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A study on research governance for multi-institutional joint longitudinal research

Research Project

Project/Area Number 24659318
Research Category

Grant-in-Aid for Challenging Exploratory Research

Allocation TypeSingle-year Grants
Research Field Public health/Health science
Research InstitutionUniversity of Yamanashi

Principal Investigator

YAMAGATA Zentaro  山梨大学, 医学工学総合研究部, 教授 (10210337)

Project Period (FY) 2012-04-01 – 2014-03-31
Project Status Completed (Fiscal Year 2013)
Budget Amount *help
¥3,770,000 (Direct Cost: ¥2,900,000、Indirect Cost: ¥870,000)
Fiscal Year 2013: ¥2,210,000 (Direct Cost: ¥1,700,000、Indirect Cost: ¥510,000)
Fiscal Year 2012: ¥1,560,000 (Direct Cost: ¥1,200,000、Indirect Cost: ¥360,000)
Keywords研究ガバナンス / 多施設共同研究 / 倫理 / 出生コホート研究 / 研究組織 / 疫学研究 / 多施設共同 / 研究の倫理
Research Abstract

Research governance has three essential points: compliance, principles, and standards of good practice. Principles include clear aims, research organization, and decision-making processes. Standard operating procedures (SOPs), education for research coordinators, and good communication among researchers are needed for good practices. Most multi-institutional joint longitudinal researchers in Japan follow these guidelines in their individual ways. They also establish committees to determine ethical, legal, and social issues, although institutional review boards and evaluation committees have been established independently. These researchers conduct workshops for research coordinators to understand SOPs well and to avoid risks. Outreach is also conducted as an important act to gain public trust.

Report

(3 results)
  • 2013 Annual Research Report   Final Research Report ( PDF )
  • 2012 Research-status Report
  • Research Products

    (2 results)

All 2014 2013

All Presentation (2 results)

  • [Presentation] Attitude toward genetic testing of children for common disease risk in Japan2014

    • Author(s)
      Zentaro Yamagata et al.
    • Organizer
      European Society of Human Genetics conference 2014
    • Place of Presentation
      Milano
    • Year and Date
      2014-06-01
    • Related Report
      2013 Final Research Report
  • [Presentation] Attitudes towards genetic testing in Japan National surveys in 2005, 2008, 20132013

    • Author(s)
      Zentaro Yamagata et.al.
    • Organizer
      European Society of Human Genetics conference 2013
    • Place of Presentation
      Paris
    • Year and Date
      2013-06-09
    • Related Report
      2013 Final Research Report

URL: 

Published: 2013-05-31   Modified: 2019-07-29  

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