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Action research aiming at the development of the home care to make up for the heterotopic ossification of the FOP patient

Research Project

Project/Area Number 25293454
Research Category

Grant-in-Aid for Scientific Research (B)

Allocation TypePartial Multi-year Fund
Section一般
Research Field Lifelong developmental nursing
Research InstitutionShiga University of Medical Science

Principal Investigator

Kuwata Hiromi  滋賀医科大学, 医学部, 教授 (70324316)

Co-Investigator(Kenkyū-buntansha) 足立 みゆき  滋賀医科大学, 医学部, 教授 (20263494)
岡山 久代  滋賀医科大学, 医学部, 准教授 (90335050)
白坂 真紀  滋賀医科大学, 医学部, 助教 (40378443)
曽我 浩美  滋賀医科大学, 医学部, 助教 (40614045)
坂本 裕  岐阜大学, 教育学研究科, 准教授 (20310039)
Co-Investigator(Renkei-kenkyūsha) KUWATA KAZUO  岐阜大学, 大学院連合創薬医療情報研究科, シニア教授 (00170142)
Project Period (FY) 2013-04-01 – 2017-03-31
Project Status Completed (Fiscal Year 2016)
Budget Amount *help
¥6,240,000 (Direct Cost: ¥4,800,000、Indirect Cost: ¥1,440,000)
Fiscal Year 2015: ¥1,560,000 (Direct Cost: ¥1,200,000、Indirect Cost: ¥360,000)
Fiscal Year 2014: ¥910,000 (Direct Cost: ¥700,000、Indirect Cost: ¥210,000)
Fiscal Year 2013: ¥3,770,000 (Direct Cost: ¥2,900,000、Indirect Cost: ¥870,000)
Keywords家族看護学 / 希少難病 / アクションリサーチ / FOP / FOP患者 / 異所性骨化 / 看護技術 / 動作分析 / 安全の確保 / FOP患者 / 運動障害 / 看護技術の工夫 / FOP
Outline of Final Research Achievements

The purpose of this study is to make a family with FOP (fibrodysplasia ossificans progressiva) patients learn the ‘care technology at home’ that can support physical hardening by the heterotopic ossification of the FOP patient and to support the independence of a patient. Researchers devise the self-help instrument using the materials of belongings and apply the nursing technique to FOP patient in the specific situation using the technique of the action research.
In the movement analysis, we found that in FOP patients, cervical vertebrae is fixed and never bend, so it is hard to bend forward also the head. Thus several-fold power than usual is necessary for assistance for letting the head bend forward. Therefore we consider that it is important to devise the method to maintain the posture and the comfort with physical transformation thereby preventing the accident and the infection in case of defection, taking a meal, or checking a step.

Report

(5 results)
  • 2016 Annual Research Report   Final Research Report ( PDF )
  • 2015 Research-status Report
  • 2014 Research-status Report
  • 2013 Research-status Report
  • Research Products

    (14 results)

All 2015 2014 2013 Other

All Journal Article (4 results) (of which Peer Reviewed: 4 results) Presentation (5 results) Book (1 results) Remarks (4 results)

  • [Journal Article] NICUを退院した子どもとその家族への包括的支援に関する研究2013

    • Author(s)
      白坂真紀、寺澤明子、桑田弘美
    • Journal Title

      第43回日本看護学会論文集-小児看護-

      Volume: 43 Pages: 86-89

    • Related Report
      2013 Research-status Report
    • Peer Reviewed
  • [Journal Article] NICUを退院した双子を養育する父親の育児の実際2013

    • Author(s)
      白坂真紀、桑田弘美
    • Journal Title

      日本小児看護学会誌

      Volume: 22(1) Pages: 116-121

    • NAID

      110009603488

    • Related Report
      2013 Research-status Report
    • Peer Reviewed
  • [Journal Article] 小児がん患児の退院後の日常生活管理に対する母親の迷いとケアの実際2013

    • Author(s)
      山地亜希、桑田弘美
    • Journal Title

      大阪医科大学看護研究雑誌

      Volume: 3 Pages: 78-89

    • NAID

      40019710470

    • Related Report
      2013 Research-status Report
    • Peer Reviewed
  • [Journal Article] 「希少難病をもつ子どもと家族の看護」を受講した看護学生の学び2013

    • Author(s)
      白坂真紀、桑田弘美
    • Journal Title

      滋賀医科大学看護学ジャーナル

      Volume: 11(1) Pages: 28-31

    • Related Report
      2013 Research-status Report
    • Peer Reviewed
  • [Presentation] NICUに長期入院傾向がある子どもの退院調整と在宅医療支援体制のプロモート2015

    • Author(s)
      白坂真紀、桑田弘美
    • Organizer
      日本小児看護学会
    • Place of Presentation
      千葉県
    • Year and Date
      2015-07-25
    • Related Report
      2015 Research-status Report
  • [Presentation] FOPのある患者の異所性骨化による運動障害の特徴2014

    • Author(s)
      桑田弘美、白坂真紀、曽我浩美
    • Organizer
      第61回日本小児保健協会学術集会
    • Place of Presentation
      福島県
    • Year and Date
      2014-06-20 – 2014-06-22
    • Related Report
      2014 Research-status Report
  • [Presentation] FOPのある患者の異所性骨化による運動障害の特徴2014

    • Author(s)
      桑田弘美、白坂真紀
    • Organizer
      第61回日本小児保健協会学術集会
    • Place of Presentation
      福島市
    • Related Report
      2013 Research-status Report
  • [Presentation] Families' experiences of the heterotopic ossification occurred in children with FOP2013

    • Author(s)
      Hiromi Kuwata, Hiroyoshi Soga, Maki Shirasaka, et al
    • Organizer
      25th ICN Conference
    • Place of Presentation
      Australia
    • Related Report
      2013 Research-status Report
  • [Presentation] The school life of child with Fibrodysplasia ossificans progressiva2013

    • Author(s)
      Hiromi Kuwata, Maki Shirasaka, Aki Yamaji, et al
    • Organizer
      International congress of Pediatrics 2013
    • Place of Presentation
      Australia
    • Related Report
      2013 Research-status Report
  • [Book] 看護系標準教科書 小児看護学「先天的な問題をもつ子どもと家族」2014

    • Author(s)
      市江和子編著・桑田弘美分担執筆
    • Total Pages
      15
    • Publisher
      オーム社
    • Related Report
      2013 Research-status Report
  • [Remarks] FOP患児の包括的生活支援

    • URL

      http://www.shiga-med.ac.jp/~hqkodomo/fop.html

    • Related Report
      2016 Annual Research Report
  • [Remarks] FOP患児の包括的生活支援

    • URL

      http://www.shiga-med.ac.jp/~hqkodomo/fop.html

    • Related Report
      2015 Research-status Report
  • [Remarks] 滋賀医科大学医学部臨床看護学講座(小児)HP 研究成果「FOP患者の包括的生活支援」

    • URL

      http://www.shiga-med.ac.jp/~hqkodomo/fop.html

    • Related Report
      2014 Research-status Report
  • [Remarks] 滋賀医科大学医学部臨床看護学講座小児看護学 研究成果【FOP患児の包括的生活支援】

    • URL

      http://www.shiga-med.ac.jp/~hqkodomo/fop.html

    • Related Report
      2013 Research-status Report

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Published: 2013-05-21   Modified: 2019-07-29  

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