2014 Fiscal Year Final Research Report
Hospice care for at-home ALS patients by using action-research method
| Project/Area Number |
23593425
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| Research Category |
Grant-in-Aid for Scientific Research (C)
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| Allocation Type | Multi-year Fund |
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| Section | 一般 |
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| Research Field |
Community health/Gerontological nurisng
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| Research Institution | Gunma University |
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Principal Investigator |
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| Co-Investigator(Kenkyū-buntansha) |
IIDA Mitsue 群馬県立県民健康科学大学, 看護学部, 准教授 (80272269)
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| Project Period (FY) |
2011-04-28 – 2015-03-31
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| Keywords | 筋萎縮性側索硬化症 / ALS / 在宅ケア / 終末期ケア / 死亡 / ホスピスケア / 看取り / 呼吸不全 |
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| Outline of Final Research Achievements |
The purpose of this study was to develop hospice care for in-home ALS patients who do not want to initiate tracheostomy positive pressure ventilation. Many unpredicted situations approaching death were emerged: abrupt death, or use of life-sustaining therapy on their respiratory failure. Health care providers need to support for the decision-making about medical treatment and place of death, provide high-quality palliative care, and prepare advanced directives from early stage, and share the goal of terminal care among team members, based on multi-disciplinary collaboration in order to accomplish the patient’s desire about place of death. We recommend the further study to develop palliative care by various medical treatments for respiratory insufficiency.
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| Free Research Field |
神経難病看護学
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