    • Related Report
      2013 Research-status Report
  • [Presentation] 神経内科看護相談活動における摂食・嚥下障害看護認定看護師との協働による筋萎縮性側索硬化症患者への支援2013

    • Author(s)
      大谷忠広、牛久保美津子、冨田千恵子、猪熊綾子、市川幸恵、武藤満里子、横山詞果
    • Organizer
      第18回日本難病看護学会学術集会
    • Place of Presentation
      東京
    • Related Report
      2013 Research-status Report
  • [Presentation] 筋萎縮性側索硬化症療養者への事前意思確認書の導入状況と課題2013

    • Author(s)
      塚越設貴、古田夏海、牛久保美津子、猪熊綾子、市川幸恵、冨田千恵子、渡邊充子、池田将樹
    • Organizer
      第60回北関東医学会総会
    • Place of Presentation
      前橋市
    • Related Report
      2013 Research-status Report
  • [Presentation] Difficulties of home care nurses supporting individuals with amyotrophic lateral sclerosis unitil end-of-life2013

    • Author(s)
      Ushikubo M, Iida M, Okamoto K
    • Organizer
      24th International symposium on ALS/MND
    • Place of Presentation
      Milano, Italy
    • Related Report
      2013 Research-status Report
  • [Presentation] Community-based care for individulas with rapidly progressive amyotrophic lateral sclerosis in the end-of-life period2012

    • Author(s)
      Ushikubo M, Arai A, Tomita C, Inokuma A, Ichikawa S, Ikeda M, Okamoto K
    • Organizer
      7th World Research Conference of European Association of Palliative Care
    • Place of Presentation
      Tronheim, Norway
    • Related Report
      2012 Research-status Report
  • [Presentation] Nurse-led clinic fror neurological patients leads to systematic collaborationbetween hospital and communities2012

    • Author(s)
      Ushikubo M, Ohtani T, Tomita C, Inokuma A, Ichikawa S, Watanabe AM, Ikeda M, Okamoto K
    • Organizer
      6th International conference for interprofessional education and collaborative pracitce
    • Place of Presentation
      Koube, Japan
    • Related Report
      2012 Research-status Report
  • [Presentation] 診断から死亡までの筋萎縮性側索硬化症療養者支援における病院看護師と保健所保健師の円滑な情報共有2012

    • Author(s)
      冨田千恵子、今井悦代、牛久保美津子
    • Organizer
      第17回日本難病看護学会学術集会
    • Place of Presentation
      東京
    • Related Report
      2012 Research-status Report
  • [Presentation] 群馬大学神経内科看護相談活動の初期的評価2012

    • Author(s)
      猪熊綾子、牛久保美津子、冨田千恵子、市川幸恵、横山詞果、池田将樹、岡本幸市
    • Organizer
      第59回北関東医学会総会
    • Place of Presentation
      前橋市
    • Related Report
      2012 Research-status Report
  • [Presentation] 群馬県内1訪問看護ステーションからみた在宅看取り状況と訪問看護体制2012

    • Author(s)
      田中実由貴、羽鳥秋子、新井明子、牛久保美津子
    • Organizer
      第16回日本在宅ケア学会
    • Place of Presentation
      東京
    • Related Report
      2011 Research-status Report
  • [Presentation] 群馬県看護協会訪問看護ステーション粕川における在宅看取りの現状2012

    • Author(s)
      田中実由貴、羽鳥秋子、新井明子、牛久保美津子
    • Organizer
      平成23年度日本プライマリ・ケア学会群馬県支部研究会
    • Place of Presentation
      前橋市
    • Related Report
      2011 Research-status Report
  • [Presentation] 筋萎縮性側索硬化症療養者の在宅療養生活支援における病棟看護師の課題2012

    • Author(s)
      大谷忠広、猪熊綾子、冨田千恵子、牛久保美津子、池田将樹、岡本幸市
    • Organizer
      平成23年度日本プライマリ・ケア学会群馬県支部研究会
    • Place of Presentation
      前橋市
    • Related Report
      2011 Research-status Report
  • [Presentation] 病院と地域看護職者間によるALSデスカンファレンスで見出された地域連携課題2011

    • Author(s)
      大谷忠広、牛久保美津子、冨田千恵子、ほか
    • Organizer
      第18回北関東医学会総会
    • Place of Presentation
      前橋市
    • Related Report
      2011 Research-status Report

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Published: 2011-08-05   Modified: 2019-07-29  

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