Support at each lifecycle stage to enhance the resiliency of families having children with Down syndrome

2017 Fiscal Year Final Research Report

• Project/Area Number: 26463374
• Research Category: Grant-in-Aid for Scientific Research (C)
• Allocation Type: Multi-year Fund
• Section: 一般
• Research Field: Lifelong developmental nursing
• Research Institution: University of Yamanashi
• Principal Investigator: TAKATAYA Kumiko 山梨大学, 大学院総合研究部, 医学研究員 (20125983)
• Co-Investigator(Renkei-kenkyūsha): MIZUNO Eriko 山梨大学, 大学院総合研究部, 教授 (40327979) ; YAMAZAKI Yoko 山梨大学, 大学院総合研究部, 教授 (10248867) ; KANZAKI Yuki 山梨大学, 大学院総合研究部, 准教授 (80381713)
• Project Period (FY): 2014-04-01 – 2018-03-31
• Keywords: ダウン症候群 / 家族支援 / 父親の思い / きょうだいの思い / 成長

Outline of Final Research Achievements

This study was done to clarify the views of each family member for supporting the family having Down syndrome. The participants were recruited from the Local Association of Japan Down Syndrome Society.
Through interviews of 9 fathers of child with Down syndrome, “crisis of life” “emotional turmoil”, “attitudes toward the disability”, “parental responsibility”, “realization of fatherhood”, “difference of feelings between mother and father” and “contact with people” were revealed as the expressions of feelings of fathers after childbirth.
From the essays six major categories were extracted: 1) catch the existence of my brother/sister with DS negatively; 2) catch the existence of my brother/sister with DS positively; 3) recognize the good character of my brother/sister with DS; 4) process of becoming adult; 5) Down syndrome as the individual; 6) indignation to the society.

Free Research Field

母子保健