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Experiences of long-term cancer survivors who have been involved in and managing a self-help group for over 10 years

Research Project

Project/Area Number 25463420
Research Category

Grant-in-Aid for Scientific Research (C)

Allocation TypeMulti-year Fund
Section一般
Research Field Clinical nursing
Research InstitutionTokyo Metropolitan University

Principal Investigator

FUKUI Satomi  首都大学東京, 人間健康科学研究科, 准教授 (20436885)

Research Collaborator Minako Morita  日本赤十字看護大学, 教授 (50288065)
Kimihisa Endo  日本赤十字看護大学, 教授 (40221816)
Hidemori Okuhara  文京学院大学, 教授 (60288066)
Mistuko Yoshida  日本赤十字看護大学, 准教授 (80308288)
Project Period (FY) 2013-04-01 – 2017-03-31
Project Status Completed (Fiscal Year 2016)
Budget Amount *help
¥5,070,000 (Direct Cost: ¥3,900,000、Indirect Cost: ¥1,170,000)
Fiscal Year 2016: ¥1,690,000 (Direct Cost: ¥1,300,000、Indirect Cost: ¥390,000)
Fiscal Year 2015: ¥1,040,000 (Direct Cost: ¥800,000、Indirect Cost: ¥240,000)
Fiscal Year 2014: ¥1,170,000 (Direct Cost: ¥900,000、Indirect Cost: ¥270,000)
Fiscal Year 2013: ¥1,170,000 (Direct Cost: ¥900,000、Indirect Cost: ¥270,000)
Keywordsがん看護 / サバイバーシップ / セルフヘルプグループ / サポートグループ / 質的研究 / がん相談支援 / がん患者会 / 長期がんサバイバー / がんサバイバーシップ / ピアサポート / 患者会 / 長期サバイバー / 意味 / 意味づけ / がんサバイバー / 相談支援 / 当事者支援 / 患者サロン / がん患者支援団体
Outline of Final Research Achievements

In Japan, consultations by self-help groups (SHGs) and peers play an important role in supporting cancer survivors. This study aimed to clarify the motives of cancer survivors who have established and been managing an SHG for over 10 years. We identified 1068 managing SHG organizations via the Internet and references. 461 of them answered a questionnaire about the activities and presence of long-cancer survivors. 18 survivors were interviewed. After a qualitative analysis of the results, 7 themes as follows: a sense of mission as a long-term survivor/witness; a firm belief in the significance of sharing an experience with cancer; pleasure of participants’ increasing autonomy; lifework involving repaying the kindness of others, a purpose of life; continuation of the connection with medical staff; benefits of consultations with professionals and peer support; equal relationship with medical staff; continuity through the development of successors; and suggestions for medical cares.

Report

(5 results)
  • 2016 Annual Research Report   Final Research Report ( PDF )
  • 2015 Research-status Report
  • 2014 Research-status Report
  • 2013 Research-status Report
  • Research Products

    (12 results)

All 2017 2016 2015 2014 Other

All Journal Article (2 results) (of which Int'l Joint Research: 1 results,  Peer Reviewed: 2 results,  Open Access: 1 results) Presentation (9 results) Remarks (1 results)

  • [Journal Article] Did Japan’s Cancer Control Act drive the spread of psychosocial care nationwide?2016

    • Author(s)
      Fukui, S., Morita, M., Yoshida, M., Okuhara, H., Endo, K.
    • Journal Title

      9th World Research Congress of the European Association for Palliative Care

      Volume: 9 Issue: 6 Pages: 352-352

    • DOI

      10.1177/0269216316646056

    • Related Report
      2016 Annual Research Report
    • Peer Reviewed / Open Access / Int'l Joint Research
  • [Journal Article] がん闘病 10 年以上のサバイバーのがん患者支援団体とのかかわりの実態2015

    • Author(s)
      福井里美,守田美奈子,吉田みつ子,遠藤公久,奥原秀盛
    • Journal Title

      日本保健科学学会誌

      Volume: 18S Pages: 21-21

    • Related Report
      2015 Research-status Report
    • Peer Reviewed
  • [Presentation] 診断後10年以上の乳がん女性サバイバーがピアサポート活動に関わり続ける経験2017

    • Author(s)
      福井里美,守田美奈子,吉田みつ子,遠藤公久,奥原秀盛
    • Organizer
      第31回日本がん看護学会学術集会
    • Place of Presentation
      高知県立大学(高知県高知市)
    • Year and Date
      2017-02-04
    • Related Report
      2016 Annual Research Report
  • [Presentation] がん闘病 10 年以上のサバイバーのがん患者支援団体とのかかわりの実態2015

    • Author(s)
      福井里美,守田美奈子,吉田みつ子,遠藤公久,奥原秀盛
    • Organizer
      第25回日本保健科学学会学術集会
    • Place of Presentation
      首都大学東京荒川キャンパス(東京都荒川区)
    • Year and Date
      2015-09-26
    • Related Report
      2015 Research-status Report
  • [Presentation] がん患者・家族がピアサポートを受けられる機会の実態2014

    • Author(s)
      福井里美,守田美奈子,吉田みつ子,遠藤公久,奥原秀盛
    • Organizer
      第27回日本サイコオンコロジー学会総会
    • Place of Presentation
      タワーホール船堀(東京都江戸川区)
    • Year and Date
      2014-10-03 – 2014-10-04
    • Related Report
      2014 Research-status Report
  • [Presentation] Trends in gynecologic cancer patient peer support in Japan2014

    • Author(s)
      Noriko Waku, Satomi Fukui, Minako Morita, Mistuko Yoshida, Kimihisa Endo, Hidemori Okuhara, Junko Sakagami
    • Organizer
      18TH International Conference on Cancer Nursing
    • Place of Presentation
      Panama city, Panama
    • Year and Date
      2014-09-07 – 2014-09-11
    • Related Report
      2014 Research-status Report
  • [Presentation] Changes in peer support opportunities for cancer patients in Japan from 2006 to 20132014

    • Author(s)
      Satomi Fukui, Noriko Waku, Minako Morita, Mistuko Yoshida, Kimihisa Endo, Hidemori Okuhara, Junko Sakagami
    • Organizer
      18TH International Conference on Cancer Nursing
    • Place of Presentation
      Panama city, Panama
    • Year and Date
      2014-09-07 – 2014-09-11
    • Related Report
      2014 Research-status Report
  • [Presentation] 日本におけるがん患者がピアサポートを得る機会の動向2014

    • Author(s)
      福井里美,守田美奈子,吉田みつ子,遠藤公久,奥原秀盛,和久紀子,坂上順子
    • Organizer
      第19回日本緩和医療学会学術大会
    • Place of Presentation
      神戸国際展示場(兵庫県神戸市)
    • Year and Date
      2014-06-19 – 2014-06-21
    • Related Report
      2014 Research-status Report
  • [Presentation] 日本におけるがん患者がピアサポートを得る機会の動向2014

    • Author(s)
      福井里美 守田美奈子 吉田みつ子 遠藤公久 奥原秀盛 和久紀子 坂上順子
    • Organizer
      第19回日本緩和医療学会学術大会
    • Place of Presentation
      神戸国際会議場(兵庫県)
    • Related Report
      2013 Research-status Report
  • [Presentation] CHANGES IN PEER SUPPORT OPPORTUNITIES FOR CANCER PATIENTS IN JAPAN FROM 2006 TO 20132014

    • Author(s)
      FUKUI,Satomi, MORITA, Minako, YOSHIDA, Mistuko, OKUHARA, Hidemori, ENDO, Kimihisa, WAKU, Noriko, SAKAGAMI, Junko
    • Organizer
      18th International Conference on Cancer Nursing
    • Place of Presentation
      Panama City, Rebublic of Panama
    • Related Report
      2013 Research-status Report
  • [Presentation] TRENDS IN GYNECOLOGIC CANCER PATIENT PEER SUPPORT IN JAPAN2014

    • Author(s)
      WAKU, Noriko, FUKUI,Satomi, MORITA, Minako, YOSHIDA, Mistuko, OKUHARA, Hidemori, ENDO, Kimihisa, SAKAGAMI, Junko
    • Organizer
      18th International Conference on Cancer Nursing
    • Place of Presentation
      Panama City, Rebublic of Panama
    • Related Report
      2013 Research-status Report
  • [Remarks] 福井里美研究室 がん患者の心理社会的支援(がんサポート研究会)

    • URL

      http://weber.hs.tmu.ac.jp/fukuirab/

    • Related Report
      2016 Annual Research Report

URL: 

Published: 2014-07-25   Modified: 2019-07-29  

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