| Project/Area Number |
25860381
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| Research Category |
Grant-in-Aid for Young Scientists (B)
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| Allocation Type | Multi-year Fund |
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| Research Field |
Medical sociology
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| Research Institution | Osaka University |
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Principal Investigator |
MINARI Jusaku 大阪大学, 医学(系)研究科(研究院), 助教 (60635332)
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| Project Period (FY) |
2013-04-01 – 2015-03-31
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| Project Status |
Completed (Fiscal Year 2014)
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| Budget Amount *help |
¥2,600,000 (Direct Cost: ¥2,000,000、Indirect Cost: ¥600,000)
Fiscal Year 2014: ¥1,300,000 (Direct Cost: ¥1,000,000、Indirect Cost: ¥300,000)
Fiscal Year 2013: ¥1,300,000 (Direct Cost: ¥1,000,000、Indirect Cost: ¥300,000)
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| Keywords | 倫理的・法的・社会的課題 / パーソナルゲノム / データシェアリング / 研究ガバナンス / 科学技術政策 |
|---|
| Outline of Final Research Achievements |
In this study, I have investigated previous international agreements on data sharing as well as policies for genomic-data sharing in leading countries, and thus categorized practical methods and rules in data sharing policies. Furthermore, I have identified some ethical, legal and social issues related to data sharing, in particular, the identifiability of anonymized genomic data, and proposed some approaches to manage the identifiability.
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