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2009 Fiscal Year Self-evaluation Report

Research on ethical, legal and social issues concerning fair distribution of human materials and benefits in biomedical research

Research Project

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Project/Area Number 19602001
Research Category

Grant-in-Aid for Scientific Research (C)

Allocation TypeSingle-year Grants
Section一般
Research Field 医療における生命倫理
Research InstitutionThe University of Tokyo

Principal Investigator

MATSUI Kenji  The University of Tokyo, 大学院・医学系研究科, 特任講師 (60431764)

Project Period (FY) 2007 – 2010
KeywordsELSI / 研究倫理 / 社会医学 / 政策研究 / ゲノム
Research Abstract

ゲノム疫学研究などの多施設が共同で実施する大規模研究が国際的にも増加する中、そこで収集・研究利用されるヒト由来の生体試料や医療データ(以下、「ヒト資料」)をめぐる様々な倫理的問題が生じている。中でもヒトゲノム研究に関してはそこから生み出され得るバイオ特許やロイヤリティーなどの知的財産問題は、倫理上だけではなく政策上の問題までをも引き起こしている。本研究ではヒト資料を用いた研究に携わる国内外の研究者を対象として、ヒト資料をはじめ研究から生じ得る利益と負担の公正な配分の在り方についてインタビューを用いた意識調査を行い、倫理市政策上の国際的合意形成のための基礎資料を作成することを目的とする。

  • Research Products

    (7 results)

All 2010 2009 2008

All Presentation (7 results)

  • [Presentation] Reframing the structure of ethics for epidemiological studies2010

    • Author(s)
      松井健志, 1名
    • Organizer
      Asian Bioethics Research Network Meeting Kyoto
    • Place of Presentation
      京都市 京都大学
    • Year and Date
      2010-01-13
  • [Presentation] Ethical Issues of Research on Stored Samples, International Course on Research Ethics, Organized by Nagasaki Forum on Medical Research Ethics, in cooperation with The University of Bergen, The National Institutes of Health of USA2009

    • Author(s)
      松井健志, 1名
    • Organizer
      Nagasaki University, The University of Tokyo Center for Biomedical Ethics and Law, The Forum for Ethical Review Committees in Asia and the Western Pacific Region (FERCAP), and The Special Programme for Research and Training in Tropical Diseases (TDR)
    • Place of Presentation
      長崎市 長崎大学
    • Year and Date
      2009-06-30
  • [Presentation] Access to Samples and Publication Rights : Survey Results. International Conference on Clinical Research Ethics, Singapore2009

    • Author(s)
      松井健志, 1名
    • Organizer
      Organized by National University of Singapore, The US National Institutes of Health, WHO Southeast Asia and Western Pacific Regional Offices
    • Place of Presentation
      シンガポール
    • Year and Date
      2009-04-23
  • [Presentation] Issues on international access to stored samples : Results of an international opinion survey2009

    • Author(s)
      松井健志, 1名
    • Organizer
      International Conference on Clinical Research Ethics. Organized by The Southeast Asia Infectious Disease Clinical Research Network (SEAICRN)
    • Place of Presentation
      ベトナム(ホーチミン市)
    • Year and Date
      2009-04-20
  • [Presentation] Do donors want to re-consent every time to the use of donated samples to a new research? Japanese donors'views, Harmonising Biobank Research : Maximising Value Maximising Use.2009

    • Author(s)
      松井健志(代表), 3名
    • Organizer
      Organized by Promoting Hamonisation of Epidemiological Biobanks in Europe (PHOEBE), Public Population Project in Genomics (P3G), and Biobanking and Biomolecular Resources Research Infrastructure (BBMRI)
    • Place of Presentation
      ベルギー(ブリュッセル)
    • Year and Date
      2009-03-25
  • [Presentation] 研究資料の適切な継承に関するルール整備の必要性2009

    • Author(s)
      松井健志(代表), 5名
    • Organizer
      第19回日本疫学会総会
    • Place of Presentation
      金沢市 金沢ニューグランドホテル
    • Year and Date
      2009-01-23
  • [Presentation] Ethical issues of research on stored tissue samples & informed consent2008

    • Author(s)
      松井健志, 1名
    • Organizer
      International Course on IRB and Clinical Research Trial
    • Place of Presentation
      大韓民国 (全州市)
    • Year and Date
      2008-03-07

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Published: 2011-06-18   Modified: 2016-04-21  

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