1998 Fiscal Year Final Research Report Summary
Educational Program and Trial for Improced Quality of School Life for Children with Proqressive Multiple Handicaps
| Project/Area Number |
09610248
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| Research Category |
Grant-in-Aid for Scientific Research (C)
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| Allocation Type | Single-year Grants |
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| Section | 一般 |
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| Research Field |
Educaion
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| Research Institution | Gifu University |
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Principal Investigator |
MIMAKI Takashi GIFU UNIVERSITY FACULTY OF EDUCATION PROFESSOR, 教育学部, 教授 (40116108)
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| Co-Investigator(Kenkyū-buntansha) |
BEPPU Satoshi GIFU UNIVERSITY FACULTY OF EDUCATION ASSOCIATE PROFESSOR, 教育学部, 助教授 (20209208)
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| Project Period (FY) |
1997 – 1998
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| Keywords | xeroderma pigmentosum / neurological complication / developmental delay / photo sensitive dermatitis / quality of school life / early educational program |
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| Research Abstract |
Neurological manifestations in 43 patients of group A xeroderma pigmentosum were investigated. Nineteen of those patients had microcephaly with delay in head growth beginning in late infancy. After 6 years of age , the major neurological features of group A xeroderma pigmentosum developed gradually, including areflexia, sensorineural hearing impairment, and mental retardation. By 10 years of age, about one half of the patients with group A had developed spinocerebellar symptoms, such as nystagmus, ataxia, tremor, and choreoathetosis. The incidence of neurological manifestations increased with age, which is consistent with a chronic progressive degenerative disease of neurons.
Three children with group A xeroderma pigmentosum were investigated in prenary school. Two of them were educated in the special class for handicapped, and the other one in the ordinary school. This research project revealed that in the earlier infancy the patients started special program for this disease in integrated preschool, the better educational results they appreciate.
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Research Products
(8 results)
