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Lifelong Developmental Study of People with Congenital Limb Differences for Psychosocial Support

Research Project

Project/Area Number 23730548
Research Category

Grant-in-Aid for Young Scientists (B)

Allocation TypeMulti-year Fund
Research Field Social welfare and social work studies
Research InstitutionShinshu University (2013-2015)
Waseda University (2011-2012)

Principal Investigator

SHIRAGA Akiko  信州大学, 地域戦略センター, 研究員 (60548238)

Project Period (FY) 2011-04-28 – 2016-03-31
Project Status Completed (Fiscal Year 2015)
Budget Amount *help
¥4,290,000 (Direct Cost: ¥3,300,000、Indirect Cost: ¥990,000)
Fiscal Year 2013: ¥910,000 (Direct Cost: ¥700,000、Indirect Cost: ¥210,000)
Fiscal Year 2012: ¥1,820,000 (Direct Cost: ¥1,400,000、Indirect Cost: ¥420,000)
Fiscal Year 2011: ¥1,560,000 (Direct Cost: ¥1,200,000、Indirect Cost: ¥360,000)
Keywords生涯発達 / 障害認識 / 身体的課題 / 心理社会的課題 / 学齢期 / 援助要請 / 障害児 / 障害当事者 / 先天性四肢障害 / 心理社会的支援 / インタビュー / アンケート調査 / 軽度障害 / ニーズ / 障害受容 / 発達に伴う課題 / 軽度身体障害 / 外傷後成長 / 意味づけ / 当事者 / 身体 / 主観的障害観 / 先天異常 / 主観的障害
Outline of Final Research Achievements

In a survey of Congenital Limb Difference (CLD), this study aim to reveal (1) problems or difficulties during development, (2) supported experience, and (3) self-cognition about their differences. We analyzed following data; (1) interview with key-person within self-help group, (2) parent questionnaire about child-rearing, (3) articles written by CLD people from monthly newsletter for individuals with CLD, and (4) life-story interview with CLD student.
In the result, we found that CLD child encounter similar difficulties with development, CLD child gradually realize their differences from age 2, social problems are increase in school-age and the time of entrance into school, people with CLD are difficult to act consultation behavior or help-seeking behavior. It seems that these findings are the characteristics of mild physical impairment.

Report

(6 results)
  • 2015 Annual Research Report   Final Research Report ( PDF )
  • 2014 Research-status Report
  • 2013 Research-status Report
  • 2012 Research-status Report
  • 2011 Research-status Report
  • Research Products

    (11 results)

All 2016 2015 2014 2013 2012 Other

All Journal Article (1 results) Presentation (10 results) (of which Int'l Joint Research: 1 results)

  • [Journal Article] 子育てにおける「専門家」の役割の光と陰―障害新生児の家族への告知をめぐって2013

    • Author(s)
      白神晃子
    • Journal Title

      乳幼児医学心理学研究

      Volume: 22 Pages: 9-16

    • Related Report
      2013 Research-status Report
  • [Presentation] Personal Growth Associated with Parenting Children with Congeni tal Limb Differences2016

    • Author(s)
      Akiko Shiraga
    • Organizer
      the 31st International Congress of Psychology 2016
    • Place of Presentation
      PACIFIC O Yokohama (Yokohama, Japan)
    • Year and Date
      2016-07-24
    • Related Report
      2015 Annual Research Report
    • Int'l Joint Research
  • [Presentation] 外表性身体障害のある幼児が「違い」に気づくとき2016

    • Author(s)
      白神 晃子・白神 敬介
    • Organizer
      日本発達心理学会第27回大会
    • Place of Presentation
      北海道大学(北海道札幌市)
    • Year and Date
      2016-04-29
    • Related Report
      2015 Annual Research Report
  • [Presentation] 先天性四肢障害児の父母における告知直後の心理反応の類型化:夫婦の組み合わせデータの特徴2015

    • Author(s)
      白神 晃子
    • Organizer
      第25回乳幼児医学心理学会
    • Place of Presentation
      東洋英和女学院 (東京都港区)
    • Year and Date
      2015-11-07
    • Related Report
      2015 Annual Research Report
  • [Presentation] 先天性四肢障害児の学校生活における課題とその特徴:子育ての困難経験に関する親の報告から2015

    • Author(s)
      白神 晃子
    • Organizer
      第52回日本特殊教育学会
    • Place of Presentation
      東北大学(宮城県仙台市)
    • Year and Date
      2015-09-18
    • Related Report
      2015 Annual Research Report
  • [Presentation] 軽度身体障害者における援助要請の困難2014

    • Author(s)
      白神晃子
    • Organizer
      日本心理学会第78回大会
    • Place of Presentation
      京都市、同志社大学
    • Year and Date
      2014-09-11
    • Related Report
      2014 Research-status Report
  • [Presentation] 子育てにおける「専門家」の役割の光と陰2012

    • Author(s)
      白神晃子,堀内勁,外山紀子,宮本信也
    • Organizer
      日本乳幼児医学心理学会
    • Place of Presentation
      東京
    • Related Report
      2012 Research-status Report
  • [Presentation] 障害新生児の親支援に向けた告知直後の心理反応の類型化:クラスタと父母の特徴をふまえた支援の方向性

    • Author(s)
      白神晃子
    • Organizer
      日本心理学会
    • Place of Presentation
      北海道医療大学(札幌市)
    • Related Report
      2013 Research-status Report
  • [Presentation] 先天性四肢障害児の親の告知後の心理反応と諸条件との関連

    • Author(s)
      白神晃子
    • Organizer
      乳幼児医学心理学会
    • Place of Presentation
      北海道大学(札幌市)
    • Related Report
      2013 Research-status Report
  • [Presentation] 先天性四肢障害当事者の生活に伴う困難感

    • Author(s)
      白神晃子
    • Organizer
      日本発達心理学会
    • Place of Presentation
      京都大学(京都市)
    • Related Report
      2013 Research-status Report
  • [Presentation] The Actual Situation of Informing Parents of their Newborn's Congenital Limb Differences and Parents' Requests for Informing

    • Author(s)
      Akiko Shiraga
    • Organizer
      14th WAIMH World Congress
    • Place of Presentation
      The Edinburgh International Conference Centre, Edinburgh, Scotland, UK
    • Related Report
      2013 Research-status Report

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Published: 2011-08-05   Modified: 2019-07-29  

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