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2004 Fiscal Year Final Research Report Summary

Investigation on the pediatric home care.

Research Project

Project/Area Number 14572273
Research Category

Grant-in-Aid for Scientific Research (C)

Allocation TypeSingle-year Grants
Section一般
Research Field Clinical nursing
Research InstitutionGifu University

Principal Investigator

KUWATA Hiromi  Gifu University, School of Medicine, Research Associate, 医学部, 助手 (70324316)

Co-Investigator(Kenkyū-buntansha) MURAI Shizuko  Gifu University, School of Medicine, Professor, 医学部, 教授 (10149742)
Project Period (FY) 2002 – 2004
Keywordshandicapped children / home care / support system / interview / pediatric nursing
Research Abstract

We investigated the real situation of the handicapped children at home, and considered on its support system in a nursing point of view. We interviewed 38 mothers taking care of handicapped children at home. The age of the children were distributed from ten months to nineteen years. They are 20 brain and nerve diseases, 5 congenital heart diseases, 1 respiratory disease, 4 endocrine diseases, 1 chromosome aberration, 3 nerve and muscle diseases, and 4 acquired encephalopathies.
We found the following common problems in the home care of handicapped children in Japan.
1.Mothers have to take care of children, and another family members (especially father!) are generally reluctant to put themselves into practice.
2.Mothers gradually become difficult to take care of their handicapped children according to their growth.
3.Mothers feel like a burden to take care of children
4.Mothers feel difficult in mental care of children at their puberty.
5.Mothers experienced many troubles in the school.
On the … More demands for the medical staffs, we found :
1.Improvement in the quality of medical and nursing technology.
2.Convenience for getting information of diseases and disorders.
3.Availability of the information on the social welfare.
4.Expansion and improvement the medical and social facilities.
5.Clarification of the management during the emergency.
6.Reduction of the economical burden.
7.Reinforcement of the connections of medicine, education and family.
The circumstances surrounding mothers with handicapped children have unaltered essentially. The real situations are as follows :
1.Mothers are not able to possess the actual image of the home care at the time of discharge.
2.Mothers feel like a burden especially when children need the medical care and cannot expect fathers' cooperation for the children care (especially medical care).
3.Mothers are generally sleepless with worry about their children's futures.
Moreover many problems and the difficulties appear in school life and also in adolescence.
Home care is care of children in their own home, provided by or supervised through a certified home health care or community health care agency (Child health nursing Unit 3, Adele Pillitteri, 1999). But comparing with the demands for the medical staffs, support system of pediatric home care is not enough for handicapped children now. There is hardly any public support system in consideration of mothers with handicapped children. We think the needs of family with handicapped children are essential for the reinforcement of pediatric home care. In future, we expect this research will become the basis of the support system for pediatric home care. Less

  • Research Products

    (12 results)

All 2006 2005 2004

All Journal Article (12 results)

  • [Journal Article] School life of children with type 1 diabetes in Japan2006

    • Author(s)
      Hiromi Kuwata, Toshie Katsura
    • Journal Title

      The International Nursing Conference on Prevention and management of Chronic Conditions : International Perspectives (発表予定)

    • Description
      「研究成果報告書概要(和文)」より
  • [Journal Article] School life of children with type 1 diabetes in Japan. (scheduled)2006

    • Author(s)
      Hiromi Kuwata, Toshie Katsura
    • Journal Title

      The International Nursing Conference on Prevention and management of Chronic Conditions : International Perspectives

    • Description
      「研究成果報告書概要(欧文)」より
  • [Journal Article] 心臓病を持つ子の在宅療養の現状2005

    • Author(s)
      桑田弘美, 三牧孝至
    • Journal Title

      日本特殊教育学会第43回大会 (発表予定)

    • Description
      「研究成果報告書概要(和文)」より
  • [Journal Article] The situation of children with heart diseases at home. (scheduled)2005

    • Author(s)
      Hiromi Kuwata, Takashi Mimaki
    • Journal Title

      43^<rd> Conference of The Japanese Association of Special Education

    • Description
      「研究成果報告書概要(欧文)」より
  • [Journal Article] The need for the reinforcement of pediatric home care -The status of the severely handicapped children at home in Japan-2004

    • Author(s)
      Hiromi Kuwata, Shizuko Murai, Toshie Katsura
    • Journal Title

      3^<rd> International Conference of the Post FIPSE-EU Consortium

      Pages: 58

    • Description
      「研究成果報告書概要(和文)」より
  • [Journal Article] 難病の子を持つ親の在宅療養への思い2004

    • Author(s)
      桑田弘美, 村井静子, 三牧孝至
    • Journal Title

      岐阜大学治療教育研究紀要 26

      Pages: 9-15

    • Description
      「研究成果報告書概要(和文)」より
  • [Journal Article] Mothers' anxieties about the home care of their children with incurable diseases in Japan.2004

    • Author(s)
      Hiromi Kuwata, Shizuko Murai, Toshie Katsura
    • Journal Title

      The 8^<th> International Conference on System Science in Health Care

      Pages: 253-256

    • Description
      「研究成果報告書概要(和文)」より
  • [Journal Article] 障害児の在宅ケアにおける家族への支援体制強化に関する調査研究II -難病をもつ子の母親の在宅ケアの実際-2004

    • Author(s)
      桑田弘美, 桂トシエ, 村井静子
    • Journal Title

      第35回日本看護学会論文集-地域看護-

      Pages: 33-35

    • Description
      「研究成果報告書概要(和文)」より
  • [Journal Article] The need for the reinforcement of pediatric home care -The status of the severely handicapped children at home in Japan-.2004

    • Author(s)
      Hiromi Kuwata, Shizuko Murai, Toshie Katsura
    • Journal Title

      3^<rd> International Conference of the Post FIPSE-EU Consortium 58

    • Description
      「研究成果報告書概要(欧文)」より
  • [Journal Article] Moters' anxieties about the home care of their children with incurable diseases.2004

    • Author(s)
      Hiromi Kuwata, Shizuko Murai, Takashi Mimaki
    • Journal Title

      Reports of the department of special needs education 26

      Pages: 9-15

    • Description
      「研究成果報告書概要(欧文)」より
  • [Journal Article] Mothers anxieties about the home care of their children with incurable diseases in Japan.2004

    • Author(s)
      Hiromi Kuwata, Shizuko Murai, Toshie Katsura
    • Journal Title

      The 8^<th> International Conference on system Science in Health Care

      Pages: 253-256

    • Description
      「研究成果報告書概要(欧文)」より
  • [Journal Article] The investigation on the need for the reinforcement of pediatric home care II2004

    • Author(s)
      Hiromi Kuwata, Toshie Katsura, Shizuko Murai
    • Journal Title

      35^<th> Journal of Japan Society of Nursing, -community nursing-

      Pages: 33-35

    • Description
      「研究成果報告書概要(欧文)」より

URL: 

Published: 2006-07-11  

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