| Project/Area Number |
26870714
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| Research Category |
Grant-in-Aid for Young Scientists (B)
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| Allocation Type | Multi-year Fund |
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| Research Field |
Social welfare and social work studies
Clinical psychology
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| Research Institution | Shimane University (2016)
Ritsumeikan University (2014-2015) |
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Principal Investigator |
FUKUDA Mari 島根大学, 医学部, 助教 (70706663)
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| Project Period (FY) |
2014-04-01 – 2017-03-31
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| Project Status |
Completed (Fiscal Year 2016)
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| Budget Amount *help |
¥3,250,000 (Direct Cost: ¥2,500,000、Indirect Cost: ¥750,000)
Fiscal Year 2016: ¥1,170,000 (Direct Cost: ¥900,000、Indirect Cost: ¥270,000)
Fiscal Year 2015: ¥1,040,000 (Direct Cost: ¥800,000、Indirect Cost: ¥240,000)
Fiscal Year 2014: ¥1,040,000 (Direct Cost: ¥800,000、Indirect Cost: ¥240,000)
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| Keywords | QOL / 難病 / ナラティヴ / SEIQoL-DW / 社会的孤立 |
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| Outline of Final Research Achievements |
The purpose of study was to demonstrate their individual quality of life (iQOL) on persons with neuromuscular disease and to discuss about the concept of iQOL from the perspective of Trajectory Equifinality Approach (TEA). The patients’ iQOL were measured by use of “the Schedule of the Evaluation for Individual Quality of Life -Direct Weighting”. As a result, the iQOL of patient with progressive disease was not only related to their physical disability and health, but also to social life and life events. Therefore, medical care toward improving iQOL for patients in home healthcare or long-term care facility will need to comprehensively address both the medical intervention and the iQOL including individual benefits and values. In addition, the evaluation process of the SEIQoL-DW consisting of patient and investigator provided patients with opportunity to express their daily life, and it may be also the process by which patients share autonomous decision-making with investigators.
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