2023 Fiscal Year Final Research Report
The role and function of nurses on transitional care for Prader-Willi Syndrome in oral health care
| Project/Area Number |
21K10844
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| Research Category |
Grant-in-Aid for Scientific Research (C)
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| Allocation Type | Multi-year Fund |
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| Section | 一般 |
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| Review Section |
Basic Section 58070:Lifelong developmental nursing-related
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| Research Institution | Fukuoka Nursing College |
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Principal Investigator |
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| Co-Investigator(Kenkyū-buntansha) |
青野 広子 福岡看護大学, 看護学部, 講師 (50733870)
中村 加奈子 福岡女学院看護大学, 看護学部, 准教授 (90584516)
永野 英美 福岡看護大学, 看護学部, 助手 (00946668)
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| Project Period (FY) |
2021-04-01 – 2024-03-31
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| Keywords | プラダーウィリー症候群 / 養育者 / 口腔ケア |
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| Outline of Final Research Achievements |
In pursuit of enhancing oral health among individuals with Prader-Willi Syndrome (PWS) and facilitating a seamless transition in outpatient oral care and medical support, a research investigation was conducted to explore the role of nurses in outpatient settings as desired by caregivers nurturing individuals with PWS.
The participants comprised five mothers and two fathers, with an average age of 53 ± 4.8 years, among whom four were currently employed and three were full-time homemakers.
Analysis of the narratives provided by caregivers of individuals with PWS revealed three categories encapsulating the roles anticipated of nurses: 'Supporting the autonomy of children based on the disease characteristics of PWS' 'Sharing information among nurses and between nurses and physicians to integrate information into dental care support' and 'Ensuring the safety of children during outpatient consultations'.
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| Free Research Field |
小児看護学
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| Academic Significance and Societal Importance of the Research Achievements |
PWS児が歯科診療を経験する際に、養育者が過去の受診経験から看護師に期待している役割が明らかになった。この結果を基に、PWS児にケアする外来看護師が準備した方が良い学習内容、継続教育に有益となる。
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