Development of nursing care in survivorship care in children and their families

• Project/Area Number: 26463429
• Research Category: Grant-in-Aid for Scientific Research (C)
• Allocation Type: Multi-year Fund
• Section: 一般
• Research Field: Lifelong developmental nursing
• Research Institution: St. Luke's International University
• Principal Investigator: KOBAYASHI Kyoko 聖路加国際大学, 大学院看護学研究科, 教授 (30437446)
• Co-Investigator(Kenkyū-buntansha): 山口 悦子 (中上悦子 / 山口 悦子(中上悦子)) 大阪市立大学, 大学院医学研究科, 准教授 (60369684) ; 法橋 尚宏 神戸大学, 保健学研究科, 教授 (60251229) ; 田村 敦子 自治医科大学, 看護学部, 講師 (70724996) ; 小口 祐子 聖路加国際大学, 大学院看護学研究科, 助教 (70782275) ; 宮下 佳代子 四條畷学園大学, 看護学部, 助教 (10469546)
• Research Collaborator: NAGASE Kyoko ; GUNJI Michiyo ; MAEDA Knie
• Project Period (FY): 2014-04-01 – 2019-03-31
• Project Status: Completed (Fiscal Year 2018)
• Budget Amount: ¥5,070,000 (Direct Cost: ¥3,900,000、Indirect Cost: ¥1,170,000); Fiscal Year 2018: ¥650,000 (Direct Cost: ¥500,000、Indirect Cost: ¥150,000); Fiscal Year 2017: ¥650,000 (Direct Cost: ¥500,000、Indirect Cost: ¥150,000); Fiscal Year 2016: ¥1,300,000 (Direct Cost: ¥1,000,000、Indirect Cost: ¥300,000); Fiscal Year 2015: ¥1,430,000 (Direct Cost: ¥1,100,000、Indirect Cost: ¥330,000); Fiscal Year 2014: ¥1,040,000 (Direct Cost: ¥800,000、Indirect Cost: ¥240,000)
• Keywords: 小児がん経験者 / 長期フォローアップ / 看護師 / セルフケア / 自己管理 / 小児がん / 看護ケア / 移行医療 / 自立 / 実態調査 / 小児看護専門看護師 / 経験者 / 家族 / 看護 / サバイバーシップ

Outline of Final Research Achievements

This study examined the literature on the role of nurses in long-term follow-up care for the development of care programs, and clarified the contents and targets of care for children with chronic diseases including childhood cancer by survey. We made a summary sheet and feedback sheet for long-term follow-up, and clarified follow-up care patterns by examining 15 cases.
In addition, the survival of survivors and their families revealed by meta-synthesis was an experience that balances the self-care ability of the survivors and the management ability of the families in the “ambiguous and uncertain” survival. It was to make the most of the ability toward the independence of the survivors. We conducted conceptual analysis to reveal "independence" of children with chronic diseases including childhood cancer.

Academic Significance and Societal Importance of the Research Achievements

本研究は，小児がんの長期フォローアップの現状と，経験者と家族のサバイバーシップ経験と自立の概念を学術的な方法で明示した．このことで，経験者と家族のありように根ざした長期フォローアップケアと現在の課題を明らかにすることができた．
また，自立の概念を身体的な晩期合併症に合わせて経験者の自己管理状態を統合したフォローアップケアパターンを明らかにしたことで，小児がん経験者の「自立」を目指した看護ケアの基盤を提示することができた．

Research Products

• [Int'l Joint Research] University of Pennsylvania/Children's Hospital of Philadelphia(米国)
• [Journal Article] HRQOL of Japanese children with acute lymphoblastic leukemia during and after chemotherapy. (2017)
  • Author(s): Kobayashi K, Yamaguchi E, Hayakawa A, Adachi S, Hara J, Tokimasa S, Ohta H, Hashii Y, Rikiishi T, Sawada M, Kuriyama K, Kohdera U, Kamibeppu K, Kawasaki H, Oda M, Hori H.
  • Journal Title: Pediatrics International Volume: 59(2) Issue: 2 Pages: 145-153
  • DOI: 10.1111/ped.13092
  • Peer Reviewed / Open Access
• [Journal Article] 小児がんの長期フォローアップとは何か 小児がんの子どもたちを長期にフォローアップする際の看護の役割 (2016)
  • Author(s): 小林京子
  • Journal Title: 小児看護 Volume: 39
• [Journal Article] 小児がんの家族の生活を支援する家族看護 (2015)
  • Author(s): 小林京子
  • Journal Title: 保健の科学 Volume: 57 Pages: 261-266
• [Presentation] AYA世代小児がん経験者の長期フォローアップにおける自立支援ケア計画の視点と目標 (2017)
  • Author(s): 郡司 美千代，永瀬 恭子, 小林 京子, 前田 邦枝, 小澤 美和, 細谷 要介, 長谷川 大輔, 真部 淳, 細谷 亮太, 石田 也寸志
  • Organizer: 第59回日本小児血液・がん学会
• [Presentation] AYA世代小児がん経験者の為の包括的ドックからの報告 食行動と生活習慣病への看護介入の必要性 (2017)
  • Author(s): 前田 邦枝，永瀬 恭子, 郡司 美千代, 小林 京子, 細谷 要介, 小澤 美和, 長谷川 大輔, 真部 淳, 石田 也寸志
  • Organizer: 第59回日本小児血液・がん学会
• [Presentation] 小児看護専門看護師の移行医療への認識と関わりの現状 (2017)
  • Author(s): 小林 京子，小口 祐子，田村 敦子，宮下 佳代子
  • Organizer: 第37回日本看護科学学会学術集会
• [Presentation] Challenge to establishment of a nurse-led long-term follow-up system in Japan (2016)
  • Author(s): Kobayashi K
  • Organizer: Seventh International Nursing Conference on Children and Adolescent Cancer Survivorship
  • Place of Presentation: Philadelphia
  • Year and Date: 2016-04-07
  • Invited
• [Presentation] A Metaethnography Of Family Interrelationships During Survivorship Of Childhood Cancer (2015)
  • Author(s): Kobayashi K., Cricco-Lizza R., Deatrick A J.
  • Organizer: 12th International Family Nursing Conference
  • Place of Presentation: Odense, Denmark
  • Year and Date: 2015-08-18 – 2015-08-21
• [Presentation] A Meta-ethnography of family interrelationships during survivorship of childhood cancer (2015)
  • Author(s): Kobayashi K, Cricco-Lizza R, Deatrick JA
  • Organizer: 12th International Family Nursing Conference
  • Place of Presentation: Demark
  • Year and Date: 2015-08-18
  • Int'l Joint Research
• [Presentation] 米国の長期フォローアップに関する文献検討 (2014)
  • Author(s): 小林京子
  • Organizer: 第12回に本小児がん看護学会
  • Place of Presentation: 岡山県
  • Year and Date: 2014-11-29
• [Presentation] Development of an educational booklet for families of children with leukemia (2014)
  • Author(s): Kobayashi K., Yamaguchi-Nakagami E., Hayakawa A., Maeda N., Sawada M., Hisakawa H., Koudera U., Yoshida M., Imai T., Rikiishi T., Hori H
  • Organizer: 46th Congress of the International Society of Paediatric Oncology
  • Place of Presentation: Toronto, Canada
  • Year and Date: 2014-10-21 – 2014-10-26