Development and practice of information sharing guidelines with siblings of children with cancer

2022 Fiscal Year Final Research Report

• Project/Area Number: 19K11003
• Research Category: Grant-in-Aid for Scientific Research (C)
• Allocation Type: Multi-year Fund
• Section: 一般
• Review Section: Basic Section 58070:Lifelong developmental nursing-related
• Research Institution: Nagoya University
• Principal Investigator: Niinomi Kazuteru 名古屋大学, 医学系研究科(保健), 准教授 (90547564)
• Project Period (FY): 2019-04-01 – 2023-03-31
• Keywords: きょうだい / 小児がん / 自分らしさ / 成長発達 / 情報共有指針

Outline of Final Research Achievements

We surveyed and analyzed the experiences of siblings of children in the active treatment phase of childhood cancer since diagnosis, in their relationships at home, in childcare and school, and with medical care.　The survey was conducted both through the perceptions of the siblings themselves, who are school age or older, and through the perceptions of the parents of siblings who are toddlers or older (including school age and older).　On the other hand, the effectiveness of regularly held workshop for siblings, "Nagoya University Hospital Sibshop," was described and partially published.

Free Research Field

小児看護学

Academic Significance and Societal Importance of the Research Achievements

小児がん診断以降、積極的な治療期にある子どものきょうだい自身や親の認識を通した体験を記述した論文は国内外ともに非常に少ない。また、そうした時期にある小児がん治療中の子どものきょうだいを対象とした医療機関で開催するワークショップの取り組みも国内外をみても多くはない。
本研究成果は、小児がんの積極的な治療期といった先進医療に臨む子どものきょうだいの体験を記述することで、彼らの本質的なニーズの理解に貢献し、そのニーズに応える日々の実践やワークショップ等の取り組みのあり方へ示唆をもたらす。