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A comparative study on the function and specialty of nursing that supports the hopes of intractable patients and families in Japan and Europe

Research Project

Project/Area Number 26463322
Research Category

Grant-in-Aid for Scientific Research (C)

Allocation TypeMulti-year Fund
Section一般
Research Field Clinical nursing
Research InstitutionJuntendo University

Principal Investigator

Nagase Masako  順天堂大学, 医療看護学部, 先任准教授 (90338765)

Co-Investigator(Kenkyū-buntansha) 青木 きよ子  順天堂大学, 医療看護学部, 特任教授 (50212361)
鵜澤 久美子 (桑江久美子 / 鵜澤 久美子(桑江久美子))  順天堂大学, 医療看護学部, 助教 (50635167)
池田 恵  順天堂大学, 医療看護学部, 先任准教授 (50514832)
Project Period (FY) 2014-04-01 – 2019-03-31
Project Status Completed (Fiscal Year 2018)
Budget Amount *help
¥4,810,000 (Direct Cost: ¥3,700,000、Indirect Cost: ¥1,110,000)
Fiscal Year 2017: ¥1,040,000 (Direct Cost: ¥800,000、Indirect Cost: ¥240,000)
Fiscal Year 2016: ¥1,170,000 (Direct Cost: ¥900,000、Indirect Cost: ¥270,000)
Fiscal Year 2015: ¥1,690,000 (Direct Cost: ¥1,300,000、Indirect Cost: ¥390,000)
Fiscal Year 2014: ¥910,000 (Direct Cost: ¥700,000、Indirect Cost: ¥210,000)
Keywords神経難病 / 生きる希望 / 日英比較 / 看護の専門性 / 治療の選択 / 専門看護師の機能 / 難病ケアシステム / 希望 / 筋萎縮性側索硬化症 / 神経難病看護 / 包括的ケア / ケアの継続性 / 神経難病ケア / ケアシステム / 国際情報交換
Outline of Final Research Achievements

This study consisted of the following 3 researches; (1) Nurses' perceptions about the role and function of nursing and support systems in nursing intractable medical bases hospitals, (2) Actual conditions and expertise of nursing to support the wishes of patients and families in neurological intractable medical bases hospitals, and (3) functions of intractable neurological diseases in the West And research on professionalism.
In (1), we investigated nurses' perceptions and specialties of nursing about intractable neurological disease care in acute care hospitals, and reported the results as research papers. In 2 we conducted a secondary analysis using notes (6) by patients with intractable neurological diseases and nursing research papers (10) in order to clarify what "hope" is considered by both patients and nurses. In 3, we investigated the current state of medical treatment for neurological diseases in the United Kingdom, and published the results as a paper.

Academic Significance and Societal Importance of the Research Achievements

神経難病者は、運動ニューロン疾患であれ、パーキンソン病であれ、「治らない」が「症状をコントロールしながら」、時には「症状を多少改善しながら」生活をしている。どのような治療を受けるか、あるいは差し控えるか、望まないかは、生きることへの微かな「希望」が関与している。この「希望」についての認識が、看護職者と患者の間で多少の相違があると示唆された。この成果を治療選択に向けた支援に関する研究に発展させる。

Report

(6 results)
  • 2018 Annual Research Report   Final Research Report ( PDF )
  • 2017 Research-status Report
  • 2016 Research-status Report
  • 2015 Research-status Report
  • 2014 Research-status Report
  • Research Products

    (20 results)

All 2019 2018 2017 2016 2014

All Journal Article (8 results) (of which Peer Reviewed: 7 results,  Open Access: 3 results,  Acknowledgement Compliant: 2 results) Presentation (11 results) (of which Int'l Joint Research: 6 results) Book (1 results)

  • [Journal Article] 慢性疾患看護専門看護師による初回病名告知を受ける入院中の筋萎縮性側索硬化症患者への看護実践2019

    • Author(s)
      千葉純恵・長瀬雅子・青木きよ子
    • Journal Title

      日本慢性看護学会誌

      Volume: 13

    • NAID

      40021961245

    • Related Report
      2018 Annual Research Report
    • Peer Reviewed
  • [Journal Article] 我が国における「慢性疾患のセルフマネジメント」の概念分析2017

    • Author(s)
      浅井美千代・青木きよ子・高谷真由美・長瀬雅子
    • Journal Title

      医療看護研究

      Volume: 13 Pages: 10-21

    • NAID

      40021164828

    • Related Report
      2016 Research-status Report
    • Peer Reviewed
  • [Journal Article] 福祉の現場から 初老期認知症者と家族への介入・支援方略の検討におけるビデオ・エスノグラフィーの可能性2016

    • Author(s)
      家根明子・長瀬雅子
    • Journal Title

      地域ケアリング

      Volume: 18 Pages: 87-89

    • NAID

      40020899806

    • Related Report
      2016 Research-status Report
  • [Journal Article] 全身性エリテマトーデス患者のセルフマネジメント獲得における看護師との協働の認識2016

    • Author(s)
      鵜澤久美子・青木きよ子・長瀬雅子・下西麻美
    • Journal Title

      医療看護研究

      Volume: 13 Pages: 24-33

    • NAID

      40021002905

    • Related Report
      2016 Research-status Report
    • Peer Reviewed
  • [Journal Article] 英国の保健医療システムからみた日本の包括的かつ継続的な神経難病医療・ケア提供システムの課題2016

    • Author(s)
      長瀬雅子、池田恵、青木きよ子ほか
    • Journal Title

      医療看護研究

      Volume: 12(2) Pages: 36-45

    • NAID

      40020782347

    • Related Report
      2015 Research-status Report
    • Peer Reviewed / Open Access / Acknowledgement Compliant
  • [Journal Article] 神経難病患者の手記にみるスピリチュアルな苦悩2014

    • Author(s)
      長瀬雅子
    • Journal Title

      医療看護研究

      Volume: 11(1) Pages: 67-73

    • NAID

      40020257685

    • Related Report
      2014 Research-status Report
    • Peer Reviewed
  • [Journal Article] The Lack of Spirituality in End of Life Care in Japan2014

    • Author(s)
      Masako Nagase
    • Journal Title

      Sociology and Anthropology

      Volume: 2(6) Issue: 6 Pages: 216-229

    • DOI

      10.13189/sa.2014.020602

    • Related Report
      2014 Research-status Report
    • Peer Reviewed / Open Access
  • [Journal Article] Caring for Patients with Intractable Neurological Diseases2014

    • Author(s)
      4.Masako Nagase, Kiyoko Aoki, Mayumi Takaya, Kumiko Uzawa, Keiko Hino
    • Journal Title

      SAGE OPEN

      Volume: August Pages: 1-7

    • Related Report
      2014 Research-status Report
    • Peer Reviewed / Open Access / Acknowledgement Compliant
  • [Presentation] “Hope” in end-of-life care for patients with motor neurone disease2017

    • Author(s)
      Masako Nagase
    • Organizer
      ICN2017
    • Place of Presentation
      Spain
    • Year and Date
      2017-05-27
    • Related Report
      2016 Research-status Report
    • Int'l Joint Research
  • [Presentation] "Hope" for People with Motor Neurone Disease in Japan2017

    • Author(s)
      Masako Nagase
    • Organizer
      STTI2017
    • Place of Presentation
      Ireland
    • Year and Date
      2017-05-24
    • Related Report
      2016 Research-status Report
    • Int'l Joint Research
  • [Presentation] Encouragement for multiple sclerosis patients in middle age to come to terms with the disease2017

    • Author(s)
      Asahi Kurosaki, Masako Nagase
    • Organizer
      International symposium and Research days
    • Place of Presentation
      Thailand
    • Year and Date
      2017-02-23
    • Related Report
      2016 Research-status Report
    • Int'l Joint Research
  • [Presentation] 初回病名告知を受ける筋萎縮性側索硬化症患者への慢性疾患看護専門看護師による看護実践2017

    • Author(s)
      千葉純恵、青木きよ子、長瀬雅子
    • Organizer
      第11回日本慢性看護学会学術集会
    • Related Report
      2017 Research-status Report
  • [Presentation] 人生の終焉にかかわる患者の意思決定プロセス―筋萎縮性側索硬化症を例に―2017

    • Author(s)
      長瀬雅子
    • Organizer
      第43回日本保健医療社会学会大会
    • Related Report
      2017 Research-status Report
  • [Presentation] "Hope" for People with Motor Neurone Disease in Japan2017

    • Author(s)
      Masako Nagase
    • Organizer
      Sigma Theta Tau International’s 28th International Nursing Research Congress
    • Related Report
      2017 Research-status Report
    • Int'l Joint Research
  • [Presentation] “Hope” in end-of-life care for patients with motor neurone disease2017

    • Author(s)
      Masako Nagase
    • Organizer
      ICN Congress 2017
    • Related Report
      2017 Research-status Report
    • Int'l Joint Research
  • [Presentation] 筋萎縮性側索硬化症者の人生の終焉にかかわる意思決定における「希望」の存在2017

    • Author(s)
      長瀬雅子
    • Organizer
      第13回医療看護研究会
    • Place of Presentation
      浦安
    • Related Report
      2016 Research-status Report
  • [Presentation] 我が国の慢性疾患におけるセルフマネジメントとその類似概念についての文献検討2016

    • Author(s)
      浅井美千代・青木きよ子・高谷真由美・長瀬雅子
    • Organizer
      第36回日本看護科学学会学術集会
    • Place of Presentation
      東京
    • Year and Date
      2016-12-10
    • Related Report
      2016 Research-status Report
  • [Presentation] 進行性の神経難病への継続的な医療・ケア提供システムにおける今後の課題―日本と英国における調査から―2016

    • Author(s)
      長瀬雅子・青木きよ子・鵜澤久美子
    • Organizer
      第10回日本慢性看護学会学術集会
    • Place of Presentation
      東京
    • Year and Date
      2016-07-15
    • Related Report
      2016 Research-status Report
  • [Presentation] Roles of Clinical Nurse Specialists in Motor Neuron Disease Care and Its Delivery Systems.2016

    • Author(s)
      Masako Nagase, Megumi Ikeda, Kiyoko Aoki, Kumiko Uzawa
    • Organizer
      19th EAFONS
    • Place of Presentation
      幕張メッセ(千葉県千葉市)
    • Year and Date
      2016-03-14
    • Related Report
      2015 Research-status Report
    • Int'l Joint Research
  • [Book] 看護師の倫理調整力2018

    • Author(s)
      鶴若麻理・長瀬雅子
    • Total Pages
      144
    • Publisher
      日本看護協会出版会
    • Related Report
      2018 Annual Research Report

URL: 

Published: 2014-04-04   Modified: 2020-03-30  

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