2013 Fiscal Year Final Research Report

Change in role recognition of ALS patients:Given up roles, maintained roles, and acquired roles

Research Project

Project/Area Number	22530599
Research Category	Grant-in-Aid for Scientific Research (C)
Allocation Type	Single-year Grants
Section	一般
Research Field	Social welfare and social work studies
Research Institution	Oita University (2012-2013) Niigata University (2010-2011)
Principal Investigator	SUMIDA YOSHIMI 大分大学, 福祉社会科学研究科, 教授 (90377185)
Co-Investigator(Renkei-kenkyūsha)	SASAKI Kouichi 日本ALS協会, 東京都支部
Project Period (FY)	2010-04-01 – 2013-03-31
Keywords	障害受容 / 家族役割 / 社会役割 / アイデンティティ / 筋萎縮性側索硬化症
Research Abstract	The process of identity rebuilding following identity destruction with the progression of ALS was found to be related to the process of moving from role loss to role continuation and new role acquisition. Regardless of whether the patient was a mechanical ventilator user, 50% perceived themselves as having a familial role. Patients with a higher number of sources of enjoyment had higher levels of perception of a societal role. It was also possible for patients to have sources of enjoyment regardless of mechanical ventilator use or severity of disability. These findings suggest that regaining a perception of role through sources of enjoyment increases the possibility of rebuilding identity.

(5 results)