Development of a disaster preparedness support program that can be used in outpatient care - for patients with intractable neurological diseases -

2024 Fiscal Year Final Research Report

• Project/Area Number: 20K11085
• Research Category: Grant-in-Aid for Scientific Research (C)
• Allocation Type: Multi-year Fund
• Section: 一般
• Review Section: Basic Section 58080:Gerontological nursing and community health nursing-related
• Research Institution: Niigata University of Health and Welfare
• Principal Investigator: UDA Yuko 新潟医療福祉大学, 看護学部, 教授 (70597690)
• Co-Investigator(Kenkyū-buntansha): 稲垣 千文 新潟医療福祉大学, 看護学部, 講師 (10645716) ; 木下 直彦 新潟医療福祉大学, 医療経営管理学部, 教授 (50734232) ; 石塚 敏子 新潟医療福祉大学, 看護学部, 教授 (80339944) ; 桶谷 涼子 新潟医療福祉大学, 看護学部, 講師 (30851191) ; 土田 千歳 新潟医療福祉大学, 看護学部, 助教 (60899615)
• Project Period (FY): 2020-04-01 – 2025-03-31
• Keywords: 神経難病 / 災害備え / 外来看護 / 災害備え支援プログラム

Outline of Final Research Achievements

In 2023, a nationwide survey was conducted with the cooperation of 28 prefectural branches of the Japan Parkinson’s Disease Association to develop a draft “Self-Assessment Checklist for Disaster Preparedness of People with Parkinson’s Disease.” The survey items were based on Protection Motivation Theory, incorporating elements such as coping appraisal, self-efficacy, depression scale, and will to live. A total of 2,258 questionnaires were distributed, with 513 collected and 440 valid responses. Respondents were evenly split by gender; 88% lived with family members; most were aged 60 or older; and 35% had not been certified for long-term care. Multiple regression analysis identified factors associated with disaster preparedness awareness, which were used as indicators for the draft checklist. The study is currently under submission for publication.

Free Research Field

難病看護、地域看護、災害看護

Academic Significance and Societal Importance of the Research Achievements

近年多発している自然災害への備えは全ての人に必要である。その中でも、本研究の対象である神経難病患者（パーキンソン病）は介護者のみならず、本人自身が意識して備えることが重要である。そのため、災害の備え行動に消極的・拒否的なパーキンソン病患者の行動・心理面の要因外来看護場面で簡便に把握できるチェックシートは
看護師の介入で、災害備え指導が実施できるプログラム開発が最終目的である。日本難病看護学会誌に論文投稿中である。