Experiences of long-term cancer survivors who have been involved in and managing a self-help group for over 10 years

• Project/Area Number: 25463420
• Research Category: Grant-in-Aid for Scientific Research (C)
• Allocation Type: Multi-year Fund
• Section: 一般
• Research Field: Clinical nursing
• Research Institution: Tokyo Metropolitan University
• Principal Investigator: FUKUI Satomi 首都大学東京, 人間健康科学研究科, 准教授 (20436885)
• Research Collaborator: Minako Morita 日本赤十字看護大学, 教授 (50288065) ; Kimihisa Endo 日本赤十字看護大学, 教授 (40221816) ; Hidemori Okuhara 文京学院大学, 教授 (60288066) ; Mistuko Yoshida 日本赤十字看護大学, 准教授 (80308288)
• Project Period (FY): 2013-04-01 – 2017-03-31
• Project Status: Completed (Fiscal Year 2016)
• Budget Amount: ¥5,070,000 (Direct Cost: ¥3,900,000、Indirect Cost: ¥1,170,000); Fiscal Year 2016: ¥1,690,000 (Direct Cost: ¥1,300,000、Indirect Cost: ¥390,000); Fiscal Year 2015: ¥1,040,000 (Direct Cost: ¥800,000、Indirect Cost: ¥240,000); Fiscal Year 2014: ¥1,170,000 (Direct Cost: ¥900,000、Indirect Cost: ¥270,000); Fiscal Year 2013: ¥1,170,000 (Direct Cost: ¥900,000、Indirect Cost: ¥270,000)
• Keywords: がん看護 / サバイバーシップ / セルフヘルプグループ / サポートグループ / 質的研究 / がん相談支援 / がん患者会 / 長期がんサバイバー / がんサバイバーシップ / ピアサポート / 患者会 / 長期サバイバー / 意味 / 意味づけ / がんサバイバー / 相談支援 / 当事者支援 / 患者サロン / がん患者支援団体

Outline of Final Research Achievements

In Japan, consultations by self-help groups (SHGs) and peers play an important role in supporting cancer survivors. This study aimed to clarify the motives of cancer survivors who have established and been managing an SHG for over 10 years.　We identified 1068 managing SHG organizations via the Internet and references. 461 of them answered a questionnaire about the activities and presence of long-cancer survivors. 18 survivors were interviewed. After a qualitative analysis of the results, 7 themes as follows: a sense of mission as a long-term survivor/witness; a firm belief in the significance of sharing an experience with cancer; pleasure of participants’　increasing autonomy; lifework involving repaying the kindness of others, a purpose of life; continuation of the connection with medical staff; benefits of consultations with professionals and peer support; equal relationship with medical staff; continuity through the development of successors; and suggestions for medical cares.

Research Products

• [Journal Article] Did Japan’s Cancer Control Act drive the spread of psychosocial care nationwide? (2016)
  • Author(s): Fukui, S., Morita, M., Yoshida, M., Okuhara, H., Endo, K.
  • Journal Title: 9th World Research Congress of the European Association for Palliative Care Volume: 9 Issue: 6 Pages: 352-352
  • DOI: 10.1177/0269216316646056
  • Peer Reviewed / Open Access / Int'l Joint Research
• [Journal Article] がん闘病 10 年以上のサバイバーのがん患者支援団体とのかかわりの実態 (2015)
  • Author(s): 福井里美，守田美奈子，吉田みつ子，遠藤公久，奥原秀盛
  • Journal Title: 日本保健科学学会誌 Volume: 18Ｓ Pages: 21-21
  • Peer Reviewed
• [Presentation] 診断後10年以上の乳がん女性サバイバーがピアサポート活動に関わり続ける経験 (2017)
  • Author(s): 福井里美，守田美奈子，吉田みつ子，遠藤公久，奥原秀盛
  • Organizer: 第31回日本がん看護学会学術集会
  • Place of Presentation: 高知県立大学（高知県高知市）
  • Year and Date: 2017-02-04
• [Presentation] がん闘病 10 年以上のサバイバーのがん患者支援団体とのかかわりの実態 (2015)
  • Author(s): 福井里美，守田美奈子，吉田みつ子，遠藤公久，奥原秀盛
  • Organizer: 第25回日本保健科学学会学術集会
  • Place of Presentation: 首都大学東京荒川キャンパス（東京都荒川区）
  • Year and Date: 2015-09-26
• [Presentation] がん患者・家族がピアサポートを受けられる機会の実態 (2014)
  • Author(s): 福井里美，守田美奈子，吉田みつ子，遠藤公久，奥原秀盛
  • Organizer: 第27回日本サイコオンコロジー学会総会
  • Place of Presentation: タワーホール船堀（東京都江戸川区）
  • Year and Date: 2014-10-03 – 2014-10-04
• [Presentation] Trends in gynecologic cancer patient peer support in Japan (2014)
  • Author(s): Noriko Waku, Satomi Fukui, Minako Morita, Mistuko Yoshida, Kimihisa Endo, Hidemori Okuhara, Junko Sakagami
  • Organizer: 18TH International Conference on Cancer Nursing
  • Place of Presentation: Panama city, Panama
  • Year and Date: 2014-09-07 – 2014-09-11
• [Presentation] Changes in peer support opportunities for cancer patients in Japan from 2006 to 2013 (2014)
  • Author(s): Satomi Fukui, Noriko Waku, Minako Morita, Mistuko Yoshida, Kimihisa Endo, Hidemori Okuhara, Junko Sakagami
  • Organizer: 18TH International Conference on Cancer Nursing
  • Place of Presentation: Panama city, Panama
  • Year and Date: 2014-09-07 – 2014-09-11
• [Presentation] 日本におけるがん患者がピアサポートを得る機会の動向 (2014)
  • Author(s): 福井里美，守田美奈子，吉田みつ子，遠藤公久，奥原秀盛，和久紀子，坂上順子
  • Organizer: 第19回日本緩和医療学会学術大会
  • Place of Presentation: 神戸国際展示場（兵庫県神戸市）
  • Year and Date: 2014-06-19 – 2014-06-21
• [Presentation] 日本におけるがん患者がピアサポートを得る機会の動向 (2014)
  • Author(s): 福井里美 守田美奈子 吉田みつ子 遠藤公久 奥原秀盛 和久紀子 坂上順子
  • Organizer: 第19回日本緩和医療学会学術大会
  • Place of Presentation: 神戸国際会議場(兵庫県）
• [Presentation] CHANGES IN PEER SUPPORT OPPORTUNITIES FOR CANCER PATIENTS IN JAPAN FROM 2006 TO 2013 (2014)
  • Author(s): FUKUI,Satomi, MORITA, Minako, YOSHIDA, Mistuko, OKUHARA, Hidemori, ENDO, Kimihisa, WAKU, Noriko, SAKAGAMI, Junko
  • Organizer: 18th International Conference on Cancer Nursing
  • Place of Presentation: Panama City, Rebublic of Panama
• [Presentation] TRENDS IN GYNECOLOGIC CANCER PATIENT PEER SUPPORT IN JAPAN (2014)
  • Author(s): WAKU, Noriko, FUKUI,Satomi, MORITA, Minako, YOSHIDA, Mistuko, OKUHARA, Hidemori, ENDO, Kimihisa, SAKAGAMI, Junko
  • Organizer: 18th International Conference on Cancer Nursing
  • Place of Presentation: Panama City, Rebublic of Panama
• [Remarks] 福井里美研究室 がん患者の心理社会的支援（がんサポート研究会）
  • URL: http://weber.hs.tmu.ac.jp/fukuirab/