2023 Fiscal Year Final Research Report
Development of a long-term ongoing support program for families caring for children with severe mental and physical disabilities
| Project/Area Number |
20K23199
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| Research Category |
Grant-in-Aid for Research Activity Start-up
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| Allocation Type | Multi-year Fund |
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| Review Section |
0908:Society medicine, nursing, and related fields
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| Research Institution | Ibaraki Prefectural University of Health Science |
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Principal Investigator |
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| Project Period (FY) |
2020-09-11 – 2024-03-31
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| Keywords | 重症心身障害児 / 家族 / 施設入所 / 意思決定プロセス / 多職種連携 |
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| Outline of Final Research Achievements |
The purpose of this study is to clarify the decision-making process from the time a family member who has lived with a severely ill child at home for a long period of time begins to feel the limitations of living at home and considers institutionalization until the decision is made to admit the child.
The main caregiver's or family member's poor health is often the trigger for considering institutionalization. On the other hand, there were also families who were looking ahead to their children's future and considering an institution as a safety net. More and more families will be living while making good use of social resources. They were making decisions about admission after gathering information and consulting with a variety of people. Many of the sources of information were mothers' friends. Decisions were made with the desire to take the path that seemed best for the current situation. Many requested emotional support from nurses.
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| Free Research Field |
生涯発達看護学関連
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| Academic Significance and Societal Importance of the Research Achievements |
重症児家族を長期継続支援するために、在宅継続困難になり易い時期や要因、その時の家族の思いが明らかになることは、これから増加するであろう在宅継続の限界を迎えた家族の理解やその後の支援プログラム開発への一助になると考える。
また、社会資源をうまく活用しながら在宅生活を継続している重症児家族が増加している現状が明らかとなった。
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