2004 Fiscal Year Final Research Report Summary
Research on independent living of young adults with pediatric diseases and their social support
| Project/Area Number |
14510245
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| Research Category |
Grant-in-Aid for Scientific Research (C)
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| Allocation Type | Single-year Grants |
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| Section | 一般 |
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| Research Field |
社会学(含社会福祉関係)
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| Research Institution | Seinan Jo Gakuin University |
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Principal Investigator |
TANIGAWA Koji Seinan Jo Gakuin University, Faculty of Health and Welfare, Professor, 保健福祉学部, 教授 (80279364)
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| Co-Investigator(Kenkyū-buntansha) |
KOMAMATSU Hitoko National College of Nursing Japan, Faculty of Nursing, Professor, 看護学部, 教授 (20195853)
INADA Hiroshi Osaka City University, Graduate School of Medicine, Assistant, 大学院・医学研究科, 助手 (00244640)
SUZUKI Tomoyuki Hosei University, Faculty of Social Sciences, Professor, 社会学部, 教授 (80235978)
YAKEYAMA Kazunori Seinan Jo Gakuin University, Faculty of Health and Welfare, Associate Professor, 保健福祉学部, 助教授 (70331022)
MATSUURA Kazuyo Asahikawa Medical College, School of Medicine, Professor, 医学部, 教授 (10161928)
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| Project Period (FY) |
2002 – 2004
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| Keywords | pediatric disease / adolescents and young adults with pediatric diseases / independent living / carrier guidance / proceeding to upper schools / employment / marriage / images of independent living |
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| Research Abstract |
Objectives
(1)To examine challenges of circumstances and difficulties in independent living for young adults with pediatric diseases, such as childhood cancer survivors, insulin dependent diabetes mellitus patients and congenital heart disease patients.
(2)To establish guideline of social support for young adults with pediatric diseases and to make a guide book for adolescents with pediatric diseases to prepare for independent living.
Procedure
(1)Some questionnaires were made to examine challenges of circumstances and difficulties in independent living of young adults and social support. One questionnaire was for pediatricians, one for teachers of special schools for the health impaired, one for adult patients and the other for undergraduates.
(2)Questionnaires were delivered for 1000 subjects.
(3)Semi-constructed interviews with subjects who agreed with interviews were performed.
(4) Symposiums on guideline of social support for young adults with pediatric diseases and working group to make a guide book for adolescents with pediatric diseases were held.
Results
(1)567 answers of questionnaires were collected. Adolescents and young adults with pediatric diseases had many challenges for proceeding to higher levels of education, employments and marriages. In some ways the images of independent living of young adults with pediatric diseases were significantly different from those of undergraduates.
(2)Teachers of special schools for the health impaired supported less for young adults than pediatricians.
(3)Information, which encourages young adults to ask for advice, should be provided for them before they think advice is needed.
(4) The guideline of social support for adolescents and young adults with pediatric diseases and a guide book for adolescents with pediatric diseases to prepare for independent living were established. These documents can be downloaded from http://homepage1.nifty.com/k_tanigawa/carryover.html.
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Research Products
(8 results)
