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Development of a nursing support program for patients with connective tissue disease or rheumatic disease, and verification of its effects

Research Project

Project/Area Number 24593332
Research Category

Grant-in-Aid for Scientific Research (C)

Allocation TypeMulti-year Fund
Section一般
Research Field Clinical nursing
Research InstitutionJuntendo University

Principal Investigator

Aoki Kiyoko  順天堂大学, 医療看護学部, 教授 (50212361)

Co-Investigator(Kenkyū-buntansha) TAKAYA Mayumi  順天堂大学, 医療看護学部, 准教授 (30269378)
HINO Keiko  順天堂大学, 医療看護学部, 助教 (30550892)
NAGASE Masako  順天堂大学, 医療看護学部, 准教授 (90338765)
UZAWA Kumiko  順天堂大学, 医療看護学部, 助教 (50635167)
Project Period (FY) 2012-04-01 – 2016-03-31
Project Status Completed (Fiscal Year 2015)
Budget Amount *help
¥4,810,000 (Direct Cost: ¥3,700,000、Indirect Cost: ¥1,110,000)
Fiscal Year 2014: ¥1,040,000 (Direct Cost: ¥800,000、Indirect Cost: ¥240,000)
Fiscal Year 2013: ¥1,950,000 (Direct Cost: ¥1,500,000、Indirect Cost: ¥450,000)
Fiscal Year 2012: ¥1,820,000 (Direct Cost: ¥1,400,000、Indirect Cost: ¥420,000)
Keywords膠原病/リウマチ性疾患患者 / 療養上の困難 / セルフケア能力 / セルフマネジメント / 看護支援 / 支援プログラム / QOL / 自己免疫/リウマチ性疾患看護 / 支援方法 / スペシャリストナース / 慢性疾患患者 / 自己免疫/リウマチ性疾患 / 症状マネージメント / 卓越した看護介入 / 膠原病・リウマチ性疾患患者 / セルフケア指導 / 心理的安然 / 看護介入 / 協同的パートナーシップ / 評価 / 膠原病患者 / リウマチ患者 / 看護支援方法 / 看護支援課題
Outline of Final Research Achievements

This study examined a method that helps patients with connective tissue disease or rheumatic disease to predict their disease trajectories and maintain their self-care ability without feeling powerlessness, thereby maintaining quality of life. The effects of the method were also evaluated. It was revealed that nurses need to be recognized as professionals on whom patients can rely during treatment, and that support should be provided in a manner suited to patients’ life so that they can manage long-term treatment by themselves based on the cooperative relationship with nurses. Furthermore, it was revealed that human resources development, system architecture and their evaluation are issues to be addressed in patient support.

Report

(5 results)
  • 2015 Annual Research Report   Final Research Report ( PDF )
  • 2014 Research-status Report
  • 2013 Research-status Report
  • 2012 Research-status Report
  • Research Products

    (18 results)

All 2016 2015 2014 2013 2012 Other

All Journal Article (2 results) (of which Peer Reviewed: 2 results,  Open Access: 1 results,  Acknowledgement Compliant: 1 results) Presentation (9 results) (of which Int'l Joint Research: 2 results,  Invited: 1 results) Book (7 results)

  • [Journal Article] 外来通院中の全身性エリテマトーデス患者のセルフケア行動の実態と主観的QOLとの関連2015

    • Author(s)
      鵜澤久美子,青木きよ子,髙谷真由美
    • Journal Title

      日本慢性看護学会誌

      Volume: 9(2) Pages: 60-65

    • NAID

      40020719375

    • Related Report
      2015 Annual Research Report
    • Peer Reviewed
  • [Journal Article] 来通院中の壮年期関節リウマチ患者における療養生活とQOL-生物学的製剤療法との関連性の検討2014

    • Author(s)
      樋野恵子・青木きよ子・高谷真由美
    • Journal Title

      医療看護研究

      Volume: 11(1) Pages: 17-26

    • Related Report
      2014 Research-status Report
    • Peer Reviewed / Open Access / Acknowledgement Compliant
  • [Presentation] Internal structure of patient self-management support by autoimmune disorder/rheumatic disease nurse specialists2016

    • Author(s)
      Kiyoko Aoki, Masako Nagase, Kumiko Uzawa, Keiko Hino, Mayumi Takaya
    • Organizer
      19th EAFONS
    • Place of Presentation
      Chiba
    • Year and Date
      2016-03-14
    • Related Report
      2015 Annual Research Report
    • Int'l Joint Research
  • [Presentation] Nurses’ awareness of collaboration with patients with systemic lupus erythematosus for their self-management of symptom2016

    • Author(s)
      Kumiko Uzawa, Kiyoko Aoki, Masako Nagase, Asami Shimonishi
    • Organizer
      19th EAFONS
    • Place of Presentation
      Chiba
    • Year and Date
      2016-03-14
    • Related Report
      2015 Annual Research Report
    • Int'l Joint Research
  • [Presentation] The nursing intervention supporting the symptom management of the patient with an autoimmune rheumatic disease by nurse specialists,2015

    • Author(s)
      Nagase M, Aoki K, Uzawa K, Takaya M, Hino K,
    • Organizer
      the 3rd International Conference on Prevention and Management of Chronic Condition
    • Place of Presentation
      Bangkok, Thailand
    • Year and Date
      2015-02-25 – 2015-02-27
    • Related Report
      2014 Research-status Report
  • [Presentation] 自己免疫/リウマチ性疾患患者の症状マネジメントを支える看護スペシャリストによる看護介入の分析2014

    • Author(s)
      11.長瀬雅子・青木きよ子・鵜澤久美子・高谷真由美・樋野恵子
    • Organizer
      第34回日本看護科学学会学術集会
    • Place of Presentation
      名古屋
    • Year and Date
      2014-11-29 – 2014-11-30
    • Related Report
      2014 Research-status Report
    • Invited
  • [Presentation] Lives under Medical Treatment of Rheumatoid Arthritis Patients with a Duration of Illness of 10 Years or More and Being Treated with Biological Products in Japan2014

    • Author(s)
      Aoki K, Hino K, Takaya M, Kuwae K
    • Organizer
      17th East Asia Forum of nursing Scholars
    • Place of Presentation
      Manila,Philippines
    • Related Report
      2013 Research-status Report
  • [Presentation] The relationship of the subjective quality of life and biological therapy in middle-aged patients with rheumatoid arthritis2014

    • Author(s)
      Hino K, Aoki K, Takaya M, Kuwae K
    • Organizer
      17th East Asia Forum of nursing Scholars
    • Place of Presentation
      Manila,Philippines
    • Related Report
      2013 Research-status Report
  • [Presentation] Characteristics of the daily lives of rheumatoid arthritis patients under medical treatment with biologics in Japan2013

    • Author(s)
      Kiyoko Aoki, Keiko Hino, Mayumi Takaya, Kumiko Kuwae, Yoshinari Takasaki
    • Organizer
      16th East Asian Forum of Nursing Scholars (EAFONS)
    • Place of Presentation
      Bangkok, Thailand
    • Related Report
      2012 Research-status Report
  • [Presentation] 関節リウマチ患者における生物学的製剤使用による療養生活の変化2012

    • Author(s)
      青木きよ子・樋野恵子・高谷真由美・桑江久美子
    • Organizer
      第32回日本看護科学学会学術集会
    • Place of Presentation
      東京
    • Related Report
      2012 Research-status Report
  • [Presentation] 協働的パートナーシップを活用した看護介入の効果に関する研究の動向

    • Author(s)
      桑江久美子
    • Organizer
      医療看護研究
    • Place of Presentation
      千葉県、浦安市
    • Related Report
      2013 Research-status Report
  • [Book] メヂカルフレンド社2014

    • Author(s)
      樋野恵子
    • Total Pages
      210
    • Publisher
      看護がみえる疾患ファイルvol.2 関節リウマチ
    • Related Report
      2014 Research-status Report
  • [Book] 疾患別看護過程の展開 第4版 「自己免疫疾患患者の看護過程 全身性エリテマトーデス」2013

    • Author(s)
      青木きよ子
    • Total Pages
      998
    • Publisher
      学研メディカル秀潤社
    • Related Report
      2013 Research-status Report
  • [Book] 疾患別看護過程の展開 第4版 「自己免疫疾患患者の看護過程 関節リウマチ」2013

    • Author(s)
      樋野恵子
    • Total Pages
      998
    • Publisher
      学研メディカル秀潤社
    • Related Report
      2013 Research-status Report
  • [Book] 疾患別看護過程の展開 第4版 「自己免疫疾患患者の看護過程 多発性筋炎・皮膚筋炎」2013

    • Author(s)
      桑江久美子
    • Total Pages
      998
    • Publisher
      学研メディカル秀潤社
    • Related Report
      2013 Research-status Report
  • [Book] 経過が見える疾患別病態関連マップ 全身性エリテマトーデス2013

    • Author(s)
      青木きよ子
    • Total Pages
      181
    • Publisher
      学研メディカル秀潤社
    • Related Report
      2013 Research-status Report
  • [Book] 経過が見える疾患別病態関連マップ 関節リウマチ2013

    • Author(s)
      樋野恵子
    • Total Pages
      181
    • Publisher
      学研メディカル秀潤社
    • Related Report
      2013 Research-status Report
  • [Book] 経過が見える疾患別病態関連マップ 多発性筋炎・皮膚筋炎2013

    • Author(s)
      桑江久美子
    • Total Pages
      181
    • Publisher
      学研メディカル秀潤社
    • Related Report
      2013 Research-status Report

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Published: 2013-05-31   Modified: 2019-07-29  

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