Framing the nursing care plan for rare chromosomal abnormalities

2016 Fiscal Year Final Research Report

• Project/Area Number: 26861925
• Research Category: Grant-in-Aid for Young Scientists (B)
• Allocation Type: Multi-year Fund
• Research Field: Lifelong developmental nursing
• Research Institution: Yamaguchi University
• Principal Investigator: KUTSUNUGI Saeko 山口大学, 医学(系)研究科(研究院), 助教 (50513785)
• Project Period (FY): 2014-04-01 – 2017-03-31
• Keywords: 染色体異常 / 稀少疾患 / 看護支援 / 遺伝看護

Outline of Final Research Achievements

A semi-structured interview survey was conducted for mothers of children with disease for the purpose of examining nursing support methods for rare chromosomal structural disorders. The cooperation of the survey was obtained from 16 mothers. As a result of data analysis of 6 people, 29 concepts and 5 categories were generated. In the early postnatal period, mothers were supported mentally by the existence of a place where the true intention could be expressed, the form of the medical person who worked hard for the baby, and the affirmative phrase of the surroundings. At the stage of seeking childcare for their child, mothers were supported by exchanging information with other mothers of some disabled child, and the medical person who care mothers as mothers didn't have to take childcare all by themselves. These supports influenced on the establishment of the policy of child rearing.

Free Research Field

遺伝看護学