The methods of quantitative evaluation about relationships between mothers having child with rare congenital chromosomal anomaly and nurses

2010 Fiscal Year Final Research Report

• Project/Area Number: 20592582
• Research Category: Grant-in-Aid for Scientific Research (C)
• Allocation Type: Single-year Grants
• Section: 一般
• Research Field: Lifelong developmental nursing
• Research Institution: Yamaguchi University
• Principal Investigator: IINO Hidechika Yamaguchi University, 保健福祉学部, 教授 (20284276)
• Co-Investigator(Kenkyū-buntansha): HANADA Chizumi 山口大学, 医学部附属病院, 看護部長 (00380014)
• Project Period (FY): 2008 – 2010
• Keywords: 看護 / 先天異常 / 染色体異常 / 両親 / 関係性

Research Abstract

We evaluated relationships between mothers having child with 4p - syndrome and nurses.As the result, 'Caregiver Role Strain', and 'Readiness for Enhanced Family Coping' nursing diagnoses were increased in the chronic period for 4p-syndrome children. We analyzed about images related genetic terms between health professionals and non-health professionals. Image multiple factor analyses methods detected four factors, endlessness, suffering, diagnosis and fear.

Research Products

• [Journal Article] A report of two linked studies of knowledge and attitudes to prenatal screening and testing in adults of reproductive age in Japan and the UK (2008)
  • Author(s): Skirton H, Murakami K, Ito M, Nakagomi S, Iino H
  • Journal Title: Midwifery 24(3) Pages: 270-280
  • Peer Reviewed
• [Journal Article] 遺伝診療部運営のために看護管理者が準備すべきこと (2008)
  • Author(s): 飯野英親,清水洋子,猪上妙子,花田千鶴美
  • Journal Title: ナーシングビジネス 2(11) Pages: 16-17
• [Journal Article] 人材育成システムに沿ったプリセプター研修 (2008)
  • Author(s): 飯野英親,原田美佐,清水洋子,猪上妙子,花田千鶴美
  • Journal Title: 看護人材教育 5(4) Pages: 69-78
• [Journal Article] 遺伝診療部における看護実践・運用上の課題 (2008)
  • Author(s): 塩道敦子,高尾真由美,牧野良恵,飯野英親
  • Journal Title: 日本医療マネジメント学会学術集会第7回山口地方会プログラム抄録集 Pages: 27
  • Peer Reviewed
• [Presentation] The psychological strength and changes in Japanese mothers having children with chromosomal abnormalities (2010)
  • Author(s): Iino H, Tsujino K, Murakami K, Kutsunugi S, Oda H, Kajiwara E, Honda T, Ohtsuka K, Turale S
  • Organizer: International Society of Nurses in Genetics 23th Annual International Conference
  • Place of Presentation: Fairmont Dallas, Dallas, Texas, USA
  • Year and Date: 20101016-20101019
• [Presentation] 看護職の遺伝医療への関わりとケアに伴う困難感-山口県における周産期・小児領域看護職の現状- (2010)
  • Author(s): 村上京子,辻野久美子,沓脱小枝子,飯野英親,伊東美佐江
  • Organizer: 日本遺伝看護学会学術集会第9回大会
  • Place of Presentation: 慶應義塾大学保健医療学部・同大学医学部附属病院
  • Year and Date: 20101002-20101003
• [Presentation] Krabbe病児の両親の意思決定支援を中心とした看護ケアの経験 (2009)
  • Author(s): 北村亜友美,林久美,板垣智恵子,飯野英親
  • Organizer: 日本小児保健学会講演集(56巻,p.237)
  • Place of Presentation: 大阪国際会議場
  • Year and Date: 20091029-20091031
• [Presentation] Nursing practice for a child with Mucopolysaccharidosis II in enzyme replacement therapy -Case Report- (2009)
  • Author(s): Kutsunugi S, Tsujino K, Murakami K, Turale S, Tsukahara M, Iino H
  • Organizer: International Society of Nurses in Genetics 22th Annual International Conference
  • Place of Presentation: The Catamaran Resort and Spa Hotel, San Diego, USA
  • Year and Date: 20091016-20091019
• [Presentation] Experiences of genetic nursing care among perinatal and pediatric nurse professionals in Japan (2009)
  • Author(s): Murakami K, Tsujino K, Kutsunugi S, Ito M, Iino H, Tsukahara M
  • Organizer: International Society of Nurses in Genetics 22th Annual International Conference
  • Place of Presentation: The Catamaran Resort and Spa Hotel, San Diego, USA
  • Year and Date: 20091016-20091019
• [Presentation] The characteristics of nursing diagnosis for children with Wolf- Hirschhorn Syndrome (2009)
  • Author(s): Iino H, Tsukahara M, Tsujino K, Murakami K, Kutsunugi S, Oda H, Kajiwara E, Hara Y, Ohtsuka K, Honda T, Turale S
  • Organizer: International Society of Nurses in Genetics 22th Annual International Conference
  • Place of Presentation: The Catamaran Resort and Spa Hotel, San Diego, USA
  • Year and Date: 20091016-20091019
• [Presentation] Action Report in Preparation for a Certification in Genetic Nursing for Nurse Specialists (2009)
  • Author(s): Nakagomi S, Takeda Y, Morita M, Arakawa M, Mizoguchi M, Arimori N, Ando H, Ozasa Y, Iino H
  • Organizer: The 1st International Nursing Research Conference of World Academy of Nursing Science
  • Place of Presentation: Kobe International Exhibition Hall
  • Year and Date: 20090919-20090920
• [Presentation] 大学病院遺伝診療外来における看護師の役割と今後の課題 (2009)
  • Author(s): 飯野英親,高尾真由美,塩道敦子,牧野良恵,清水洋子,猪上妙子,花田千鶴美
  • Organizer: 平成20年度山口県看護研究学会プログラム集録(p.22-24)
  • Place of Presentation: 山口県看護研修会館
  • Year and Date: 20090300
• [Presentation] Women's Knowledge and Expectation of the Routine Ultrasound Screening (2008)
  • Author(s): Murakami K, Tsujino K, Iino H, Kutsunugi S, Tsukahara M
  • Organizer: International Society of Nurses in Genetics 21th Annual International Conference
  • Place of Presentation: Sheraton Society Hill, Philadelphia, USA
  • Year and Date: 20081108-20081111
• [Presentation] Creation and Utilization of a "Child-Care Notebook" for Supporting Children with Congenital Anomaly, (2008)
  • Author(s): Tsujino K, Tsukahara M, Murakami K, Iino H, Kutsunugi S, Turale S
  • Organizer: International Society of Nurses in Genetics 21th Annual International Conference
  • Place of Presentation: Sheraton Society Hill, Philadelphia, USA
  • Year and Date: 20081108-20081111
• [Presentation] Report of the International Symposium on Genetic Nursing Education in Japan (2008)
  • Author(s): Asanuma Y, Ichihara H, Iino H, Tsukahara M, Mizoguchi M, Yokoyama H, Ando H
  • Organizer: International Society of Nurses in Genetics 21th Annual International Conference
  • Place of Presentation: Sheraton Society Hill, Philadelphia, USA
  • Year and Date: 20081108-20081111
• [Presentation] Pilot research on Japanese genetic nursing education by e-learning (2008)
  • Author(s): Iino H, Tsukahara M, Mizoguchi M, Yokoyama H, Asanuma Y, Ichihara H, Turale S, Ando H
  • Organizer: International Society of Nurses in Genetics 21th Annual International Conference
  • Place of Presentation: Sheraton Society Hill, Philadelphia, USA
  • Year and Date: 20081108-20081111
• [Presentation] Perception and Expectation among Women Attending a Routine Ultrasound Screening in Japan (2008)
  • Author(s): Murakami K, Tsujino K, Ito M, Turale S, Iino H, Tsukahara M
  • Organizer: The 19th STTI International Nursing Research Congress
  • Place of Presentation: Singapore, Suntec Singapore International Convention and Exhibition Center
  • Year and Date: 20080707-20080711