Current status of children with brain tumor and their families : For support of family health and development

2011 Fiscal Year Final Research Report

• Project/Area Number: 21659516
• Research Category: Grant-in-Aid for Challenging Exploratory Research
• Allocation Type: Single-year Grants
• Research Field: Lifelong developmental nursing
• Research Institution: The University of Tokyo
• Principal Investigator: KAMIBEPPU Kiyoko 東京大学, 大学院・医学系研究科, 准教授 (70337856)
• Co-Investigator(Renkei-kenkyūsha): NISHIKAWA Ryo 埼玉医科大学, 医学部, 教授 (90237678) ; YANAGISAWA Takaaki 埼玉医科大学, 国際医療センター, 准教授 (40333091)
• Project Period (FY): 2009 – 2011
• Keywords: 家族看護学 / 小児 / サバイバー / 親 / 脳腫瘍 / がん / 健康関連QOL / 認知機能

Research Abstract

We designed and conducted a multicentre cross-sectional observational study on 138 survivors with pediatric brain tumor and their parents in Japan, using self-report questionnaires and test battery for cognitive functions. In addition, their primary doctors were asked to complete survey sheets. Participants(especially those over 18 years old) were from higher socioeconomic families, which indicated that economic limitation might disrupt survivors' hospital visit. Ninety-one survivors(66%) had one or more late effect, and 35 survivors(25%) had two or more late effect. They still needed to continue frequent hospital/clinic visit in adulthood. We will analyze psychosocial/cognitive data in detail.

Research Products

• [Journal Article] 日本の医療機関といわゆる院内学級における小児がん患者の復学に向けた取り組み:質問紙調査による現状分析 (2012)
  • Author(s): 上別府圭子, 東樹京子, 武田鉄郎, 堀部敬三
  • Journal Title: 日本小児血液・がん学会雑誌 Volume: 49巻 Pages: 79-85
  • Peer Reviewed
• [Journal Article] Factors influencing self-and parent-reporting health-related quality of life in children with brain tumors (2012)
  • Author(s): Sato I, Higuchi A, Yanagisawa T, Mukasa A, Ida K, Sawamura Y, Sugiyama K, Saito N, Kumabe T, Terasaki M, Nishikawa R, Ishida Y, Kamibeppu K
  • Journal Title: Quality of Life Research
  • DOI: DOI:10.1007/s11136-012-0137-3
  • Peer Reviewed
• [Journal Article] Posttraumatic stress symptom(PTSS) and posttraumatic growth(PTG) in parents of childhood, adolescent and young adult patients with high-grade osteosarcoma (2011)
  • Author(s): Yonemoto T, Kamibeppu K, Ishii T, Iwata S, Tatezaki S
  • Journal Title: International Journal of Clinical Oncology
  • DOI: DOI:10.1007/s10147-011-0286-3
  • Peer Reviewed
• [Journal Article] Quality of life reporting by parent-child dyads in Japan grouped by depressive status (2011)
  • Author(s): Kobayashi K, Kamibeppu K
  • Journal Title: Nursing and Health Sciences Volume: 13巻 Pages: 170-177
  • DOI: DOI:10.1111/j.1442-2018.2011.00595.x
  • Peer Reviewed
• [Journal Article] Development of the Japanese version of the Pediatric Quality of Life Inventory Brain Tumor Module (2010)
  • Author(s): Sato I, Higuchi A, Yanagisawa T, Mukasa A, Ida K, Sawamura Y, Sugiyama K, Saito N, Kumabe T, Terasaki M, Nishikawa R, Ishida Y, Kamibeppu K
  • Journal Title: Health and Quality of Life Outcomes Volume: 8巻 Pages: 38
  • DOI: DOI:10.1186/1477-7525-8-38
  • Peer Reviewed
• [Journal Article] 小児脳腫瘍患者のQOL (2010)
  • Author(s): 佐藤伊織, 上別府圭子
  • Journal Title: 日本臨牀 Volume: 68巻 Pages: 657-661
  • URL: http://www.molcom.jp/item_detail/56182/
• [Presentation] 小児期・思春期・若年成人期の骨肉腫患者の両親における心的外傷後ストレス症状および心的外傷後の成長 (2011)
  • Author(s): 米本司,上別府圭子,石井猛,岩田慎太郎,館崎愼一郎
  • Organizer: 第53回日本小児血液・がん学会学術集会
  • Place of Presentation: ベイシア文化ホール・前橋商工会議所(群馬県)
  • Year and Date: 20111125-27
• [Presentation] 小児脳腫瘍経験者の身体的な晩期合併症の実態:多施設協同横断調査 (2011)
  • Author(s): 佐藤伊織,樋口明子,柳澤隆昭,村山志保,隈部俊宏,杉山一彦,武笠晃丈,斎藤延人,澤村豊,寺崎瑞彦,澁井壯一郎,高橋潤,西川亮,石田也寸志,上別府圭子
  • Organizer: 第53回日本小児血液・がん学会学術集会
  • Place of Presentation: ベイシア文化ホール・前橋商工会議所(群馬県)
  • Year and Date: 20111125-27
• [Presentation] 小児白血病児の家族システムユニットの変化:メタエスノグラフィーを用いた質的研究のメタ統合 (2011)
  • Author(s): 小林京子,上別府圭子
  • Organizer: 日本家族看護学会第18回学術集会
  • Place of Presentation: 国立京都国際会館(京都府)
  • Year and Date: 20110625-26
• [Presentation] 脳腫瘍を持つ子どもとその保護者が関心を持つ心理社会的予後の要素 (2010)
  • Author(s): 佐藤伊織,樋口明子,柳澤隆昭,武笠晃丈,井田孔明,澤村豊,杉山一彦,斎藤延人,隈部俊宏,寺崎瑞彦,西川亮,石田也寸志,上別府圭子
  • Organizer: 第26回日本小児がん学会
  • Place of Presentation: 大阪国際会議場(大阪府)
  • Year and Date: 20101217-19
• [Presentation] 脳腫瘍を持つ子どもの健康関連QOL測定:自己評価と保護者評価それぞれへの関連要因 (2010)
  • Author(s): 佐藤伊織,樋口明子,柳澤隆昭,武笠晃丈,井田孔明,澤村豊,杉山一彦,斎藤延人,隈部俊宏,寺崎瑞彦,西川亮,石田也寸志,上別府圭子
  • Organizer: 第28回日本脳腫瘍学会学術集会
  • Place of Presentation: 軽井沢プリンスホテルウエスト(長野県)
  • Year and Date: 20101128-30
• [Presentation] Development of the Japanese version of Pediatric Quality of Life Inventory(PedsQLTM) Brain Tumor Module (2009)
  • Author(s): Sato I, Higuchi A, Yanagisawa T, Mukasa A, Ida K, Sawamura Y, Sugiyama K, Saito N, Kumabe T, Terasaki M, Nishikawa R, Ishida Y, Kamibeppu K
  • Organizer: The 3rd Quadrennial Meeting of the World Federation of Neuro-Oncology & the 6th Meeting of the Asian Society for Neuro-Oncology
  • Place of Presentation: パシフィコ横浜(神奈川県)
  • Year and Date: 20090511-14
• [Remarks]
  • URL: http://park.itc.u-tokyo.ac.jp/fn/PedsQL/index.html