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Experiences related to prenatal testing among Japanese mothers of children with disabilities

Research Project

Project/Area Number 26380716
Research Category

Grant-in-Aid for Scientific Research (C)

Allocation TypeMulti-year Fund
Section一般
Research Field Sociology
Research InstitutionSt. Marianna University School of Medicine

Principal Investigator

Kimura Miyako  聖マリアンナ医科大学, 医学部, 講師 (80635441)

Project Period (FY) 2014-04-01 – 2018-03-31
Project Status Completed (Fiscal Year 2017)
Budget Amount *help
¥4,680,000 (Direct Cost: ¥3,600,000、Indirect Cost: ¥1,080,000)
Fiscal Year 2016: ¥1,300,000 (Direct Cost: ¥1,000,000、Indirect Cost: ¥300,000)
Fiscal Year 2015: ¥1,690,000 (Direct Cost: ¥1,300,000、Indirect Cost: ¥390,000)
Fiscal Year 2014: ¥1,690,000 (Direct Cost: ¥1,300,000、Indirect Cost: ¥390,000)
Keywords出生前診断/出生前検査 / 障がい児 / 母親 / ダウン症 / 自閉症スペクトラム / 医療者・患者コミュニケーション / Well-being / Positive Change/逆境化成長 / 出生前診断 / Positive Change / 医療者・患者コミュニケ―ション / 出産満足度 / 障害受容
Outline of Final Research Achievements

This mixed methods study aimed to explore difficulties and needs of women who obtained negative result of prenatal testing and delivered children with disabilities.
In the quantitative study, a total of 11.8% of mothers underwent some type of prenatal testing, and 78.4% of them received negative results, and delivered baby with disabilities including autism spectrum disorders and Down syndrome. Qualitative data showed that the provided information related to risks of babies and prenatal testing were limited in practice. Developing prenatal testing for autism spectrum disorders (ASD) was strongly desired by mothers of children with developmental disabilities.

Report

(5 results)
  • 2017 Annual Research Report   Final Research Report ( PDF )
  • 2016 Research-status Report
  • 2015 Research-status Report
  • 2014 Research-status Report
  • Research Products

    (23 results)

All 2018 2017 2016 2015 2014

All Journal Article (5 results) (of which Int'l Joint Research: 1 results,  Peer Reviewed: 5 results,  Open Access: 5 results,  Acknowledgement Compliant: 2 results) Presentation (18 results) (of which Int'l Joint Research: 8 results)

  • [Journal Article] Social determinants of self-rated health among Japanese mothers of children with disabilities2018

    • Author(s)
      Kimura, M.
    • Journal Title

      Preventive Medicine Reports

      Volume: 10 Pages: 129-135

    • DOI

      10.1016/j.pmedr.2018.02.017

    • Related Report
      2017 Annual Research Report
    • Peer Reviewed / Open Access
  • [Journal Article] Experiences related to prenatal testing among Japanese mothers of children with disabilities2018

    • Author(s)
      Kimura, M.
    • Journal Title

      Women's Reproductive Health

      Volume: 印刷中

    • Related Report
      2017 Annual Research Report
    • Peer Reviewed / Open Access
  • [Journal Article] Having another child without intellectual disabilities: Comparing mothers of single child with disability and mothers of multiple children with and without disability2017

    • Author(s)
      Kimura, M., & Yamazaki, Y.
    • Journal Title

      Journal of Intellectual Disabilities

      Volume: なし Issue: 2 Pages: 1-17

    • DOI

      10.1177/1744629517749129

    • Related Report
      2017 Annual Research Report
    • Peer Reviewed / Open Access
  • [Journal Article] Women’s Needs related to Obstetric Services: Viewpoints of Mothers of Children with Disabilities in Japan2016

    • Author(s)
      Miyako, Kimura
    • Journal Title

      The Asian Conference on Psychology and the Behavioral Sciences 2016 Official Conference Proceedings

      Volume: ー Pages: 371-375

    • Related Report
      2016 Research-status Report
    • Peer Reviewed / Open Access / Acknowledgement Compliant
  • [Journal Article] A Longitudinal Case Study of the Quality of Life Trajectory: A Mother of Multiple Children with Pervasive Developmental Disorders.2015

    • Author(s)
      Miyako, Kimura
    • Journal Title

      The IAFOR Journal of Psychology and the Behavioral Sciences

      Volume: 1 Pages: 17-32

    • Related Report
      2015 Research-status Report
    • Peer Reviewed / Open Access / Int'l Joint Research / Acknowledgement Compliant
  • [Presentation] Mothers' acceptance of their children's diagnosis: What are the key factors?2018

    • Author(s)
      Kimura, M., & Yamazaki, Y.
    • Organizer
      The Asian Conference on Psychology & the Behavioral Sciences 2018
    • Related Report
      2017 Annual Research Report
    • Int'l Joint Research
  • [Presentation] Negative support experienced by Japanese mothers with special needs in gynecology hospitals2018

    • Author(s)
      Kimura, M., Yamazaki, Y.,Yamazaki, Y.
    • Organizer
      The 16th International Conference on Communication in Healthcare
    • Related Report
      2017 Annual Research Report
    • Int'l Joint Research
  • [Presentation] なぜ子どもを産み育てることが難しいのか? わが国における「母親役割」と求められる支援2018

    • Author(s)
      木村美也子, 山崎由美子, 山崎喜比古.
    • Organizer
      第59回日本社会医学会総会
    • Related Report
      2017 Annual Research Report
  • [Presentation] Opportunities for screening of unborn babies: The problems related to prenatal diagnosis in Japan2017

    • Author(s)
      Miyako Kimura
    • Organizer
      15th World Congress on Public Health
    • Place of Presentation
      Melbourne Convention and Exhibition Centre, Melbourne, Australia
    • Year and Date
      2017-04-06
    • Related Report
      2016 Research-status Report
    • Int'l Joint Research
  • [Presentation] Impact of the fear of disability in future children and inadequate support on mothers with disabled children in Japan2017

    • Author(s)
      Kimura, M., & Yamazaki, Y.
    • Organizer
      The 49th Conference of the Asia-Pacific Academic Consortium for Public Health
    • Related Report
      2017 Annual Research Report
    • Int'l Joint Research
  • [Presentation] Social determinants of health among mothers of children with disabilities in Japan2017

    • Author(s)
      Kimura, M.
    • Organizer
      The 21st World Congress of Epidemiology
    • Related Report
      2017 Annual Research Report
    • Int'l Joint Research
  • [Presentation] 木村美也子, 山崎喜比古, 山崎由美子.2017

    • Author(s)
      すれ違う専門職者の常識と障がいある児を妊娠・出産した母親の思い
    • Organizer
      第76回日本公衆衛生学会総会
    • Related Report
      2017 Annual Research Report
  • [Presentation] 障がい児家族にとって望ましいソーシャルキャピタルとは?-親のニーズの観点から―2016

    • Author(s)
      木村美也子
    • Organizer
      第75回日本公衆衛生学会総会
    • Place of Presentation
      大阪市北区 グランフロント大阪
    • Year and Date
      2016-10-27
    • Related Report
      2016 Research-status Report
  • [Presentation] 妊産婦に対する医療従事者の言動と情報提供のあり方を考える2016

    • Author(s)
      木村美也子
    • Organizer
      患者・家族メンタル支援学会第2回学術総会
    • Place of Presentation
      東京都文京区 東京大学
    • Year and Date
      2016-10-23
    • Related Report
      2016 Research-status Report
  • [Presentation] Factors facilitating psychological well-being among mothers of children with disabilities in Japan2016

    • Author(s)
      Miyako Kimura
    • Organizer
      The 48th Asia-Pacific Academic Consortium for Public Health Conference
    • Place of Presentation
      東京都板橋区 帝京大学
    • Year and Date
      2016-09-18
    • Related Report
      2016 Research-status Report
    • Int'l Joint Research
  • [Presentation] 子の障がいの原因をめぐる母親たちの苦悩:「わからなさ」への苛立ちと「わかってしまう」ことへの恐れ2016

    • Author(s)
      木村美也子
    • Organizer
      第57回日本社会医学会総会
    • Place of Presentation
      群馬県草津市 草津市立まちづくりセンター
    • Year and Date
      2016-08-07
    • Related Report
      2016 Research-status Report
  • [Presentation] 妊娠中に提供される児の健康情報と医療従事者とのコミュニケーションが 母親に与え得るインパクト ―障害児の母親を対象とした全国調査の結果から-.2016

    • Author(s)
      木村美也子
    • Organizer
      第25回日本健康教育学会学術大会
    • Place of Presentation
      沖縄科学技術大学院大学, 沖縄県・国頭郡
    • Year and Date
      2016-06-11
    • Related Report
      2015 Research-status Report
  • [Presentation] Women's Needs Related to Obstetric Services: Viewpoints of Mothers of Children with Disabilities in Japan.2016

    • Author(s)
      MIyako, Kimura
    • Organizer
      The Sixth Asian Conference on Psychology & the Behavioral Sciences
    • Place of Presentation
      Art Center of Kobe, Hyogo・Kobe
    • Year and Date
      2016-04-01
    • Related Report
      2015 Research-status Report
    • Int'l Joint Research
  • [Presentation] Amniocentesis decision making and outcomes after birth of a child with intellectual disability: Limitations of prenatal diagnosis.2015

    • Author(s)
      MIyako, Kimura
    • Organizer
      19th International Conference on Prenatal Diagnosis and Therapy
    • Place of Presentation
      Washington DC, USA
    • Year and Date
      2015-07-15
    • Related Report
      2015 Research-status Report
    • Int'l Joint Research
  • [Presentation] Case Study on the Life-Line of a Mother of Multiple Children with Disabilities and Faced Limitation of Prenatal Diagnosis2015

    • Author(s)
      Miyako Kimura
    • Organizer
      The Asian Conference on Psychology and the Behavioral Sciences 2015
    • Place of Presentation
      大阪市北区  グランキューブ大阪(大阪府立国際会議場)
    • Year and Date
      2015-03-28
    • Related Report
      2014 Research-status Report
  • [Presentation] Mental health status and parenting difficulties among parents of children with intellectual disability in Japan.2014

    • Author(s)
      Miyako Kimura, Yoshihiko Yamazaki
    • Organizer
      WPA Section on Epidemiology and Public Health - 2014 Meeting
    • Place of Presentation
      奈良県奈良市 奈良県新公会堂
    • Year and Date
      2014-10-17
    • Related Report
      2014 Research-status Report
  • [Presentation] 知的障害のある一人っ子を養育している親の現状-知的障害児とそのきょうだい児(健常児)を養育している親との比較から-.2014

    • Author(s)
      木村美也子、山崎喜比古
    • Organizer
      第55回日本社会医学会総会
    • Place of Presentation
      愛知県名古屋市 名古屋大学
    • Year and Date
      2014-07-12
    • Related Report
      2014 Research-status Report
  • [Presentation] 知的障害児を複数養育する母親へのポジティブ/ネガティブサポート―Interpretative Phenomenological Analysis (IPA) approachによる研究結果から―.2014

    • Author(s)
      木村美也子
    • Organizer
      第40回日本保健医療社会学会
    • Place of Presentation
      宮城県仙台市 東北大学医学部保健学科、東北大学病院
    • Year and Date
      2014-05-17
    • Related Report
      2014 Research-status Report

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Published: 2014-04-04   Modified: 2019-03-29  

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