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Framing the nursing care plan for rare chromosomal abnormalities

Research Project

Project/Area Number 26861925
Research Category

Grant-in-Aid for Young Scientists (B)

Allocation TypeMulti-year Fund
Research Field Lifelong developmental nursing
Research InstitutionYamaguchi University

Principal Investigator

KUTSUNUGI Saeko  山口大学, 医学(系)研究科(研究院), 助教 (50513785)

Project Period (FY) 2014-04-01 – 2017-03-31
Project Status Completed (Fiscal Year 2016)
Budget Amount *help
¥2,600,000 (Direct Cost: ¥2,000,000、Indirect Cost: ¥600,000)
Fiscal Year 2016: ¥780,000 (Direct Cost: ¥600,000、Indirect Cost: ¥180,000)
Fiscal Year 2015: ¥910,000 (Direct Cost: ¥700,000、Indirect Cost: ¥210,000)
Fiscal Year 2014: ¥910,000 (Direct Cost: ¥700,000、Indirect Cost: ¥210,000)
Keywords染色体異常 / 稀少疾患 / 看護支援 / 遺伝看護
Outline of Final Research Achievements

A semi-structured interview survey was conducted for mothers of children with disease for the purpose of examining nursing support methods for rare chromosomal structural disorders. The cooperation of the survey was obtained from 16 mothers. As a result of data analysis of 6 people, 29 concepts and 5 categories were generated. In the early postnatal period, mothers were supported mentally by the existence of a place where the true intention could be expressed, the form of the medical person who worked hard for the baby, and the affirmative phrase of the surroundings. At the stage of seeking childcare for their child, mothers were supported by exchanging information with other mothers of some disabled child, and the medical person who care mothers as mothers didn't have to take childcare all by themselves. These supports influenced on the establishment of the policy of child rearing.

Report

(4 results)
  • 2016 Annual Research Report   Final Research Report ( PDF )
  • 2015 Research-status Report
  • 2014 Research-status Report
  • Research Products

    (4 results)

All 2017 2016 2015

All Journal Article (1 results) (of which Peer Reviewed: 1 results,  Acknowledgement Compliant: 1 results) Presentation (3 results) (of which Int'l Joint Research: 1 results)

  • [Journal Article] プラダー・ウィリー症候群のある児とその家族への乳児期の看護2017

    • Author(s)
      沓脱小枝子、辻野久美子、村上京子、飯田加寿子、遠藤由美子
    • Journal Title

      日本遺伝看護学会誌

      Volume: 15 Pages: 57-67

    • NAID

      40021176666

    • Related Report
      2016 Annual Research Report
    • Peer Reviewed / Acknowledgement Compliant
  • [Presentation] Prader-Willi症候群のケアギバーを対象とした勉強会の実践報告2016

    • Author(s)
      沓脱小枝子、村上京子、中込さと子
    • Organizer
      日本遺伝看護学会
    • Place of Presentation
      新潟日報メディアシップ(新潟県新潟市)
    • Year and Date
      2016-09-24
    • Related Report
      2016 Annual Research Report
  • [Presentation] Symptoms In People With Rare Chromosomal Disorders2015

    • Author(s)
      Saeko Kutsunugi, Kumiko Tsujino, Kyoko Murakami, Kazuko Iida
    • Organizer
      ISONG World Congress on Nursing and Genomics
    • Place of Presentation
      Penn Omni Hotel, Pittsburgh, USA
    • Year and Date
      2015-11-06
    • Related Report
      2015 Research-status Report
    • Int'l Joint Research
  • [Presentation] 稀少な染色体構造異常症のある児の母親における育児のプロセス-第1報-2015

    • Author(s)
      沓脱小枝子、辻野久美子、村上京子、飯田加寿子
    • Organizer
      日本遺伝看護学会第14回学術大会
    • Place of Presentation
      熊本市医師会館(熊本県、熊本市)
    • Year and Date
      2015-10-10
    • Related Report
      2015 Research-status Report

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Published: 2014-04-04   Modified: 2018-03-22  

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