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An international comparative field survey of health care, education, and employment support for adolescents and young adults with cancer and cancer survivorts

Research Project

Project/Area Number 25305041
Research Category

Grant-in-Aid for Scientific Research (B)

Allocation TypePartial Multi-year Fund
Section海外学術
Research Field Clinical nursing
Research InstitutionKonan Women's University

Principal Investigator

Maru Mitsue  甲南女子大学, 看護リハビリテーション学部, 教授 (50241980)

Co-Investigator(Kenkyū-buntansha) Shinoki Eri  東京医療保健大学, 医療保健学部, 教授 (00275497)
Ishizaki Yuko  関西医科大学, 医学部, 准教授 (20411556)
Shiwaku Hitoshi  東北大学, 医学(系)研究科(研究院), 教授 (50250808)
Takeda Testuro  和歌山大学, 教育学部, 教授 (50280574)
Kashimada Kenichi  東京医科歯科大学, 医学部附属病院, 講師 (80451938)
Project Period (FY) 2013-04-01 – 2016-03-31
Project Status Completed (Fiscal Year 2015)
Budget Amount *help
¥17,810,000 (Direct Cost: ¥13,700,000、Indirect Cost: ¥4,110,000)
Fiscal Year 2015: ¥4,940,000 (Direct Cost: ¥3,800,000、Indirect Cost: ¥1,140,000)
Fiscal Year 2014: ¥6,240,000 (Direct Cost: ¥4,800,000、Indirect Cost: ¥1,440,000)
Fiscal Year 2013: ¥6,630,000 (Direct Cost: ¥5,100,000、Indirect Cost: ¥1,530,000)
Keywords思春期がん / 若年成人がん / イタリア / オーストラリア / 英国 / 心理社会支援 / 教育就労支援 / 看護 / 思春期 / 若年成人 / がん / サバイバー / 医療 / 教育 / 就労 / がんサバイバー / トータルケア / 米国
Outline of Final Research Achievements

Through field studies including interviews with professionals in UK, Italy, USA & Australia, the characteristics of total care program for adolescents and young adults (AYA) with cancer and cancer survivors were identified. Two main purposes of them were improving survival rate and quality of life. Each country made great efforts to build systems and infrastructure of multi-institutional clinical trials such as cancer registry specifically for AYA, referral system to specialized institution for detecting cancer and starting treatment in early stages, as well as for increasing access to new trials. Support programs has philosophy of respecting to patients' rights dignity for developing seamless and long-term support programs by using multidisciplinary team approach. Three care delivery models were identified in 4 countries. Fertility, sexuality, and developing models of care delivery will be continuous issues in each country.

Report

(4 results)
  • 2015 Annual Research Report   Final Research Report ( PDF )
  • 2014 Annual Research Report
  • 2013 Annual Research Report
  • Research Products

    (39 results)

All 2016 2015 2014 2013 Other

All Journal Article (18 results) (of which Acknowledgement Compliant: 3 results) Presentation (18 results) (of which Int'l Joint Research: 2 results,  Invited: 9 results) Remarks (2 results) Funded Workshop (1 results)

  • [Journal Article] 小児がんの児童生徒の教育的対応と教員の困難感に関する研究:小児がん拠点病院内教育機関を対象に2016

    • Author(s)
      武田鉄郎 張雪 武田陽子
    • Journal Title

      和歌山大学教育学部紀要・教育科学

      Volume: 66 Pages: 27-34

    • NAID

      120005765518

    • Related Report
      2015 Annual Research Report
  • [Journal Article] 小児がん、AYA世代がん患者の教育的対応の現状:オーストラリア、イギリス、米国の病院視察から2016

    • Author(s)
      武田鉄郎 篠木絵理 岡本光代
    • Journal Title

      和歌山大学教育学部紀要・教育科学

      Volume: 66 Pages: 17-25

    • NAID

      120005765519

    • Related Report
      2015 Annual Research Report
    • Acknowledgement Compliant
  • [Journal Article] AYA世代、小児がんに対する対策 思春期・若年成人期がんの概要と対策 諸外国の動向と日本の課題2015

    • Author(s)
      丸光惠
    • Journal Title

      腫瘍内科

      Volume: 16 Pages: 433-440

    • Related Report
      2015 Annual Research Report
    • Acknowledgement Compliant
  • [Journal Article] 小児がん経験者が大人に成る事 小児血液がん学会・小児がん看護学会合同シンポジウム(共同開催 がんの子どもを守る会公開シンポジウム)から得た看護師への提言2015

    • Author(s)
      丸 光惠
    • Journal Title

      小児がん看護

      Volume: 10 Pages: 30-39

    • Related Report
      2015 Annual Research Report
  • [Journal Article] 思春期・若年成人がん患者への支援 諸外国の現状と課題2015

    • Author(s)
      丸 光惠
    • Journal Title

      小児看護

      Volume: 38 Pages: 1352-1358

    • Related Report
      2015 Annual Research Report
    • Acknowledgement Compliant
  • [Journal Article] 思春期の発達的特徴と心身医学的課題2015

    • Author(s)
      石崎優子
    • Journal Title

      小児看護

      Volume: 38 Pages: 1360-1362

    • Related Report
      2015 Annual Research Report
  • [Journal Article] 思春期患者のメンタルヘルスの問題と看護2015

    • Author(s)
      塩飽仁
    • Journal Title

      小児看護

      Volume: 38 Pages: 1400-1405

    • Related Report
      2015 Annual Research Report
  • [Journal Article] 家族性腫瘍患者の看護2015

    • Author(s)
      篠木絵理
    • Journal Title

      小児看護

      Volume: 38 Pages: 1419-1424

    • Related Report
      2015 Annual Research Report
  • [Journal Article] 思春期にあるがん患者・サバイバー(CCS)の医学的問題2015

    • Author(s)
      鹿島田健一
    • Journal Title

      小児看護

      Volume: 38 Pages: 1373-1378

    • Related Report
      2015 Annual Research Report
  • [Journal Article] AYA世代のがん患者の教育・就労支援の現状と課題2015

    • Author(s)
      武田鉄郎
    • Journal Title

      小児看護

      Volume: 38 Pages: 1368-1372

    • Related Report
      2015 Annual Research Report
  • [Journal Article] 小児慢性疾患患者の移行期支援2014

    • Author(s)
      石崎優子
    • Journal Title

      子どもの心とからだ

      Volume: 23(3) Pages: 367-368

    • Related Report
      2014 Annual Research Report
  • [Journal Article] 障害のある子どもへの差別や偏見への対応2014

    • Author(s)
      武田鉄郎
    • Journal Title

      教育と医学

      Volume: 736 Pages: 42-50

    • Related Report
      2014 Annual Research Report
  • [Journal Article] Andrea Ferrari先生ご講演「Develop an Italian AYAO Program Develop a Japanese AYAO Program」解説2014

    • Author(s)
      丸光惠
    • Journal Title

      小児がん看護

      Volume: 9 Pages: 27-29

    • Related Report
      2014 Annual Research Report
  • [Journal Article] Develop an Italian AYAO Program Develop a Japanese AYAO Program2014

    • Author(s)
      Andrea Ferrari (丸光惠翻訳)
    • Journal Title

      小児がん看護

      Volume: 9 Pages: 7-26

    • Related Report
      2014 Annual Research Report
  • [Journal Article] 思春期・若年成人期にあるがん患者と小児がん経験者へのケアの視点2013

    • Author(s)
      丸 光惠
    • Journal Title

      小児看護

      Volume: 36 Pages: 985-996

    • Related Report
      2013 Annual Research Report
  • [Journal Article] 小児医療から成人医療への移行に関する国内外の取組 アメリカの動向を中心に2013

    • Author(s)
      丸光惠 飯島佳織
    • Journal Title

      診断と治療

      Volume: 101 Pages: 1793-1802

    • Related Report
      2013 Annual Research Report
  • [Journal Article] 「病気」の子どもの特別支援教育2013

    • Author(s)
      武田鉄郎
    • Journal Title

      小児看護

      Volume: 36(8) Pages: 978-984

    • Related Report
      2013 Annual Research Report
  • [Journal Article] 小児科から内科へのシームレスな診療を目指して 小児科側からの問題提起 現状と対策2013

    • Author(s)
      石崎優子
    • Journal Title

      診断と治療

      Volume: 101(12) Pages: 1775-1778

    • Related Report
      2013 Annual Research Report
  • [Presentation] 思春期・若年成人がん患者の夢と希望:死を見つめる患者へのトータルケア2016

    • Author(s)
      丸光惠
    • Organizer
      第31回京都がん研究会
    • Place of Presentation
      京都
    • Year and Date
      2016-03-18
    • Related Report
      2015 Annual Research Report
    • Invited
  • [Presentation] 小児頭蓋咽頭腫治療後のNAFLDに対する成長ホルモン補充療法2015

    • Author(s)
      辻敦美, 酢谷明人, 宮川雄一, 鹿島田健一
    • Organizer
      第25回臨床内分泌代謝Update in Tokyo
    • Place of Presentation
      東京
    • Year and Date
      2015-11-28
    • Related Report
      2015 Annual Research Report
  • [Presentation] 血液腫瘍患者の造血幹細胞移植の前処置において全身放射線照射は2型糖尿病、高脂血症発症のリスクである2015

    • Author(s)
      中川竜一, 辻敦美, 青木由貴, 中島啓介, 酢谷明人, 宮川雄一, 高澤啓, 富澤大輔, 鹿島田健一, 森尾友宏
    • Organizer
      第6回関東小児糖尿病フォーラム
    • Place of Presentation
      東京
    • Year and Date
      2015-11-19
    • Related Report
      2015 Annual Research Report
  • [Presentation] 当院で施行した非腫瘍性疾患に対する造血幹細胞移植後の内分泌合併症に関する検討2015

    • Author(s)
      酢谷明人, 宮川雄一, 辻敦美, 青木由貴, 高澤啓, 高木正稔, 今井耕輔, 鹿島田健一, 森尾友宏
    • Organizer
      第49回日本小児内分泌学会
    • Place of Presentation
      東京
    • Year and Date
      2015-10-08
    • Related Report
      2015 Annual Research Report
  • [Presentation] The late effects after the hematopoietic stem cells transplantation (HSCT) for patients with non-neoplastic disease.2015

    • Author(s)
      Akihito Sutani, Yuichi Miyakawa, Atsumi Tsuji, Yuki Aoki, Kei Takasawa, Masatoshi Takagi, Kosuke Imai, Kenichi Kashimada, Tomohiro Morio
    • Organizer
      54th Annual Meeting of European Society for Paediatric Endocrinology
    • Place of Presentation
      Barcelona, Spain
    • Year and Date
      2015-10-01
    • Related Report
      2015 Annual Research Report
    • Int'l Joint Research
  • [Presentation] Total-Body Irradiation is a major risk factor for young adult onset diabetes mellitus and hyperlipidemia i childhood cancer survivors after hematopoietic stem cell transplantation2015

    • Author(s)
      Ryuichi Nakagawa, Atsumi Tsuji, Yuki Aoki, Keisuke Nakajima, Akito Sutani, Yuichi Miyakawa, Kei Takazawa, Daisuke Tomizawa, Masatoshi Takagi, Kenichi Kashimada, Tomohiro Morio
    • Organizer
      54th Annual Meeting of European Society for Paediatric Endocrinology
    • Place of Presentation
      Barcelona, Spain
    • Year and Date
      2015-10-01
    • Related Report
      2015 Annual Research Report
    • Int'l Joint Research
  • [Presentation] AYA世代のがん患者・サバイバーへの支援2015

    • Author(s)
      丸 光惠
    • Organizer
      第28回日本サイコオンコロジー学会総会
    • Place of Presentation
      広島
    • Year and Date
      2015-09-18
    • Related Report
      2015 Annual Research Report
    • Invited
  • [Presentation] 成人する小児慢性疾患患者の諸問題 思春期に関わる専門職への提言 移行期医療 小児科医の立場から2015

    • Author(s)
      石崎優子
    • Organizer
      思春期学
    • Place of Presentation
      筑波
    • Year and Date
      2015-08-28
    • Related Report
      2015 Annual Research Report
    • Invited
  • [Presentation] 小児がん患者の移行期支援2015

    • Author(s)
      石崎優子
    • Organizer
      第4回 京滋サイコオンコロジー研究会
    • Place of Presentation
      京都
    • Year and Date
      2015-08-22
    • Related Report
      2015 Annual Research Report
    • Invited
  • [Presentation] 頭蓋咽頭腫術後2例の内分泌異常の比較2015

    • Author(s)
      友田 昂宏, 酢谷 明人, 松原 洋平, 辻 敦美, 野村 莉紗, 宮川 雄一, 鹿島田 健一, 森尾友宏
    • Organizer
      第620回日本小児科学会東京都地方会講話会
    • Place of Presentation
      東京
    • Year and Date
      2015-07-11
    • Related Report
      2015 Annual Research Report
  • [Presentation] 諸外国における思春期・若年成人期のがん患者への支援プログラムの現状と課題2015

    • Author(s)
      丸 光惠
    • Organizer
      第9回近畿小児血液・がん研究会
    • Place of Presentation
      神戸
    • Year and Date
      2015-06-27
    • Related Report
      2015 Annual Research Report
    • Invited
  • [Presentation] 思春期・若年成人期がん患者・サバイバーの諸問題と看護2015

    • Author(s)
      丸 光惠
    • Organizer
      第26回北海道造血幹細胞移植研究会
    • Place of Presentation
      札幌
    • Year and Date
      2015-06-06
    • Related Report
      2015 Annual Research Report
    • Invited
  • [Presentation] 当院で施行した非腫瘍性疾患に対する造血幹細胞移植後の内分泌合併症に関する検討2015

    • Author(s)
      酢谷明人, 宮川雄一, 辻敦美, 高澤啓, 青木由貴, 今井耕輔, 鹿島田健一, 森尾友宏
    • Organizer
      日本内分泌学会
    • Place of Presentation
      東京
    • Year and Date
      2015-04-25
    • Related Report
      2015 Annual Research Report
  • [Presentation] 成人移行期にある小児がん患者の心身医学的問題.2014

    • Author(s)
      石崎優子
    • Organizer
      第56回日本小児血液・がん学会学術集会
    • Place of Presentation
      岡山コンベンションセンター
    • Year and Date
      2014-11-30
    • Related Report
      2014 Annual Research Report
    • Invited
  • [Presentation] Support for women survivors of childhood cancer: A literature review2014

    • Author(s)
      Tomioka, A, Maru, M
    • Organizer
      46th Congress of the International Society of Paediatric Oncolog
    • Place of Presentation
      Tronto
    • Year and Date
      2014-10-22
    • Related Report
      2014 Annual Research Report
  • [Presentation] 移行期医療 小児科医の立場から.2014

    • Author(s)
      石崎優子
    • Organizer
      第33回日本思春期学会総会・学術集会.
    • Place of Presentation
      つくば国際会議場
    • Year and Date
      2014-08-30
    • Related Report
      2014 Annual Research Report
    • Invited
  • [Presentation] Promotion of the Transition to Adult Health care of Adult Patients with Childhood-onset Chronic Diseases among Pediatricians in Japan.2014

    • Author(s)
      Ishizaki, Y.
    • Organizer
      Chronic Paediatric Diseases and Palliative Care” A Transcultural View.
    • Place of Presentation
      Bologna, Italy
    • Year and Date
      2014-08-12
    • Related Report
      2014 Annual Research Report
    • Invited
  • [Presentation] "Promotion of the Transition of Adult Patients with Childhood-onset Chronic Diseases among Pediatricians in Japan Yuko Ishizaki, MD, PhD Department of Pediatrics Kansai Medical University "2014

    • Author(s)
      Ishizaki, Y.
    • Organizer
      PAS ASPR Joint Meeting 2014
    • Place of Presentation
      Vancouver
    • Year and Date
      2014-05-06
    • Related Report
      2014 Annual Research Report
  • [Remarks] 思春期・若年成人がん患者・サバイバーへの医療・教育・就労支援に関する国際比較研究

    • URL

      http://acancercare.com/

    • Related Report
      2015 Annual Research Report
  • [Remarks] 思春期・若年成人がんン患者・サバイバーへの医療・教育・就労支援に関する国際比較研究

    • URL

      http://acancercare.com/

    • Related Report
      2014 Annual Research Report
  • [Funded Workshop] 第1回思春期若年成人がん国際シンポジウム2016

    • Place of Presentation
      大阪市立医療センター
    • Year and Date
      2016-01-09
    • Related Report
      2015 Annual Research Report

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Published: 2013-05-21   Modified: 2017-05-22  

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