Construction of psychosocial support program for genetic counseling

• Project/Area Number: 26590158
• Research Category: Grant-in-Aid for Challenging Exploratory Research
• Allocation Type: Multi-year Fund
• Research Field: Clinical psychology
• Research Institution: Mie University
• Principal Investigator: Mochiki Ikuyo 三重大学, 医学部, 講師 (20369614)
• Co-Investigator(Kenkyū-buntansha): 中谷 中 三重大学, 医学部附属病院, 教授 (80237304)
• Project Period (FY): 2014-04-01 – 2018-03-31
• Project Status: Completed (Fiscal Year 2017)
• Budget Amount: ¥3,250,000 (Direct Cost: ¥2,500,000、Indirect Cost: ¥750,000); Fiscal Year 2016: ¥1,040,000 (Direct Cost: ¥800,000、Indirect Cost: ¥240,000); Fiscal Year 2015: ¥910,000 (Direct Cost: ¥700,000、Indirect Cost: ¥210,000); Fiscal Year 2014: ¥1,300,000 (Direct Cost: ¥1,000,000、Indirect Cost: ¥300,000)
• Keywords: 遺伝カウンセリング / 心理社会的支援 / 遺伝性疾患

Outline of Final Research Achievements

Our study aims to provide genetic counseling according to the needs of the counselee concerned with a hereditary disease by clarifying their psychological characteristics. It became clear that there were significant differences in many aspects depending on the attributes of the counselee. Counselees with muscular diseases had less knowledge about their disease and felt more anxious than counselees with other diseases. Counselees with muscular and neurological diseases did not ask counselors to provide information on future risks and their prognosis. Counselees whose children had hereditary diseases, felt a strong sense of guilt and anxiety for their children's diseases and hoped to get information on future risks and prognoses. We obtained many useful results for improving the psychosocial support for future genetic counseling.

Research Products

• [Presentation] 三重大学病院におけるがん遺伝子パネル検査の体制づくりと現状 (2018)
  • Author(s): 望木郁代、橋詰令一郎、今井裕、池尻誠、笠井智佳、中村麻姫、宮崎綾子、北野裕子、紀平力、奥川喜永、花木良、竹内万彦、中谷中
  • Organizer: 日本家族性腫瘍学会
• [Presentation] 子どもの発症をきっかけに始まったリ・フラウメニ症候群の遺伝カウンセリング (2016)
  • Author(s): 望木郁代、宮崎綾子、中谷中
  • Organizer: 第22回日本家族性腫瘍学会学術集会
  • Place of Presentation: 愛媛県松山市ひめぎんホール
  • Year and Date: 2016-06-03
• [Presentation] 子どもの発症をきっかけに始まったリ・フラウメニ症候群の遺伝カウンセリング (2016)
  • Author(s): 望木郁代、宮崎彩子、中谷中
  • Organizer: 第22回日本家族性腫瘍学会
  • Place of Presentation: ひめぎんホール(愛媛県松山市）
  • Year and Date: 2016-06-03
• [Presentation] Longitudinal research on psychological changes in both a subject clinically diagnosed as spinocerebellar degeneration(SCD) and his spouse following genetic counseling (2016)
  • Author(s): Ikuyo Mochiki, Akira Taniguchi, Ayako Miyazaki, Kname Nakatani
  • Organizer: 第40回日本遺伝カウンセリング学会学術集会
  • Place of Presentation: 京都府京都市国立京都国際会館
  • Year and Date: 2016-04-03
• [Presentation] 遺伝カウンセリングを受けた脊髄小脳変性症患者とその配偶者の心理的変化の検討 (2016)
  • Author(s): 望木郁代、谷口彰、宮崎彩子、中谷中
  • Organizer: 第40回日本遺伝カウンセリング学会
  • Place of Presentation: 国立京都国際会館(京都府京都市）
  • Year and Date: 2016-04-03
• [Presentation] 乳がん患者姉妹で検査結果が異なった症例 (2015)
  • Author(s): 望木郁代
  • Organizer: 日本遺伝カウンセリング学会
  • Place of Presentation: 三井ガーデンホテル千葉
  • Year and Date: 2015-06-28