2011 Fiscal Year Final Research Report
Thick description of the life of intractable diseases using narrative methods
| Project/Area Number |
21653074
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| Research Category |
Grant-in-Aid for Challenging Exploratory Research
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| Allocation Type | Single-year Grants |
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| Research Field |
Clinical psychology
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| Research Institution | Ritsumeikan University |
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Principal Investigator |
SATO Tatsuya 立命館大学, 文学部, 教授 (90215806)
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| Project Period (FY) |
2009 – 2011
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| Keywords | ナラティブ / QOL / SEIQOL / TEM / 医療心理学 / 難病 / 質的研究 |
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| Research Abstract |
The purpose of this study is to psychology for treating the life of Nambyo(intractable diseases) patients. Many instruments used to measure Health Related QOL focus narrowly on physical functioning and disregard the well-being of patients. I use the qualitative and rather new methodology for treating the patients' lives. These are SEIQOL(the Schedule for the Evaluation of Individual Quality of Life) and TEM(Trajectory Equifinality Model). In empirical study, SEIQOL was conducted for describing a patient's QOL-related experiences for three years. This longitudinal survey reveals the maintenance and transformation of patient's QOL instead of patient's deterioration of disease. In theoretical part, TEM's basic methodological tools were invented and the model of psychological self which is called "mountain range selves" was proposed. A possibility of a new sub discipline of psychology concerned with the lives of Nambyo(intractable diseases) patients has been established by this study.
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Research Products
(28 results)
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[Presentation] HOW ALS PATIENTS EXPERIENCE AND MAKE SENSE THE LIFE WITH ILLNESS2012
Author(s)
Hidaka, T., Mizuki, S., Fukuda, M., Akasaka, M., and Sato, T.
Organizer
The 7th International Conference on Rare diseases & Orphan Drugs 2012
Place of Presentation
University of Tokyo, Japan
Year and Date
2012-02-05
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[Book] 心理学・入門2011
Author(s)
サトウタツヤ・渡邊芳之
Total Pages
1-20, 21-46, 91-126, 193-210, 220-234
Publisher
有斐閣
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[Book] Understanding a Personality as a Whole. in Toomera, A., & Valsiner, J.(Eds.) Methodological Thinking in Psychology : 60 Years Gone Astray2010
Author(s)
Sato, T., Wakabayashi, K., Nameda, A., Yasuda, Y., & Watanabe, Y.
Total Pages
89-119
Publisher
InfoAge Publications
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[Remarks] 日本学術振興会研究成果の社会還元・普及事業ひらめき☆ときめきサイエンス～ようこそ大学の研究室へ～KAKENHI小中高校生のためのプログラムこの企画は3年間にわたって行い、難病(ALS)患者であるH氏に協力を依頼して難病と共に生きることや生きやすい技術の工夫について小中学生と共に考えた。
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[Remarks] サトウタツヤ2009/09/21さまざまな困難をのりこえるための家族・仲間の大切さ-患者さんから学ぶ於・立命館大学
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[Remarks] サトウタツヤ2011/08/04人生with病い於・立命館大学
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