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Development of an Assessment Tool to Support Children with Congenital Heart Disease and their Families During Transition to Adulthood

Research Project

Project/Area Number 15K11710
Research Category

Grant-in-Aid for Scientific Research (C)

Allocation TypeMulti-year Fund
Section一般
Research Field Lifelong developmental nursing
Research InstitutionSaitama Prefectural University

Principal Investigator

SAKURAI IKUHO  埼玉県立大学, 保健医療福祉学部, 准教授 (30708516)

Project Period (FY) 2015-04-01 – 2019-03-31
Project Status Completed (Fiscal Year 2018)
Budget Amount *help
¥3,510,000 (Direct Cost: ¥2,700,000、Indirect Cost: ¥810,000)
Fiscal Year 2017: ¥910,000 (Direct Cost: ¥700,000、Indirect Cost: ¥210,000)
Fiscal Year 2016: ¥1,300,000 (Direct Cost: ¥1,000,000、Indirect Cost: ¥300,000)
Fiscal Year 2015: ¥1,300,000 (Direct Cost: ¥1,000,000、Indirect Cost: ¥300,000)
Keywords移行期支援 / 成人先天性心疾患 / 小児慢性疾患 / 思春期 / 若年成人 / 先天性心疾患 / 思春期・青年期 / 看護 / アセスメントツール
Outline of Final Research Achievements

Children with congenital heart disease (CHD) need to transition from pediatric to adult health care as they enter adulthood.This study created an assessment tool for supporting such patients and their parents during the transition and examined ways to utilize the tool. The following aspects were extracted: patients’ understanding of the disease and prevention, self-care related to the disease, and preparations for becoming an adult. Also, it was found that nurses respected patients and engaged with them in such a way that the patients maintained their autonomy. Further, nurses provided educational support to patients and their parents since the patients were young. The study highlighted the role of nurses working within a team as well as issues related to the transition. Going forward, it will be necessary to devise an educational program to provide seamless support for child-to-adult transitions primarily through collaboration between departments providing pediatric and adult care.

Academic Significance and Societal Importance of the Research Achievements

本研究は、成人先天性心疾患患者と親が小児の診療から成人の診療へ移行するためのアセスメント(査定に関する)ツールの作成とその活用方法を検討することを目的とし、国内外の論文や専門家会議および研修会から項目を抽出し、看護師へのインタビューによりその内容を精選した。結果、患者の病気とその予防に対する理解や、病気に関連したセルフケア行動、大人になるための準備等に関する査定内容が抽出され、それらを活用した看護師の支援と、成人科への移行に関する課題が示された。これらは、今後小児成人の連携を中心としたシームレスな移行期支援を行ううえで重要であり、今後はさらなる支援の充実を図っていく必要がある。

Report

(5 results)
  • 2018 Annual Research Report   Final Research Report ( PDF )
  • 2017 Research-status Report
  • 2016 Research-status Report
  • 2015 Research-status Report

URL: 

Published: 2015-04-16   Modified: 2020-03-30  

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