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Human genetic testing in East Asia: Usage and social issues

Research Project

Project/Area Number 23613003
Research Category

Grant-in-Aid for Scientific Research (C)

Allocation TypeMulti-year Fund
Section一般
Research Field Bioethics
Research InstitutionThe University of Tokyo

Principal Investigator

HONG Hyunsoo  東京大学, 医科学研究所, 特任助教 (70313400)

Project Period (FY) 2011 – 2013
Project Status Completed (Fiscal Year 2013)
Budget Amount *help
¥5,330,000 (Direct Cost: ¥4,100,000、Indirect Cost: ¥1,230,000)
Fiscal Year 2013: ¥1,950,000 (Direct Cost: ¥1,500,000、Indirect Cost: ¥450,000)
Fiscal Year 2012: ¥1,430,000 (Direct Cost: ¥1,100,000、Indirect Cost: ¥330,000)
Fiscal Year 2011: ¥1,950,000 (Direct Cost: ¥1,500,000、Indirect Cost: ¥450,000)
Keywords東アジア / 遺伝子検査 / 意識調査 / 社会的・倫理的問題 / インタビュー調査 / 遺伝子解析技術 / 生命倫理 / 日本 / 韓国 / 台湾
Research Abstract

This study compares the different societal perspectives and responses towards human genetic testing in three East Asian countries. The study used surveys and focus group interviews conducted in Japan, South Korea, and Taiwan to investigate national differences in genetic testing usage and public opinion. Results showed that the public in all three countries had a low overall interest in genetic testing's technology; furthermore, those in Japan and South Korea had differing opinions on its use in pregnancy, giving birth, and childcare. In order to resolve such conflicts between different perspectives and concerns about human genetic testing, our data suggests that genetic testing usage should strike a balance between governmental regulation and personal decision-making. In addition, such a balance should be sought not only within East Asian countries, but also worldwide.

Report

(4 results)
  • 2013 Annual Research Report   Final Research Report ( PDF )
  • 2012 Research-status Report
  • 2011 Research-status Report
  • Research Products

    (25 results)

All 2014 2013 2012 2011 Other

All Journal Article (4 results) (of which Peer Reviewed: 2 results) Presentation (19 results) (of which Invited: 4 results) Book (2 results)

  • [Journal Article] パーソナルゲノム時代における倫理的課題:研究倫理コンサルテーションとは何か~GENCAT研究の経験から~2014

    • Author(s)
      武藤香織, 洪賢秀
    • Journal Title

      医療ジャーナル

      Volume: Vol.50.No.3 Pages: 951-954

    • Related Report
      2013 Final Research Report
  • [Journal Article] 4.パーソナルゲノム時代における倫理的課題:研究倫理コンサルテーションとは何か? ~GENCAT研究の経験から~2014

    • Author(s)
      武藤香織・洪 賢秀
    • Journal Title

      医療ジャーナル

      Volume: Vol.50 No.3 Pages: 951-954

    • Related Report
      2013 Annual Research Report
  • [Journal Article] Reconsidering ethical issues about"voluntary egg donors"in Hwang's case in global context2011

    • Author(s)
      Azumi Tsuge, Hyunsoo Hong
    • Journal Title

      New Genetics and Society

      Volume: Volume 30, Issue 3 Pages: 241-252

    • Related Report
      2013 Final Research Report
    • Peer Reviewed
  • [Journal Article] Reconsidering ethical issues about "voluntary egg donors" in Hwang's case in global context2011

    • Author(s)
      Azumi Tsuge & Hyunsoo Hong
    • Journal Title

      New Genetics and Society.

      Volume: Volume 30, Issue 3, Pages: 241-252

    • Related Report
      2011 Research-status Report
    • Peer Reviewed
  • [Presentation] 韓国社会で子どもをもつこと, 子どもを産むこと2014

    • Author(s)
      洪賢秀
    • Organizer
      東アジアの生殖における技術と社会研究会
    • Place of Presentation
      一橋大学
    • Year and Date
      2014-01-21
    • Related Report
      2013 Final Research Report
    • Invited
  • [Presentation] 韓国社会で子どもをもつこと・子どもを産むこと2014

    • Author(s)
      洪 賢秀
    • Organizer
      「東アジアの生殖における技術と社会」研究会
    • Place of Presentation
      一橋大学(東京都国立市)
    • Related Report
      2013 Annual Research Report
    • Invited
  • [Presentation] 『資質遺伝子検査』に対する一般市民の意識~日韓におけるフォーカス, グループインタビューを手掛かりに2013

    • Author(s)
      洪賢秀, 武藤香織
    • Organizer
      日本生命倫理学会
    • Place of Presentation
      東京大学
    • Year and Date
      2013-12-01
    • Related Report
      2013 Final Research Report
  • [Presentation] 中国における『優生政策』と生命科学政策の相互作用2013

    • Author(s)
      趙斌, 洪賢秀, 武藤香織
    • Organizer
      日本生命倫理学会
    • Place of Presentation
      東京大学
    • Year and Date
      2013-12-01
    • Related Report
      2013 Final Research Report
  • [Presentation] 「資質遺伝子検査」に対する一般市民の意識 ~日韓におけるフォーカス・グループインタビューを手掛かりに2013

    • Author(s)
      洪 賢秀
    • Organizer
      日本生命倫理学会
    • Place of Presentation
      東京大学(東京都文京区)
    • Related Report
      2013 Annual Research Report
  • [Presentation] 中国における「優生政策」と生命科学政策の相互作用2013

    • Author(s)
      趙斌、洪賢秀、武藤香織
    • Organizer
      日本生命倫理学会
    • Place of Presentation
      東京大学(東京都文京区)
    • Related Report
      2013 Annual Research Report
  • [Presentation] 韓国・生命倫理安全法の10年~何を・なぜ・どのように2013

    • Author(s)
      洪 賢秀
    • Organizer
      東京財団フォーラム
    • Place of Presentation
      日本財団東京都港区)
    • Related Report
      2013 Annual Research Report
    • Invited
  • [Presentation] "A Study of the Informed Consent Process:The Role of Research Coordinators in Biobank Japan." Bioethics and Life : Security, Science and Society2012

    • Author(s)
      洪賢秀
    • Organizer
      13^<th> ASIAN BIOETHICS CONFERENCE
    • Place of Presentation
      Institute of Diplomacy & Foreign Relations (IDFR) Kuala Lumpur, Malaysia
    • Year and Date
      2012-08-28
    • Related Report
      2013 Final Research Report
  • [Presentation] Communication with the Participant in the Biobank Japan Project Recent Progress in Translational Cancer Research and Biobank2012

    • Author(s)
      Hyunsoo Hong, Muto, Kaori, Chang, Chiungfang
    • Organizer
      2012 KUDH Cancer Center & Biobank International Symposium
    • Place of Presentation
      韓国, Keimyung University Dongsan Hospital
    • Related Report
      2013 Final Research Report
  • [Presentation] "Terminal Care and Well-being in South Korea"Living in a Community of Resilience : A Comparative Study on the Search for Well-being in Multicultural Aging Societies2012

    • Author(s)
      Hyunsoo Hong
    • Organizer
      国際シンポジウム:ケアと育みの人類学
    • Place of Presentation
      国立民族学博物館
    • Related Report
      2013 Final Research Report
  • [Presentation] "Reproductive Technologies in South Korea"'New Reproductive Technology and Social Relationships in Asia2011

    • Author(s)
      Hyunsoo Hong
    • Organizer
      Birth, Kinship, and Gender'International Symposium
    • Place of Presentation
      国立民族学博物館
    • Year and Date
      2011-09-08
    • Related Report
      2013 Final Research Report
  • [Presentation] "Tracking New Lives and Well-Beings of ALS Patients with Technologies in South Korea."'Re-contextualization of Technologies and Materials : Pursuing the Well-being in Aging Society'2011

    • Author(s)
      Hyunsoo Hong
    • Organizer
      The Society for East Asian Anthropology(SEAA)
    • Place of Presentation
      韓国全北大学
    • Year and Date
      2011-08-02
    • Related Report
      2013 Final Research Report
  • [Presentation] 患者登録と追跡におけるリサーチコーディネーターの役割に関する一考察~『オーダーメイド医療実現化プロジェクトの事例を中心に』2011

    • Author(s)
      Hyunsoo Hong
    • Organizer
      第1回遺伝医学合同学術集会2011
    • Place of Presentation
      京都大学(ポスター発表)
    • Related Report
      2013 Final Research Report
  • [Presentation] 患者登録と追跡におけるリサーチコーディネーターの役割に関する一考察~「オーダーメイド医療実現化プロジェクト」の事例を中心に2011

    • Author(s)
      洪賢秀、武藤香織、張瓊方、渡部麻衣子
    • Organizer
      第1回遺伝医学合同学術集会2011
    • Place of Presentation
      京都大学百周年時計台記念館
    • Related Report
      2011 Research-status Report
  • [Presentation] Tracking New Lives and Well-Beings of ALS Patients with Technologies in South Korea.2011

    • Author(s)
      Hyusoo Hong
    • Organizer
      The Society for East Asian Anthropology(SEAA)
    • Place of Presentation
      韓国全州市・全北大学
    • Related Report
      2011 Research-status Report
  • [Presentation] 患者登録と追跡におけるリサーチコーディネーターの役割に関する一考察~『オーダーメイド医療実現化プロジェクトの事例を 中心に』

    • Author(s)
      洪賢秀, 武藤香織, 張瓊方, 渡部麻衣子
    • Organizer
      第1回遺伝医学合同学術集会2011
    • Place of Presentation
      京都大学(ポスター発表)
    • Related Report
      2013 Final Research Report
  • [Presentation] Communication with the Participant in the Biobank Japan Project

    • Author(s)
      Hyunsoo Hong
    • Organizer
      2012 KUDH Cancer Center & Biobank International Symposium
    • Place of Presentation
      Dae-Gu, South Korea
    • Related Report
      2012 Research-status Report
    • Invited
  • [Presentation] A Study of the Informed Consent Process:The Role of Research Coordinators in Biobank Japan.

    • Author(s)
      Hong, Hyunsoo, Muto, Kaori, Chang, Chiungfang
    • Organizer
      Asian Bioethics Conference
    • Place of Presentation
      Kuala Lumpur, Malaysia
    • Related Report
      2012 Research-status Report
  • [Presentation] 東アジアにおけるALS患者の在宅療養の現状 ー日本、台湾、韓国の取り組みを例としてー

    • Author(s)
      張瓊方、武藤香織、洪賢秀
    • Organizer
      第17回日本難病看護学会学術集会
    • Place of Presentation
      東京、日本
    • Related Report
      2012 Research-status Report
  • [Book] 韓国における生殖医療と法的ルール『生殖医療と医事法』2014

    • Author(s)
      洪賢秀
    • Publisher
      信山社
    • Related Report
      2013 Final Research Report
  • [Book] 「韓国における生殖医療と法的ルール」『生殖医療と医事法』2014

    • Author(s)
      洪 賢秀
    • Publisher
      信山社
    • Related Report
      2013 Annual Research Report

URL: 

Published: 2011-08-05   Modified: 2019-07-29  

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