Verification of the effect of genetic risk education on female-specific cancers on the life plan among working-age women

2023 Fiscal Year Final Research Report

• Project/Area Number: 20K18159
• Research Category: Grant-in-Aid for Early-Career Scientists
• Allocation Type: Multi-year Fund
• Review Section: Basic Section 56040:Obstetrics and gynecology-related
• Research Institution: Tokyo Medical and Dental University
• Principal Investigator: Kohbata Hiroko 東京医科歯科大学, 統合研究機構, 講師 (90762542)
• Project Period (FY): 2020-04-01 – 2024-03-31
• Keywords: 患者教育 / 乳癌 / 遺伝カウンセリング / 患者サポート

Outline of Final Research Achievements

The education booklet for breast cancer created by certified genetic counselors was widely distributed to breast cancer patients, their families (BC patients/families), and medical professionals. A total of more than 3,700 booklets were requested from 98 medical institutions and 13 patient organizations nationwide. According to the results of the questionnaire survey, 98.3% of medical professionals and 100% of BC patients/families were satisfied with the content of the booklet. 94.4% of medical professionals and 98.4% of BC patients/families answered that it was easy to understand. Medical professionals were concerned about the amount of information in the booklet, but 79% of BC patients/families answered that it was appropriate. Currently, the booklet data is published on the web and can be used continuously.

Free Research Field

遺伝カウンセリング

Academic Significance and Societal Importance of the Research Achievements

当初、本教材冊子は医療者が直接アクセスできない患者家族を対象としたが、医療機関では患者に対する情報提供ツールとして利用されている実態が明らかとなった。遺伝カウンセリング以外の臨床場面において本冊子の利便性・有用性は高いと思われる。また、役立つ項目については医療者と当事者で差が生じていた。医療機関においては、当事者の状況やニーズに合わせた活用が期待される。また、調査より教材冊子は当事者の意識の底上げに有用である可能性が高いことが示唆された。現在、冊子データはウェブ上で公開されており、継続的な利用が望まれる。