Support the family with childhood cancer, especially regarding provision and sharing of information with siblings

• Project/Area Number: 24792488
• Research Category: Grant-in-Aid for Young Scientists (B)
• Allocation Type: Multi-year Fund
• Research Field: Lifelong developmental nursing
• Research Institution: The University of Tokyo
• Principal Investigator: SATO Iori 東京大学, 医学(系)研究科(研究院), 助教 (20622252)
• Project Period (FY): 2012-04-01 – 2015-03-31
• Project Status: Completed (Fiscal Year 2014)
• Budget Amount: ¥4,160,000 (Direct Cost: ¥3,200,000、Indirect Cost: ¥960,000); Fiscal Year 2014: ¥1,040,000 (Direct Cost: ¥800,000、Indirect Cost: ¥240,000); Fiscal Year 2013: ¥1,170,000 (Direct Cost: ¥900,000、Indirect Cost: ¥270,000); Fiscal Year 2012: ¥1,950,000 (Direct Cost: ¥1,500,000、Indirect Cost: ¥450,000)
• Keywords: QOL / 小児がん / 小児看護 / 家族看護 / きょうだい / 情報提供 / 情報共有 / 説明 / 家族看護学 / 小児看護学 / がん看護学

Outline of Final Research Achievements

This study aims to support the family with childhood cancer, especially regarding provision and sharing of information with siblings. We clarified what content is shared for siblings of children hospitalized due to childhood cancer and what the sharing of such contents can do for them. We developed the Japanese version of the Pediatric Quality of Life Inventory (PedsQL) Generic Core Scales young adult and infant versions. We clarified the disclosure of information to children regarding their disease affected their trust of medical and health care professionals.

Research Products

• [Journal Article] Parent’s Perceived Provision of Information Regarding Diagnosis to Children with Brain Tumors (2015)
  • Author(s): Sato I, Higuchi A, Yanagisawa T, Mukasa A, Ida K, Sawamura Y, Sugiyama K, Saito N, Kumabe T, Terasaki M, Nishikawa R, Ishida Y, Kamibeppu K
  • Journal Title: Open Journal of Nursing Volume: 印刷中
  • Peer Reviewed / Open Access
• [Journal Article] Health-related quality of life in young adults in education, employment, or training: development of the Japanese version of Pediatric Quality of Life Inventory (PedsQL) Generic Core Scales Young Adult Version (2014)
  • Author(s): Kaneko M, Sato I, Soejima T, Kamibeppu K
  • Journal Title: Quality of Life Research Volume: Epub ahead of print Issue: 7 Pages: 1-11
  • DOI: 10.1007/s11136-014-0644-5
  • Peer Reviewed
• [Presentation] 脳腫瘍をもつ子どもに対する病気についての説明の程度 (2014)
  • Author(s): 佐藤伊織, 樋口明子, 柳澤隆昭, 武笠晃丈, 井田孔明, 澤村豊, 杉山一彦, 斉藤延人, 隈部俊宏, 寺崎瑞彦, 西川亮, 石田也寸志, 上別府圭子
  • Organizer: 第32回日本脳腫瘍学会学術集会
  • Place of Presentation: 千葉県浦安市
  • Year and Date: 2014-11-30 – 2014-12-02
• [Presentation] Parents’ perceptions and judgement formation process on their infant’s quality of life (2014)
  • Author(s): Ikeda M, Sato I, Fukuzawa R, Soejima T, Setoyama A, Kobayashi K, Kamibeppu K
  • Organizer: 35th International Association for Human Caring Conference
  • Place of Presentation: Kyoto, Japan
  • Year and Date: 2014-05-24 – 2014-05-28