2013 Fiscal Year Final Research Report
Direction of nursing activities in collaboration with Genetic support group
| Project/Area Number |
22390431
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| Research Category |
Grant-in-Aid for Scientific Research (B)
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| Allocation Type | Single-year Grants |
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| Section | 一般 |
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| Research Field |
Lifelong developmental nursing
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| Research Institution | University of Yamanashi |
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Principal Investigator |
NAKAGOMI Satoko 山梨大学, 医学工学総合研究部, 教授 (10254484)
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| Co-Investigator(Kenkyū-buntansha) |
KUKINAKA Chieko 熊本大学, 生命科学研究部, 准教授 (60274726)
TAKEDA Yuko 慶應義塾大学, 看護学部 (80164903)
SASAKI Noriko 長崎大学, 医歯(薬)学総合研究科, 助教 (90315268)
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| Project Period (FY) |
2010-04-01 – 2014-03-31
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| Keywords | 遺伝看護 / 表皮水疱症 / ダウン症候群 / プラダー・ウィリィ症候群 / ハンチントン病 / 先天性代謝異常症 / 家族性腫瘍 / 人工死産 |
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| Research Abstract |
Purpose: This research project explores the direction of self-help groups of genetic disorders, also known as genetic support groups, as well as their collaboration with nurses.Method: There were seven collaborative groups: Down syndrome, Epidermolysis Bullosa, Pradar-willi syndrome, Huntington disease, familial cancer, stillbirth with congenital abnormality and inborn errors of metabolisms. Patients and families talked about lifestyles and both hidden problems and joys.
Results: People with genetic disorders hope to bring peer support to genetic nursing care. Nursing issues in the 7 support groups were managing symptoms in daily life, following up on their sense of worth and ensuring another environment outside of work.
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