| Project/Area Number |
24792572
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| Research Category |
Grant-in-Aid for Young Scientists (B)
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| Allocation Type | Multi-year Fund |
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| Research Field |
Community health/Gerontological nurisng
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| Research Institution | Ishikawa Prefectural Nursing University |
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Principal Investigator |
SONE SHIHO 石川県立看護大学, 看護学部, 助教 (30381700)
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| Project Period (FY) |
2012-04-01 – 2016-03-31
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| Project Status |
Completed (Fiscal Year 2015)
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| Budget Amount *help |
¥2,340,000 (Direct Cost: ¥1,800,000、Indirect Cost: ¥540,000)
Fiscal Year 2014: ¥650,000 (Direct Cost: ¥500,000、Indirect Cost: ¥150,000)
Fiscal Year 2013: ¥780,000 (Direct Cost: ¥600,000、Indirect Cost: ¥180,000)
Fiscal Year 2012: ¥910,000 (Direct Cost: ¥700,000、Indirect Cost: ¥210,000)
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| Keywords | 難病患者在宅療養支援 / 訪問看護師 / ケアマネジャー / 保健師 / 難病患者 / 在宅療養支援 / 難病在宅療養支援 / 難病患者在宅療養 / 難病 |
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| Outline of Final Research Achievements |
This study aims to investigate what sort of anxious feelings and difficulties in home care patients with intractable neurological diseases receiving home care and their care providers have experienced. This study also aims to clarify the current situation of, and demands for, home-care service delivery, while discussing the support systems provided by the government or public health nurses.
Home-care nurses and care managers have experienced concerns and challenges, such as making an arrangement of the patients’ daily life based on a relationship of mutual trust with patients and their families, with consideration for feelings of them; providing the life support services to make such arrangement; and applying the home care support systems. Patients and their families have experienced instability of medical conditions, as well as financial and care-related burdens.
In the future, organizing workshops and networking events would be needed to support service providers and patients.
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