2015 Fiscal Year Final Research Report
Training program about care practice for people with Prader-willi syndrome in adulthood
| Project/Area Number |
25670968
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| Research Category |
Grant-in-Aid for Challenging Exploratory Research
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| Allocation Type | Multi-year Fund |
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| Research Field |
Lifelong developmental nursing
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| Research Institution | University of Yamanashi |
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Principal Investigator |
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| Co-Investigator(Kenkyū-buntansha) |
KATO Yoshiro 関西福祉科学大学, 健康福祉学部健康科学科, 講師 (40615829)
SASAKI Noriko 長崎大学, 医歯(薬)学総合研究科, 助教 (90315268)
KUTSUNUGI Saeko 山口大学, 医学(系)研究科, 助教 (50513785)
GOTO Kiyoe 独立行政法人国立病院機構新潟病院(臨床研究部), 臨床心理・遺伝カウンセリング研究室, 臨床心理・遺伝カウンセリング研究室室長 (30331531)
KUKINAKA Chieko 熊本大学, 生命科学研究部, 准教授 (60274726)
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| Research Collaborator |
MATSUDO Yoshiko
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| Project Period (FY) |
2013-04-01 – 2016-03-31
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| Keywords | プラダー・ウィリー症候群 / 遺伝看護 / ケアギバー / グループホーム |
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| Outline of Final Research Achievements |
Participants of this study were fifteen people with Prader-Willi Syndrome in adulthood. They were getting enough to eat from three years and experienced over BMI 25. Parent were distressed of the food environment and behavior management. Four were onset diabetes when they were school age. After diagnosis, parents seek information about PWS, they removed temptation, established good eating routines, offered a wide variety of healthy food, and started fitness or walking．Finally every participant’s family noticed people with PWS needed to be a 24 hour type of supervision. The PWS-specific environments could keep themselves good condition but overworking for family. 14 participants work or worked at social-welfare work place or part time job. Every participant wishes to work or to be useful.
People with PWS needed supervision by trained caregiver and family. Caregiver need to understand about the advantage and disadvantage of people with PWS.
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| Free Research Field |
遺伝看護学
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