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Research of explanation about their difficulties for siblings of the person with chromosomal aberration.

Research Project

Project/Area Number 24792501
Research Category

Grant-in-Aid for Young Scientists (B)

Allocation TypeMulti-year Fund
Research Field Lifelong developmental nursing
Research InstitutionNagasaki University

Principal Investigator

MORIFUJI Kanako  長崎大学, 医歯薬学総合研究科(保健学科), 准教授 (70404209)

Co-Investigator(Kenkyū-buntansha) MIYAHARA Harumi  長崎大学, 医歯薬学総合研究科(保健学科), 教授 (00209933)
SASAKI Noriko  長崎大学, 医歯薬学総合研究科(保健学科), 助教 (90315268)
Project Period (FY) 2012-04-01 – 2016-03-31
Project Status Completed (Fiscal Year 2015)
Budget Amount *help
¥2,210,000 (Direct Cost: ¥1,700,000、Indirect Cost: ¥510,000)
Fiscal Year 2015: ¥520,000 (Direct Cost: ¥400,000、Indirect Cost: ¥120,000)
Fiscal Year 2014: ¥650,000 (Direct Cost: ¥500,000、Indirect Cost: ¥150,000)
Fiscal Year 2013: ¥390,000 (Direct Cost: ¥300,000、Indirect Cost: ¥90,000)
Fiscal Year 2012: ¥650,000 (Direct Cost: ¥500,000、Indirect Cost: ¥150,000)
Keywordsきょうだいケア / 染色体異常児 / ダウン症 / 障害説明
Outline of Final Research Achievements

This study’s aim is to consider the support for siblings of the person with chromosomal aberration, in the main of Down syndrome. We had an interview with undergraduates of siblings, and asked about their experience and emotion in their childhood. They said that they felt sad and wanted to be recognized by their parents in their childhood. We have to notice their bitter experience as related to be the sibling of the person with chromosomal aberration. We must also add the information about the person with chromosomal aberration for siblings according to their growth. An important message to the siblings is, when they are in primary school in an early grade, their parents should stay close to them. And they are in junior high school, their parents have to convey their respect to them.

Report

(5 results)
  • 2015 Annual Research Report   Final Research Report ( PDF )
  • 2014 Research-status Report
  • 2013 Research-status Report
  • 2012 Research-status Report
  • Research Products

    (7 results)

All 2015 2014 2013

All Journal Article (2 results) (of which Peer Reviewed: 2 results) Presentation (4 results) Book (1 results)

  • [Journal Article] The relationship between physical signs of aging and social functions with Down syndrome in Japan2014

    • Author(s)
      Morifuji K, Matsumoto T, Kondoh T, Nagae M, Sasaki N, Miyahara H, Honda S, Tanaka G,Moriuchi H, Nakane H
    • Journal Title

      ACTA MEDICA NAGASAKIENSIA

      Volume: 58 Pages: 113-118

    • Related Report
      2013 Research-status Report
    • Peer Reviewed
  • [Journal Article] 染色体異常児家族が告知に求めるもの -構造構成的質的研究法によるアンケート調査自由記載の分析―2013

    • Author(s)
      森藤香奈子、佐々木規子、土居美智子、本村秀樹、森内浩幸、近藤達郎、松本正
    • Journal Title

      日本周産期・新生児医学会雑誌

      Volume: 49(1) Pages: 227-232

    • Related Report
      2013 Research-status Report
    • Peer Reviewed
  • [Presentation] ダウン症児・者の家族が医療に期待するもの2015

    • Author(s)
      森藤香奈子、佐々木規子、宮原春美、永野明子、渡名喜海香子、松本正、近藤達郎
    • Organizer
      日本遺伝看護学会第14回学術大会
    • Place of Presentation
      熊本市医師会館(熊本県・熊本市)
    • Year and Date
      2015-10-10
    • Related Report
      2015 Annual Research Report
  • [Presentation] 障がい児・者のきょうだい支援を考える -グループインタビューの分析から-2015

    • Author(s)
      高尾真未、有川優希、森藤香奈子
    • Organizer
      第62回日本小児保健協会学術集会
    • Place of Presentation
      ブリックホール(長崎県・長崎市)
    • Year and Date
      2015-06-18
    • Related Report
      2015 Annual Research Report
  • [Presentation] ダウン症者の身体的老化徴候と社会適応能力の関連2014

    • Author(s)
      森藤香奈子、松本正、近藤達郎、本田純久、森内浩幸、中根秀之、
    • Organizer
      日本人類遺伝学会第56回大会
    • Place of Presentation
      タワーホール船堀(東京都江戸川区)
    • Year and Date
      2014-11-20 – 2014-11-22
    • Related Report
      2014 Research-status Report
  • [Presentation] 「子ども達に向けた遺伝教育を考える研究会」の実施および評価2013

    • Author(s)
      森藤香奈子、佐々木規子、森屋宏美、櫻井晃洋、松本正、宮原春美
    • Organizer
      日本遺伝看護学会第12回学術大会
    • Place of Presentation
      岩手県盛岡市いわて県民情報交流センター
    • Related Report
      2013 Research-status Report
  • [Book] ダウン症ハンドブック 改訂版2013

    • Author(s)
      菅野敦 編
    • Publisher
      日本文化科学社
    • Related Report
      2012 Research-status Report

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Published: 2013-05-31   Modified: 2019-07-29  

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