Development of a self-management scale for patients with HTLV-1 associated myelopathy

2019 Fiscal Year Final Research Report

• Project/Area Number: 15K11590
• Research Category: Grant-in-Aid for Scientific Research (C)
• Allocation Type: Multi-year Fund
• Section: 一般
• Research Field: Clinical nursing
• Research Institution: Kagoshima University
• Principal Investigator: YAMAGUCHI SAORI 鹿児島大学, 医歯学域医学系, 助教 (10404477)
• Project Period (FY): 2015-04-01 – 2020-03-31
• Keywords: HTLV-1 / セルフマネジメント

Outline of Final Research Achievements

This study aimed to develop a tool for assessing the self-management of patients with HTLV-1 associated myelopathy (HAM). The process of revealing the structure of the self-management of HAM patients took longer than expected; therefore, researcher is currently halfway through the designing phase of the self-management scale. Nevertheless, given that researcher have successfully clarified some of the characteristics of HAM patients which are not present in the self-management process in patients with other intractable neurological diseases, we are planning to continue engaging in this study with the hope of publishing the results as soon as possible.

Free Research Field

看護学

Academic Significance and Societal Importance of the Research Achievements

HAM患者のセルフマネジメントスケールは、HAM 患者独自のセルフマネジメント能力を数値に置き換えその変化を捉えることで、患者が慢性の状況を管理・調整する日々の在りようを理解し、患者のQOL を本質的に支持する看護援助を具現化することが可能になるとともに、患者も自身のセルフマネジメントを査定する道具として活用することが可能になると考えるが、現時点ではセルフマネジメントスケールが完成していないため、早急に成果を公表できるように努めたい。