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Development of a support program based on QOL assessment of families of young adult/adult patients with pervasive developmental disorder

Research Project

Project/Area Number 24593509
Research Category

Grant-in-Aid for Scientific Research (C)

Allocation TypeMulti-year Fund
Section一般
Research Field Community health/Gerontological nurisng
Research InstitutionUniversity of Hyogo

Principal Investigator

KAWADA Miwa  兵庫県立大学, 看護学部, 講師 (70364049)

Co-Investigator(Kenkyū-buntansha) NOJIMA Sayumi  高知県立大学, 看護学部, 教授 (00172792)
KATAYAMA Takafumi  兵庫県立大学, 看護学部, 教授 (60268068)
OKADA Takashi  名古屋大学, 医学部附属病院, 准教授 (80335249)
Project Period (FY) 2012-04-01 – 2015-03-31
Project Status Completed (Fiscal Year 2014)
Budget Amount *help
¥5,330,000 (Direct Cost: ¥4,100,000、Indirect Cost: ¥1,230,000)
Fiscal Year 2014: ¥1,560,000 (Direct Cost: ¥1,200,000、Indirect Cost: ¥360,000)
Fiscal Year 2013: ¥1,820,000 (Direct Cost: ¥1,400,000、Indirect Cost: ¥420,000)
Fiscal Year 2012: ¥1,950,000 (Direct Cost: ¥1,500,000、Indirect Cost: ¥450,000)
Keywords成人期自閉症 / ひきこもり / 精神看護 / 家族支援 / プログラム / 家族看護 / 発達障害 / 家族 / 成人 / 青年 / 自閉症
Outline of Final Research Achievements

With the aim to develop a support program for families of patients with high-functioning pervasive developmental disorder (PDD) aged 18 years or older, we conducted an interview survey with 28 supporters and 16 family members of such patients. The survey identified the following five types of support needed by families: 1) specific support that leads to proper understanding and care of PDD patients ,2) enhancing the use of support resources and continued support, 3) providing opportunities for families of persons with PDD aged 18 years or older to communicate with each others,, 4) support to enhance the independence and self-controlling capability of families through the development of awareness, 5) support to help making a realistic prospect for the future. Based on the results, we developed a program intended for use in a small population. The program consists of 10 sessions each of which consists of DVD viewing and talk among participants.

Report

(4 results)
  • 2014 Annual Research Report   Final Research Report ( PDF )
  • 2013 Research-status Report
  • 2012 Research-status Report
  • Research Products

    (5 results)

All 2014 2013 2012

All Journal Article (3 results) (of which Peer Reviewed: 1 results) Presentation (1 results) Book (1 results)

  • [Journal Article] 青年・成人期の広汎性発達障害をもつ人とその家族への訪問看護の役割の検討2013

    • Author(s)
      川田美和
    • Journal Title

      兵庫県立大学看護学部・地域ケア. 開発研究所紀要

      Volume: 20 Pages: 55-67

    • NAID

      40019625548

    • Related Report
      2012 Research-status Report
    • Peer Reviewed
  • [Journal Article] 精神病症状を伴う思春期・成人期の自閉症スペクトラム障害の診断と介入2012

    • Author(s)
      岡田俊
    • Journal Title

      臨床精神薬理

      Volume: 15 Pages: 345-355

    • Related Report
      2012 Research-status Report
  • [Journal Article] 成人期ADHDの臨床像2012

    • Author(s)
      岡田俊
    • Journal Title

      臨床精神薬理

      Volume: 15 Pages: 1811-1820

    • Related Report
      2012 Research-status Report
  • [Presentation] 青年・成人期の高機能広汎性発達障害者の家族支援ニーズ‐集団支援プログラム開発に向けたインタビュー調査に基づく分析‐2014

    • Author(s)
      川田美和
    • Organizer
      日本発達障害学会第49回研究大会
    • Place of Presentation
      宮城教育大学(宮城県仙台市)
    • Year and Date
      2014-08-23 – 2014-08-24
    • Related Report
      2014 Annual Research Report
  • [Book] 発達障害のある子と家族のためのサポートBOOK 小学生編2012

    • Author(s)
      岡田俊
    • Total Pages
      191
    • Publisher
      ナツメ社
    • Related Report
      2012 Research-status Report

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Published: 2013-05-31   Modified: 2019-07-29  

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