20 years of Japanese sojourner families with children with disability: Longitudinal study using the Ecocultural Theory

2023 Fiscal Year Final Research Report

• Project/Area Number: 19K02154
• Research Category: Grant-in-Aid for Scientific Research (C)
• Allocation Type: Multi-year Fund
• Section: 一般
• Review Section: Basic Section 08020:Social welfare-related
• Research Institution: The University of Tokyo
• Principal Investigator: Ito Keiko 東京大学, 相談支援研究開発センター, 特任講師 (60534435)
• Project Period (FY): 2019-04-01 – 2024-03-31
• Keywords: エコカルチャー理論 / 家族調査 / 半構造面接 / 発達障がい / 障がい / 家族

Outline of Final Research Achievements

The aim of this paper is to report the realities of the transcultural adaptation of Japanese in Japan and Japanese sojourner families in the United States (California) with a child who suffers a developmental disorder. By surveying the 9 area or Ecocultural Family Interview (EFI) to same families who were interviewed years before, we have learned the changes in their life courses in last 20 years. In results of this interview, the most significant changes were: Related to the inclusion program of school in Japan, the father role (gender role) in Japanese families in both Japan and the United States, and changes in communication means among family members of parent associations in both countries. Providing this longitudinal qualitative information, and by continuing this longitudinal study will help to develop and construct better programs and support systems in future generation.

Free Research Field

臨床心理学

Academic Significance and Societal Importance of the Research Achievements

本調査は、１９９５年からUCLA Neuropsychiatric Instituteの障害児を持つ在米日本人家族の20年目のフォローアップ調査である。日本では海外で暮す障害・発達障害の子どもを持つ邦人家族の学術的研究報告は非常に少なく、特に本研究のような縦断研究での報告は皆無といってよい。海外在住、あるいは海外から帰国した、障害のある子どもを持つ家族のニーズや一時点での実態を適切に把握し、長い時間の中でそうした家族がどのような経験をしながらどのように変化し適応してきたのか明らかにすることで、本邦の家族研究や障害支援に大きな貢献をすることができる。