Information Needs Exploration for Families of Patients with Interstitial Lung Disease and Survey of Impact on HRQOL by Consultants

2023 Fiscal Year Final Research Report

• Project/Area Number: 20K19090
• Research Category: Grant-in-Aid for Early-Career Scientists
• Allocation Type: Multi-year Fund
• Review Section: Basic Section 58060:Clinical nursing-related
• Research Institution: Kobe City College of Nursing (2022-2023); Kyoto University (2020-2021)
• Principal Investigator: Sato Ryuhei 神戸市看護大学, 看護学部, 准教授 (10752058)
• Project Period (FY): 2020-04-01 – 2024-03-31
• Keywords: 間質性肺疾患 / 家族 / 情報ニーズ / HRQOL

Outline of Final Research Achievements

The study had two objectives. The first was to determine whether there are differences in information needs between outpatients with ILD and their family caregivers and whether these differences depend on long-term oxygen therapy use. Sixty-five patients and their family members were analyzed, and their information needs differed according to their position and whether they were on long-term oxygen therapy. Second, the Medical Outcomes Study 36-Item Short-Form Health Survey was used to compare whether the health status of family members of patients with interstitial lung disease differed depending on whether they had a consultant or not. The analysis included 58 patients and their family caregivers, and there were no differences in health status by the presence or absence of a consultant.

Free Research Field

呼吸器内科

Academic Significance and Societal Importance of the Research Achievements

第1の研究により、患者とその家族の情報ニーズは同じではなく、長期酸素療法の有無によっても情報ニーズの様相が異なることが明らかになった。臨床における医療提供者は、情報を受け取る側の立場、患者の状態に応じた適切な時期、必要な情報を考慮すべきであることが示唆された。第2の研究により、家族は健康状態が良い状態であり、相談者の有無でその家族の健康状態は左右されないことが分かった。これらの研究成果を踏まえ、今後は患者とその家族を支援する効果的な支援プログラムを構築する研究が望まれる。