Development of Decision-Making Support Model for Adolescent Cancer Patients at the End of Life

2023 Fiscal Year Final Research Report

• Project/Area Number: 21K21207
• Research Category: Grant-in-Aid for Research Activity Start-up
• Allocation Type: Multi-year Fund
• Review Section: 0908:Society medicine, nursing, and related fields
• Research Institution: Mukogawa Women's University
• Principal Investigator: OGASAWARA Hitoshi 武庫川女子大学, 看護学部, 助教 (90911404)
• Project Period (FY): 2021-08-30 – 2024-03-31
• Keywords: 思春期がん / エンドオブライフ / 意思決定支援

Outline of Final Research Achievements

In FY2022, the first study was an interview survey of nurses on “Nursing Support Implemented in Decision-Making Situations with Patients or Parents at the End of Life of Adolescent Childhood Cancer Patients” Nine nurses from five facilities were interviewed. As a result of the analysis, 65 nursing practices were extracted.
In FY2023, a second study was conducted as a two-stage Delphi survey of 184 nurses with at least 5 years of pediatric nursing experience who had experience in end-of-life care of adolescent cancer patients. 7 items obtained from free-text descriptions were added to the first survey. Five items with a consent rate of less than 80% were excluded from the two surveys, and consensus was ultimately obtained from nurses on 65 items of practice.

Free Research Field

生涯発達看護学分野

Academic Significance and Societal Importance of the Research Achievements

本研究により、思春期がん患者のエンドオブライフケア経験のある看護師からコンセンサスの得られた「思春期がん患者のエンドオブライフにおける意思決定支援」が明らかとなった。これにより、これまで看護師の暗黙知で行われていたエンドオブライフの意思決定支援方法についての示唆が得られる。これにより、経験の少ない若手看護師にとっても介入の指針となり患者や家族に対しての意思決定支援に対しての困難感が軽減され、介入時間が増えることで、思春期がん患者のエンドオブライフケアの質の向上に寄与できると考える。