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Study on the home nursing care for the patients with neuromuscular disease who have chronic and progressive respiratory disorder

Research Project

Project/Area Number 08672715
Research Category

Grant-in-Aid for Scientific Research (C)

Allocation TypeSingle-year Grants
Section一般
Research Field Nursing
Research InstitutionTokyo Metropolitan Institute for Neuroscience

Principal Investigator

USHIGOME Miwako  Tokyo Metropolitan Institute for Neuroscience, Department of Health and Medical Sociology, Research Scientist, 東京都神経科学総合研究所・社会学研究部門, 副参事研究員 (10176654)

Co-Investigator(Kenkyū-buntansha) KASAI Hideko  Tokyo Metropolitan Institute for Neuroscience, Department of Health and Medical Sociology, Research Scientist, 東京都神経科学総合研究所・社会学研究部門, 研究員
TOKUYAMA Sachiko  Tokyo Metropolitan Institute for Neuroscience, Department of Health and Medical Sociology, Research Scientist, 東京都神経科学総合研究所・社会学研究部門, 主事研究員 (30291941)
WAKO Fumiko  Tokyo Metropolitan Institute for Neuroscience, Department of Health and Medical Sociology, Research Scientist, 東京都神経科学総合研究所・社会学研究部門, 主事研究員 (70260312)
KATO Syuichi  Tokyo Metropolitan Institute for Neuroscience, Department of Neuropathology, Research Scientist, 東京都神経科学総合研究所・神経病理学研究部門, 研究員
KAWAMURA Sawako  Tokyo Metropolitan College of Health Sciences, Divison of Nursing Sciences, Professor, 看護学科, 教授 (30186142)
長谷川 美津子  (財)東京都神経科学総合研究所, 社会学研究部門, 研究員
徳山 祥子  (財)東京都神経科学総合研究所, 社会学研究部門, 主事研究員
江澤 和江  (財)東京都神経科学総合研究所, 社会学研究部門, 主事研究員 (80207430)
Project Period (FY) 1996 – 1998
Project Status Completed (Fiscal Year 1998)
Budget Amount *help
¥2,600,000 (Direct Cost: ¥2,600,000)
Fiscal Year 1998: ¥500,000 (Direct Cost: ¥500,000)
Fiscal Year 1997: ¥500,000 (Direct Cost: ¥500,000)
Fiscal Year 1996: ¥1,600,000 (Direct Cost: ¥1,600,000)
Keywordsintractable illness nursing / home nursing / respiratory disorder / nursing assessment / home mechanical ventilation (HMV) / pulse oximetry / percutaneous blood carbon dioxide determination / パルスオキシメータ / 経皮血中二酸化炭素濃度測定
Research Abstract

[Purpose and method] : Due to the improvement in home medical care support system including the amendment medical insurance system, the number of patients with advanced respiratory disorders who require mechanical ventilation and oxygen therapy in home nursing is on the increase. This study was conducted for the purpose of investigating by non-invasive method the progress of respiratory disorder in the neuro-muscular disease patients who have chronic or progressive respiratory disorder and the usefulness of introducing appropriate medical care including ventilatory therapy as well as safe nursing activities in performing the care. The subjects of study included 13 patients with progressive muscular dystrophy (Duchenne type - 10, Fukuyama type - 3) and 10 with amyotrophic lateral sclerosis. The time course data which were obtained during the progress of disease were investigated and discussed with nurses specialized in neurological diseases and neurologists.
[Results and Discussion] : 1. … More The following is recommended to grasp the status of respiratory disorder in early stage. In the patients with progressive muscular dystrophy, it is useful to regularly determine the tidal volume (TV) and maximum vital capacity (MAX VC) using a respirometer (respirometry) in addition to checking the vital signs and subjective symptoms from the time before onset of respiratory disorder. When signs of respiratory disorder are expected to appear, it is useful to regularly assess the cough force by speak cough flow (PCF), determine the percutaneous blood oxygen saturation (pulse oximetry) during sleep all through the night and percutaneous blood carbon dioxide partial pressure. In the case of patients with amyotrophic lateral sclerosis, it is useful to observe subjective symptoms from the initial stage of onset and to determine TV and MAX VC by respirometer. After initial signs of respiratory disorder are noted, it is advisable to regularly determine the percutaneous blood oxygen saturation (pulse oximetry) during sleep all through the night and percutaneous blood carbon dioxide partial pressure. The above maybe used as the basic data for the nursing protocol during the introductory phase of home mechanical ventilation. 2. In those receiving mechanical ventilation, it is useful to regularly determine the percutaneous arterial blood oxygen saturation and percutaneous blood carbon dioxide partial pressure as indices for changing the ventilatory settings to cope with further progress in respiratory disorder. 3. It is essential for home nursing that the numbers of a nursing team should cooperate and that their activities should be planned with allowance for time so that the measured values may be appropriately interpreted and reflected in the treatment & nursing plan. Also important is the support to the patient to increase his/her self management ability. These are the tasks which we intend to perform in the future. Less

Report

(4 results)
  • 1998 Annual Research Report   Final Research Report Summary
  • 1997 Annual Research Report
  • 1996 Annual Research Report
  • Research Products

    (19 results)

All Other

All Publications (19 results)

  • [Publications] 川村佐和子,牛込三和子,他: "在宅看護における医療処置の管理に関するプロトコール(試案)の作成[前編]"訪問看護と介護. 3(9). 682-692 (1998)

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      1998 Final Research Report Summary
  • [Publications] 川村佐和子,牛込三和子,他: "在宅看護における医療処置の管理に関するプロトコール(試案)の作成[後編]"訪問看護と介護. 3(10). 726-734 (1998)

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      1998 Final Research Report Summary
  • [Publications] 牛込三和子,他: "在宅人工呼吸療法-ケアと治療のガイドライン"医学書院(印刷中). (1999)

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      1998 Final Research Report Summary
  • [Publications] 牛込三和子,他: "在宅ケア実践シリーズ:病状経過と在宅看護課題"日本看護協会出版会(印刷中). (1999)

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      1998 Final Research Report Summary
  • [Publications] Mitsuko Hasegawa, Fumiko Wako, et al.: "Safety securing problems of home mechanical ventilation in children -An empirical study from the nursing point of view"Journal of Japan Society for Respiratory Care. Vol.6(2). 78-85 (1996)

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      1998 Final Research Report Summary
  • [Publications] Fumiko Wako, Miwako Ushigome: "Patient and family education for home mechanical ventilation"THE LUNG perspectives. Vol.6(1). 54-58 (1998)

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      1998 Final Research Report Summary
  • [Publications] Sachiko Tokuyama, Sawako Kawamura, et al.: "A study on the airway clearance for the patient treated with long-term mechanical ventilation through tracheostomy"Journal of Japan Society for Respiratory Care. Vol.7(3). 213-218 (1998)

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      1998 Final Research Report Summary
  • [Publications] Sawako Kawamura, Miwako Ushigome, et al.: "Protocol of medical treatment for home care -part 1-"The Japanese Journal of Home Care Nursing. Vol.3(9). 682-692 (1998)

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      1998 Final Research Report Summary
  • [Publications] Sawako Kawamura, Miwako Ushigome, et al.: "Protocol of medical treatment for home care -part 2-"The Japanese Journal of Home Care Nursing. Vol.3(10). 726-734 (1998)

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      1998 Final Research Report Summary
  • [Publications] Fumiko Wako, Miwako Ushigome, et al.: "Home nursing care for the patients with Duchenne muscular dystrophy, who have progressive respiratory failure"Journal of Japan Society for Respiratory Care. Vol.7(1). 69 (1998)

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      1998 Final Research Report Summary
  • [Publications] 川村佐和子,牛込三和子,他: "在宅看護における医療処置の管理に関するプロトコール(試案)の作成[前編]" 訪問看護と介護. 3(9). 682-692 (1998)

    • Related Report
      1998 Annual Research Report
  • [Publications] 川村佐和子,牛込三和子,他: "在宅看護における医療処置の管理に関するプロトコール(試案)の作成[後編]" 訪問看護と介護. 3(10). 726-734 (1998)

    • Related Report
      1998 Annual Research Report
  • [Publications] 牛込三和子,他: "在宅人工呼吸療法-ケアと治療のガイドライン (印刷中)" 医学書院, (1999)

    • Related Report
      1998 Annual Research Report
  • [Publications] 牛込三和子,他: "在宅ケア実践シリーズ:病状経過と在宅看護課題 (印刷中)" 日本看護協会出版会, (1999)

    • Related Report
      1998 Annual Research Report
  • [Publications] 輪湖 史子,他: "在宅人工呼吸療法における患者・家族教育の進め方" The LUNG perspective. 6(1). 54-58 (1998)

    • Related Report
      1997 Annual Research Report
  • [Publications] 徳山 祥子,他: "在宅経気管人工呼吸療法者の気道浄化看護に関する研究." 日本呼吸管理学会誌. 印刷中7(3). (1998)

    • Related Report
      1997 Annual Research Report
  • [Publications] 長谷川美津子,他.: "在宅人工呼吸療養児における安全性に関する研究" 日本呼吸管理学会誌. 6(2). 78-85 (1996)

    • Related Report
      1996 Annual Research Report
  • [Publications] 川村佐和子,他.: "訪問看護におけるプロトコール作成のための基礎研究" 看護管理. 6(8). 564-571 (1996)

    • Related Report
      1996 Annual Research Report
  • [Publications] 輪湖史子.: "呼吸障害を持つ療養者を支える新しい医療保健福祉システム" 日本呼吸管理学会誌. 7(1)(印刷中). (1997)

    • Related Report
      1996 Annual Research Report

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Published: 1996-04-01   Modified: 2016-04-21  

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