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Development education compornents of genetic nursing for decision making support to pregnant women and families with congenital anomaly babies

Research Project

Project/Area Number 26463379
Research Category

Grant-in-Aid for Scientific Research (C)

Allocation TypeMulti-year Fund
Section一般
Research Field Lifelong developmental nursing
Research InstitutionYamaguchi University

Principal Investigator

MURAKAMI Kyoko  山口大学, 大学院医学系研究科, 教授 (10294662)

Co-Investigator(Kenkyū-buntansha) 沓脱 小枝子  山口大学, 大学院医学系研究科, 助教 (50513785)
飯田 加寿子  山口大学, 大学院医学系研究科, 准教授 (40403399)
辻野 久美子  琉球大学, 医学部, 教授 (60269157)
伊東 美佐江  川崎医療福祉大学, 医療福祉学部, 教授 (00335754)
Research Collaborator Sakirton Heather  University of Plymouth, School of Nursing and Midwifery, Professor of Applied Health Genetics Deputy Head
Stone Teresa E.  Chiang Mai University, Visitor Professor
Lai Claudia  The Hong Kong Polytechnic University, the Centre for Gerontological Nursing at the School of Nursing, Professor and Director
Project Period (FY) 2014-04-01 – 2018-03-31
Project Status Completed (Fiscal Year 2017)
Budget Amount *help
¥4,940,000 (Direct Cost: ¥3,800,000、Indirect Cost: ¥1,140,000)
Fiscal Year 2017: ¥780,000 (Direct Cost: ¥600,000、Indirect Cost: ¥180,000)
Fiscal Year 2016: ¥1,170,000 (Direct Cost: ¥900,000、Indirect Cost: ¥270,000)
Fiscal Year 2015: ¥1,950,000 (Direct Cost: ¥1,500,000、Indirect Cost: ¥450,000)
Fiscal Year 2014: ¥1,040,000 (Direct Cost: ¥800,000、Indirect Cost: ¥240,000)
Keywords遺伝看護 / 先天異常 / 高年妊娠 / 出生前診断 / 看護倫理 / 家族看護 / 心理的支援 / 意思決定支援 / 継続教育 / 看護職 / 家族 / 倫理 / 国際情報交換(イギリス、オーストラリア)
Outline of Final Research Achievements

Recently, genetic technologies have been developing rapidly in perinatal settings. We tried to establish a module of genetic nursing competency-based education program for nurses and nursing students.
Firstly, we conducted a cross-sectional study with 147 women aged 35 years or over who had given birth within a month. The participants average age was 38.0 years old. Of the participants, one of third had infertility treatments and 22.4% had prenatal testing during their pregnancies. While some participants discussed prenatal testing with their husbands, many participants made their own choices.
Secondly, we designed an educational seminar session of chromosomal abnormalities for nurses and students. Participants who had experienced genetic subjects perceived higher having genetic knowledge than no experiences. In conclusion, it is important that these educational seminars should be included in undergraduate nursing curriculum.

Report

(5 results)
  • 2017 Annual Research Report   Final Research Report ( PDF )
  • 2016 Research-status Report
  • 2015 Research-status Report
  • 2014 Research-status Report
  • Research Products

    (13 results)

All 2017 2016 2015 2014 Other

All Int'l Joint Research (2 results) Journal Article (4 results) (of which Int'l Joint Research: 1 results,  Peer Reviewed: 4 results,  Open Access: 4 results,  Acknowledgement Compliant: 2 results) Presentation (7 results) (of which Int'l Joint Research: 1 results)

  • [Int'l Joint Research] 所属なし(オーストラリア)

    • Related Report
      2017 Annual Research Report
  • [Int'l Joint Research] 香港理工大学(香港)

    • Related Report
      2017 Annual Research Report
  • [Journal Article] Experiences regarding maternal age-specific risks and prenatal testing of women of advanced maternal age in Japan.2016

    • Author(s)
      Murakami K, Turale S, Skirton H, Doris F, Tsujino K, Ito M, Kutsunugi S
    • Journal Title

      Nursing and Health Sciences

      Volume: 18(1) Issue: 1 Pages: 8-14

    • DOI

      10.1111/nhs.12209

    • Related Report
      2015 Research-status Report
    • Peer Reviewed / Open Access / Int'l Joint Research / Acknowledgement Compliant
  • [Journal Article] 高年妊娠および出生前診断に対する女性のリスク認識と情報選択ニーズ2016

    • Author(s)
      村上 京子
    • Journal Title

      山口医学

      Volume: 65(1) Pages: 5-13

    • NAID

      130006464241

    • Related Report
      2015 Research-status Report
    • Peer Reviewed / Open Access
  • [Journal Article] ダウン症の診断確定を待つ新生児期の親子関係形成ケアに対する母親の認識2015

    • Author(s)
      竹内 久美子, 村上 京子, 辻野 久美子
    • Journal Title

      山口医学

      Volume: 64(2) Pages: 87-99

    • NAID

      130005281951

    • Related Report
      2015 Research-status Report
    • Peer Reviewed / Open Access
  • [Journal Article] Experiences regarding maternal age-specific risks and prenatal testing of women of advanced maternal age in Japan2015

    • Author(s)
      Murakami K, Turale S, Skirton H, Doris F, Tsujino K, Ito M, Kutsunugi S
    • Journal Title

      Nursing and Health Sciences

      Volume: 17 Pages: 45-49

    • Related Report
      2014 Research-status Report
    • Peer Reviewed / Open Access / Acknowledgement Compliant
  • [Presentation] 山口県遺伝看護卒後教育セミナーにおける取り組み2017

    • Author(s)
      村上 京子, 飯田 加寿子, 沓脱 小枝子, 辻野 久美子, 伊東 美佐江
    • Organizer
      日本遺伝看護学会
    • Related Report
      2017 Annual Research Report
  • [Presentation] 先天異常が確定するまでの時期の看護ケアに対するダウン症候群のある児の母親のニーズ2016

    • Author(s)
      竹内 久美子, 村上 京子, 辻野 久美子
    • Organizer
      日本新生児看護学会
    • Place of Presentation
      大阪府大阪市、大阪国際会議場
    • Year and Date
      2016-12-02
    • Related Report
      2016 Research-status Report
  • [Presentation] Prader-Willi症候群のケアギバーを対象とした勉強会の実践報告 地域での取り組み2016

    • Author(s)
      沓脱 小枝子, 村上 京子, 中込 さと子
    • Organizer
      日本遺伝看護学会
    • Place of Presentation
      新潟県新潟市、新潟日報メディアシップ
    • Year and Date
      2016-09-25
    • Related Report
      2016 Research-status Report
  • [Presentation] 周産期における妊婦・家族の情報選択と看護職の役割2015

    • Author(s)
      村上 京子
    • Organizer
      山口医学
    • Place of Presentation
      山口県宇部市, 山口大学医学部霜仁会館
    • Year and Date
      2015-09-13
    • Related Report
      2015 Research-status Report
  • [Presentation] Decision-making on Prenatal Testing among Women of Advanced Maternal Age in Japan2015

    • Author(s)
      Murakami K, Kutsunugi S, Iida K, Kinoshita M, Ito M, Tsujino K
    • Organizer
      12th International Family Nursing Conference
    • Place of Presentation
      Odense, Denmark
    • Year and Date
      2015-08-20
    • Related Report
      2015 Research-status Report
    • Int'l Joint Research
  • [Presentation] 高年妊娠で出産した女性のリスク認識と情報選択に対するニーズ2014

    • Author(s)
      村上京子、沓脱小枝子、飯田加寿子、竹内久美子、辻野久美子、伊東美佐江
    • Organizer
      日本遺伝看護学会
    • Place of Presentation
      琉球大学医学部臨床講義棟(沖縄県)
    • Year and Date
      2014-10-25
    • Related Report
      2014 Research-status Report
  • [Presentation] 親のゆらぐ意思決定のプロセスへの支援2014

    • Author(s)
      Katherine Heinze、村上京子、秋鹿都子、伊東美佐江
    • Organizer
      日本家族看護学会
    • Place of Presentation
      川崎医療福祉大学川崎祐宣記念講堂(岡山県)
    • Year and Date
      2014-08-09
    • Related Report
      2014 Research-status Report

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Published: 2014-04-04   Modified: 2022-08-18  

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