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User-Friendly Services for Families raising Children with Special Health Care Needs

Research Project

Project/Area Number 23792667
Research Category

Grant-in-Aid for Young Scientists (B)

Allocation TypeMulti-year Fund
Research Field Lifelong developmental nursing
Research InstitutionIbaraki Christian University

Principal Investigator

MATSUZAWA Akemi  茨城キリスト教大学, 看護学部, 准教授 (20382822)

Project Period (FY) 2011 – 2013
Project Status Completed (Fiscal Year 2013)
Budget Amount *help
¥3,770,000 (Direct Cost: ¥2,900,000、Indirect Cost: ¥870,000)
Fiscal Year 2013: ¥1,300,000 (Direct Cost: ¥1,000,000、Indirect Cost: ¥300,000)
Fiscal Year 2012: ¥1,560,000 (Direct Cost: ¥1,200,000、Indirect Cost: ¥360,000)
Fiscal Year 2011: ¥910,000 (Direct Cost: ¥700,000、Indirect Cost: ¥210,000)
Keywords在宅障害児家族 / ユーザーフレンドリー / サービス利用 / サービス利用システム / 在宅障害児 / 在宅ケア / 家族 / サービスの質 / ヘルスサービスリサーチ / 情報提供 / ファミリー中心サービス
Research Abstract

This study examined factors related to the utilizations of services for the children with special health care needs and their families at home. Data were collected using a self-administered questionnaire from 172 parents of children with special health care needs belonging to patient and family advocacy groups. The non-service use associated with level of children's ADL,lack of information about service use and counseling and primary caregivers of health related QOL.A total of 23.3% of families raising children with special health care needs have been experiences of delayed care and services. Furthermore,24.0% of participants thought non-user-friendly services.These results suggested that it is necessary to provide information and counseling that timely and individually for parents with children with special health care needs.

Report

(4 results)
  • 2013 Annual Research Report   Final Research Report ( PDF )
  • 2012 Research-status Report
  • 2011 Research-status Report
  • Research Products

    (14 results)

All 2013 2012 2011 Other

All Presentation (14 results)

  • [Presentation] 在宅障害児の家族の視点からみたサービス利用におけるプロセスの特徴2013

    • Author(s)
      松澤明美
    • Organizer
      第72回日本公衆衛生学会学術集会
    • Place of Presentation
      三重
    • Year and Date
      2013-10-25
    • Related Report
      2013 Final Research Report
  • [Presentation] Employment change of families caring for children with special health care needs2013

    • Author(s)
      Akemi Matsuzawa
    • Organizer
      4th International congress on pediatric nursing
    • Place of Presentation
      Melbourne, Australia
    • Year and Date
      2013-08-25
    • Related Report
      2013 Annual Research Report 2013 Final Research Report
  • [Presentation] 在宅障害児・者を養育する家族のケアに伴う社会参加の機会と時間への影響2013

    • Author(s)
      松澤明美
    • Organizer
      第23回日本小児看護学会学術集会
    • Place of Presentation
      高知
    • Year and Date
      2013-07-13
    • Related Report
      2013 Final Research Report
  • [Presentation] 在宅障害児・者の家族がもつ支援およびサービスに関するニーズの特徴2012

    • Author(s)
      松澤明美
    • Organizer
      第32回日本看護科学学会学術集会
    • Place of Presentation
      東京
    • Year and Date
      2012-12-01
    • Related Report
      2013 Final Research Report
  • [Presentation] 在宅障害児家族のサービス利用の関連要因とサービス利用プロセスの評価-ファミリー中心サービスの構築に向けて2011

    • Author(s)
      松澤明美
    • Organizer
      第37回日本重症心身障害学会学術集会
    • Place of Presentation
      徳島
    • Year and Date
      2011-09-30
    • Related Report
      2013 Final Research Report
  • [Presentation] Service needs of mothers of children with autism in Japan2011

    • Author(s)
      Akemi Matsuzawa
    • Organizer
      10th International family nursing conference
    • Place of Presentation
      kyoto, Japan
    • Year and Date
      2011-06-26
    • Related Report
      2013 Final Research Report
  • [Presentation] 在宅障害児家族のサービス利用の関連要因とサービス利用プロセスの評価-ファミリー中心サービスの構築に向けて2011

    • Author(s)
      松澤明美
    • Organizer
      日本重症心身障害学会
    • Place of Presentation
      ホテルクレメント徳島
    • Related Report
      2011 Research-status Report
  • [Presentation] Service needs of children and young people with autism and their mothers in Japan2011

    • Author(s)
      Akemi Matsuzawa
    • Organizer
      International Conference of Family Nursing
    • Place of Presentation
      国立京都国際会館
    • Related Report
      2011 Research-status Report
  • [Presentation] Parents'perceptions of services for disabled children living at home and their families Focusing on family-centered service

    • Author(s)
      Akemi Matsuzawa
    • Organizer
      14th Asia pacific congress of pediatrics &4th Asia pacific congress of pediatric Nursing
    • Place of Presentation
      Kuching, Sarawak, Malaysia
    • Related Report
      2013 Final Research Report
  • [Presentation] 在宅障害児の家族の視点からみたサービス利用におけるプロセスの特徴

    • Author(s)
      松澤明美
    • Organizer
      第72回日本公衆衛生学会
    • Place of Presentation
      三重
    • Related Report
      2013 Annual Research Report
  • [Presentation] 在宅障害児・者を養育する家族のケアに伴う社会参加の機会と時間への影響

    • Author(s)
      松澤明美
    • Organizer
      第23回日本小児看護学会
    • Place of Presentation
      高知
    • Related Report
      2013 Annual Research Report
  • [Presentation] Parents’ perceptions of services for disabled children living at home and their families: Focusing on family-centered service

    • Author(s)
      Akemi Matsuzawa
    • Organizer
      14th Asia pacific congress of pediatrics &4th Asia pacific congress of pediatric Nursing
    • Place of Presentation
      Kuching, Sarawak, Malaysia
    • Related Report
      2012 Research-status Report
  • [Presentation] 在宅障害児・者を養育する家族の就労状況の変化とその関連要因

    • Author(s)
      松澤 明美
    • Organizer
      日本公衆衛生学会第71回学術集会
    • Place of Presentation
      徳島
    • Related Report
      2012 Research-status Report
  • [Presentation] 在宅障害児・者の家族がもつ支援およびサービスに関するニーズの特徴

    • Author(s)
      松澤 明美
    • Organizer
      日本看護科学学会第32回学術集会
    • Place of Presentation
      東京
    • Related Report
      2012 Research-status Report

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Published: 2011-08-05   Modified: 2019-07-29  

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