An evidence -based study for development of community-based palliative care system model with citizens' participation

2005 Fiscal Year Final Research Report Summary

• Project/Area Number: 16390654
• Research Category: Grant-in-Aid for Scientific Research (B)
• Allocation Type: Single-year Grants
• Section: 一般
• Research Field: Community health/Gerontological nurisng
• Research Institution: St. Luke's College of Nursing
• Principal Investigator: KAWAGOE Hiromi St.Luke's College of Nursing, Nursing, Professor, 看護学部, 教授 (50297066)
• Co-Investigator(Kenkyū-buntansha): MURASHIMA Sachiyo The University of Tokyo, Medicine, Professor, 大学院・医学系研究科, 教授 (60123204) ; SHIMANOUCHI Norio Juntendo University of Medicine, Health and sports science, Associate professor, スポーツ健康科学部, 助教授 (00053372) ; KIYOMI Asahara St.Luke's College of Nursing, Nursing, Professor, 看護学部, 教授 (80240795) ; KAKEMOTO Satori Tokyo Women's Medical University, Nursing, Associate professor, 看護学部, 助教授 (60254562) ; NAGAE Hiroko St.Luke's College of Nursing, Nursing, Lecturer, 看護学部, 教授 (10265770)
• Project Period (FY): 2004 – 2005
• Keywords: Community-based Palliative care / Palliative care team / Visiting nurse / Collaboration / Citizens' participation / Hospice volunteer / Educational program for volunteer

Research Abstract

To accomplish palliative care system model, three main components, providing palliative care by community-based palliative care team, active participation of citizens, and collaboration with the administration to establish the system, were set.
In 2004, a literature review on community palliative care team was conducted. The questionnaire for nationwide survey of community palliative care team was developed through the literature review.
In 2005, the nationwide survey was conducted to visiting nurse stations and an educational program for hospice volunteer was developed.
From the survey, we analyzed the data among 1,398 terminal cancer patients at home from 981 visiting nurse stations. The result showed that the patient died at home had tended to receive home care from a doctor and nurses in a same institution, a care manager and a care worker from other institutions. The significant correlation was found between team members whose patients died at home and objective evaluation of teamwor k. It was also found that there are less than 1% of visiting nurses with particular qualifications such as specialist cancer nurses. Special education of hospice care is necessary for visiting nurses to provide appropriate home hospice care.
The program for hospice-volunteer was developed in collaboration with citizens, specialists of home hospice care and members in public service. Preparatory meetings for 3 seminars were held with nurses, care managers, social welfare service staffs, our college staffs and 17 citizens. The program that had reflected the citizens' opinion was developed and carried out. 45 participants attended the seminars. To evaluate the program, the questionnaires before and after the program and focus group interview were conducted. It was found that the knowledge on hospice volunteer was deepened. The awareness of possibility of dying at home increased significantly after the seminars. 20 participants showed behavior change such as registration of hospice volunteer group.