Descriptive study of cooperation in decision-making support provided by nurses as perceived by families

2023 Fiscal Year Final Research Report

• Project/Area Number: 19K19670
• Research Category: Grant-in-Aid for Early-Career Scientists
• Allocation Type: Multi-year Fund
• Review Section: Basic Section 58070:Lifelong developmental nursing-related
• Research Institution: Hamamatsu University School of Medicine
• Principal Investigator: Kageyama Yoko 浜松医科大学, 医学部, 准教授 (50566065)
• Project Period (FY): 2019-04-01 – 2024-03-31
• Keywords: 家族看護 / 意思決定支援 / 共同性 / 質的記述的研究

Outline of Final Research Achievements

This study aimed to clarify how families, who are surrogate decision-makers for patients with difficulty expressing their wishes, perceive cooperation with nurses throughout decision-making support provided by nurses. Due to the difficulties in the recruitment of research collaborators caused by the impact of the COVID-19 pandemic, the study participants were three people with experience providing long-term care to a family member at home. The study method was changed to a case study, and multiple rounds of interviews were conducted regarding how families inferred the wishes of the person requiring care and how families interacted with professionals during surrogate decision-making. Cooperation with professionals helped to support the inference of the family member's wishes and surrogate decision-making.

Free Research Field

家族看護学

Academic Significance and Societal Importance of the Research Achievements

近年、日本ではアドバンス・ケア・プランニング（ACP）の普及・啓発が進められており、診療報酬にも反映されるようになってきている。ACPを実践するためには、患者・家族と医療・ケアの専門職が共に繰り返し話し合うことが重要である。本研究の成果は、ACPを実践する際の共同的意思決定のあり方や実践の仕方について考えるための手がかりになることが期待される。