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Care coordination for children with medical complexity and their families

Research Project

Project/Area Number 26463428
Research Category

Grant-in-Aid for Scientific Research (C)

Allocation TypeMulti-year Fund
Section一般
Research Field Lifelong developmental nursing
Research InstitutionIbaraki Christian University

Principal Investigator

Matsuzawa Akemi  茨城キリスト教大学, 看護学部, 准教授 (20382822)

Co-Investigator(Kenkyū-buntansha) 中川 泉  聖徳大学, 看護学部, 教授 (00237223)
白木 裕子  茨城キリスト教大学, 看護学部, 准教授 (20458243)
Project Period (FY) 2014-04-01 – 2018-03-31
Project Status Completed (Fiscal Year 2017)
Budget Amount *help
¥4,810,000 (Direct Cost: ¥3,700,000、Indirect Cost: ¥1,110,000)
Fiscal Year 2016: ¥1,690,000 (Direct Cost: ¥1,300,000、Indirect Cost: ¥390,000)
Fiscal Year 2015: ¥1,690,000 (Direct Cost: ¥1,300,000、Indirect Cost: ¥390,000)
Fiscal Year 2014: ¥1,430,000 (Direct Cost: ¥1,100,000、Indirect Cost: ¥330,000)
Keywordsケア・コーディネーション / 在宅 / 医療的ケア / 障がい児 / 家族 / サービス / 評価 / 在宅障がい児 / 特別な医療ニーズがある子ども / 特別な医療ニーズをもつ子ども
Outline of Final Research Achievements

We quantitatively and qualitatively explored care coordination for children with medical complexity (CMC) and their families living at home in Japan. Less than half of all CMC received adequate care coordination. Most care coordinators, especially CMC coordinators, found it difficult to plan care for children and their families. Improvements in care coordination are urgently required. A whole-family approach to the delivery of timely, high-quality healthcare is essential for relieving the burdens on children and their parental caregivers. Healthcare services must be improved, healthcare professionals must be educated, interdisciplinary communication and collaboration must be enhanced, schools must be engaged, and support for care coordinators must be prioritized.

Report

(5 results)
  • 2017 Annual Research Report   Final Research Report ( PDF )
  • 2016 Research-status Report
  • 2015 Research-status Report
  • 2014 Research-status Report
  • Research Products

    (10 results)

All 2018 2017 2016 2015

All Journal Article (3 results) (of which Peer Reviewed: 2 results,  Open Access: 3 results) Presentation (7 results) (of which Int'l Joint Research: 1 results)

  • [Journal Article] 茨城県北・県央地域の在宅療養する子どもの実態-在宅療養する子どもの実数2015

    • Author(s)
      松澤明美・白木裕子・連利博・竹谷俊樹・平澤明美・新井順一
    • Journal Title

      茨城キリスト教大学看護学部紀要

      Volume: 7(1) Pages: 29-36

    • Related Report
      2015 Research-status Report
    • Peer Reviewed / Open Access
  • [Journal Article] 茨城県北・県央地域の訪問看護ステーションにおける小児訪問看護の実施状況2015

    • Author(s)
      松澤明美・白木裕子・連利博・竹谷俊樹・平澤明美・新井順一
    • Journal Title

      茨城キリスト教大学看護学部紀要

      Volume: 7(1) Pages: 19-27

    • Related Report
      2015 Research-status Report
    • Peer Reviewed / Open Access
  • [Journal Article] 心理・教育・看護の研究実践から考える障がいのある子どもの家族への支援:2015

    • Author(s)
      江尻桂子・武居渡・松澤明美
    • Journal Title

      茨城キリスト教大学紀要2 社会・自然科学

      Volume: 49 Pages: 285-299

    • Related Report
      2015 Research-status Report
    • Open Access
  • [Presentation] ケア・サービスを必要とする在宅障がい児と家族への相談支援の実践と課題2018

    • Author(s)
      松澤明美・白木裕子・新井順一・平澤明美
    • Organizer
      第65回日本小児保健協会学術集会
    • Related Report
      2017 Annual Research Report
  • [Presentation] 在宅生活する医療ニーズのある子どもと家族へのケア・コーディネーションと関連要因2018

    • Author(s)
      松澤明美・白木裕子・平澤明美
    • Organizer
      第28回日本小児看護学会学術集会
    • Related Report
      2017 Annual Research Report
  • [Presentation] 在宅療養する子どもの保護者が抱える困りごと―子どもの医療的ケアの有無による違いに焦点をあてて―2018

    • Author(s)
      白木裕子・松澤明美・平澤明美
    • Organizer
      第28回日本小児看護学会学術集会
    • Related Report
      2017 Annual Research Report
  • [Presentation] The Practice And Challenge Of Nurse Care Coordination For Children With Medical Complexity And Their Families: A Qualitative Study2017

    • Author(s)
      A,Matsuzawa,W,Looman.
    • Organizer
      The 13th International Family Nursing Conference
    • Place of Presentation
      スペイン・パンプローナ
    • Year and Date
      2017-06-15
    • Related Report
      2016 Research-status Report
    • Int'l Joint Research
  • [Presentation] 障がいをもつ子どもを育てる家族の在宅サービス利用の特徴2016

    • Author(s)
      松澤明美
    • Organizer
      第63回日本小児保健学会学会
    • Place of Presentation
      埼玉県さいたま市
    • Year and Date
      2016-06-24
    • Related Report
      2015 Research-status Report
  • [Presentation] 心理・教育・看護の視点から考える障害児家族支援―各専門領域はこの問題をどう捉え、取り組んできたのか-(自主シンポジウム)2015

    • Author(s)
      江尻桂子・武居渡・松澤明美
    • Organizer
      第53回日本特殊教育学会
    • Place of Presentation
      宮城県仙台市
    • Year and Date
      2015-09-19
    • Related Report
      2015 Research-status Report
  • [Presentation] Experiences of Japanese mothers receiving coordinated care while raising children with special health care needs2015

    • Author(s)
      A.Matsuzawa, Y. Shiroki and I.Nakagawa
    • Organizer
      SIGMA THETA TAU INTERNATIONAL 26th International Nursing Research Congress
    • Place of Presentation
      Sun Juan, Puerto Rico
    • Year and Date
      2015-07-26
    • Related Report
      2014 Research-status Report

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Published: 2014-04-04   Modified: 2019-03-29  

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