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QUALITY OF LIFE OF CHILDRENS WITH SEVERE MOTOR AND INTELLECTUALLY DISABILITIES

Research Project

Project/Area Number 10610254
Research Category

Grant-in-Aid for Scientific Research (C)

Allocation TypeSingle-year Grants
Section一般
Research Field Educaion
Research InstitutionHYOGO UNIVERSITY OF TEACHER EDUCATION

Principal Investigator

GOMA Hideyo  HYOGO UNIVERSITY OF TEACHER EDUCATION, DEPARTMENT OF EDUCATION FOR THE HANDICAPPED, PROFESSOR, 学校教育学部, 教授 (40234968)

Co-Investigator(Kenkyū-buntansha) KOTANI Hiromi  HYOGO UNIVERSITY OF TEACHER EDUCATION DEPARTMENT OF EDUCATION FOR THE HANDICAPPED, ASSOCIATE PROFESSOR, 学校教育学部, 助教授 (10294266)
Project Period (FY) 1998 – 2000
Project Status Completed (Fiscal Year 2000)
Budget Amount *help
¥2,100,000 (Direct Cost: ¥2,100,000)
Fiscal Year 2000: ¥500,000 (Direct Cost: ¥500,000)
Fiscal Year 1999: ¥500,000 (Direct Cost: ¥500,000)
Fiscal Year 1998: ¥1,100,000 (Direct Cost: ¥1,100,000)
KeywordsCHILDREN WITH SEVERE MOTOR AND INTELLECTUAL DISABILITIES / QUALITY OF LIFE (QOL) / ASSESSMENT / LIFE STAGE / MEDICAL CARE IN SCHOOLS / QOL(qualily of life) / 評価 / ラィフステージ / ライフサイクル
Research Abstract

It is difficult to understand children with severe motor and intellectual disabilities. So, we tried to assess their quality of life (QOL) by asking their parents about their childrens. Interviews and a questinaire are used.
1) Interview
Eleven parents (6 mothers and 5 fathers) of 6 children with severe motor and intellectual disabilities were asked questions regarding expressions of their emotions, their influences on other people and so on. Results are 1) Severely handicapped children (persons) express their QOL in in various capable ways. 2) A quite few parents consider their bringing up their handicapped child as positive and worth experience. 3) Parents who had brought up the handicapped tend to take negative attitude toward prenatal diagnosis which lead to denial of QOL of the handicapped.
2) A questinarie
30 parents are asked 85 items which measure eight multi item variables : medical problems, daily life, family, social and emotional relations, activities (work education), leisure, genaral problems. Results are 1) They are camparatively satisfied with their daily life, 2) There are few who help and support the children and family, 3) Welfare systems are notsufficient, 4) Most of parents are very concerned and uneasiness about the future of their handicapped children.
Our next purpose in this study is to measure their own QOL directly.

Report

(4 results)
  • 2000 Annual Research Report   Final Research Report Summary
  • 1999 Annual Research Report
  • 1998 Annual Research Report
  • Research Products

    (14 results)

All Other

All Publications (14 results)

  • [Publications] 牛尾禮子: "在宅重症心身障害者を持つ母親支援"小児保健研究. Vol.59.. 508-513 (2000)

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2000 Final Research Report Summary
  • [Publications] 牛尾禮子: "重症心身障害児者の我が子と死別した母親へのサポートについて"日本重症心身障害学会雑誌. 25. 31-34 (2000)

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2000 Final Research Report Summary
  • [Publications] 郷間英世: "在宅重症心身障害児(者)に対する親の希望を重視した療養外来の設み"日本重症心身障害学会雑誌. 26(印刷中). (2001)

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2000 Final Research Report Summary
  • [Publications] 郷間英世: "重症心身障害児者のQOL"日本保健医療行動科学会年報. 16(印刷中). (2001)

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2000 Final Research Report Summary
  • [Publications] 郷間英世: "医療的ケアネットワーク(小西行郎ら編) P56-72"クリエイツ鴨川. 222 (2001)

    • Description
      「研究成果報告書概要(和文)」より
    • Related Report
      2000 Final Research Report Summary
  • [Publications] REIKO USHIO: "SUPPORT FOR THE MOTHERS CAREING FOR PERSONS WITH SEVERE MOTOR AND INTELLECTUAL DISABILITIES (JAPANESE)"THE JOURNAL OF CHILD HEALTH. VOL.59. 508-513 (2000)

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      2000 Final Research Report Summary
  • [Publications] REIKO USHIO: "SUPPORT FOR A MOTHEER WHO LOST HER CHILD WITH SEVERE MOTOR AND INTELLECTUAL DISABILITIES (JAPANESE)"THE JOURNAL OF JAPANESE SOCIETY OF CHILDREN WITH SEVERE MOTOR AND INTELLECTUAL DISABILITIES. VOL.25. 31-34 (2000)

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      2000 Final Research Report Summary
  • [Publications] HIDEYO GOMA: "SUPPORT FOR PERSONS WITH SEVERE MOTOR AND INTELLECTUAL DISABILITIES AT OUT PATIENT HOSPITAL (JAPANESE)"THE JOURNAL OF JAPANESE SOCIETY OF CHILDREN WITH SEVERE MOTOR INTELLECTUAL DISABILITIES. VOL.26(IN PRESS). (2001)

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      2000 Final Research Report Summary
  • [Publications] HIDEYO GOMA: "QUALITY OF LIFE OF CHILDREN WITH SEVERE MOTOR AND INTELLECTUAL DISABILITIES (JAPANESE)"THE JAPANESE JOURNAL OF HEALTH BEHAVIORAL SCIENCE. VOL.16 (IN PRESS). (2001)

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      2000 Final Research Report Summary
  • [Publications] Goma H: "Subjective QOL of children with severe motor and intellectual disabilities."The 14th Asian Conference on Mental Retardation. 1999 Nov 30 ; Kathmandu, Nepal.

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      2000 Final Research Report Summary
  • [Publications] Goma H: "Subjective QOL of children with severe motor and intellectual disabilities."The 4th International Conference of Health Behavioraln Science, August 24-26, 2001. Kobe, Japan..

    • Description
      「研究成果報告書概要(欧文)」より
    • Related Report
      2000 Final Research Report Summary
  • [Publications] 郷間英世: "在宅重症心身障害児(者)に対する親の希望を重視した療育外来の試み"日本重症心身障害学会雑誌. 26巻1号(印刷中). (2001)

    • Related Report
      2000 Annual Research Report
  • [Publications] 郷間英世: "重症心身障害児・者のQOL"日本保健医療行動科学会年報. Vol.16(印刷中). (2001)

    • Related Report
      2000 Annual Research Report
  • [Publications] 郷間英世: "医療的ケアネットワーク(小西行郎ら編)"クリエイン鴨川. 222(P56-72) (2001)

    • Related Report
      2000 Annual Research Report

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Published: 1998-04-01   Modified: 2016-04-21  

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