Self-Management of Epilepsy - How People manage their Disease and its consequences

2019 Fiscal Year Final Research Report

• Project/Area Number: 16K04146
• Research Category: Grant-in-Aid for Scientific Research (C)
• Allocation Type: Multi-year Fund
• Section: 一般
• Research Field: Social welfare and social work studies
• Research Institution: Saitama Prefectural University
• Principal Investigator: Kawamura Chihiro (河村ちひろ) 埼玉県立大学, 保健医療福祉学部, 准教授 (00290065)
• Project Period (FY): 2016-04-01 – 2020-03-31
• Keywords: てんかん / 患者 / 当事者 / セルフマネジメント / 治療 / ソーシャルワーク / リカバリ

Outline of Final Research Achievements

Epilepsy is a common neurologic disorder. Self-management is one of the key issues for improving the health and quality of life of people with epilepsy (PWE). The current understanding is that the evidence-based epilepsy self-management programs are needed and many researchers have conducted epilepsy self-management researches in western countries. On the other hand, psychosocial researches on epilepsy are insufficient in quantity in Japan. The author has conducted a qualitative research project to collect basic information to establish practical epilepsy self-management programs in our country. 26 main themes accounted for the experiences of PWE.

Free Research Field

社会福祉学

Academic Significance and Societal Importance of the Research Achievements

てんかんのある人々自身による語りの分析を通して、どのように病に対処し生活をしているのかを描きだすことよって日常生活や社会生活において必要な支援を行う方法への示唆を得ることができる。てんかんの包括的ケアの構築と実践に対する貢献、とりわけ心理社会的側面からの支援への貢献という意義をもつ。学術的には、わが国ではまだ数少ない、てんかんの心理社会的側面の質的研究への貢献という意義がある。